Kati
Patient in training
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What does smh mean?This is the saddest thing I've read here on PR.
smh, nothing else to say.
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What does smh mean?This is the saddest thing I've read here on PR.
smh, nothing else to say.
What does smh mean?
I am totally innocent of that, I tell you!
However.......................I will tell you a little secret of mine as long as you don't tell anyone...........
One day........long, long ago.........dressed in my mini skirt.........(or bum frill as my mother called them)............and leather boots....................I with about a thousand students marched down Oxford's High bringing the city's traffic to a standstill ................waving placards........(I was marching...........unknowingly........... under the banner of the communist party with Prince someone or other from some exotic country alongside me)....................shouting 'Margaret Thatcher, milk snatcher'........... (no idea why..................she was threatening to arrange for the colleges to dole out our grants instead of direct payments at the time).....................until a little old lady jumped out and threw a bucket of water over me and my companions and called us a bunch of lazy layabouts. Much to my horror a BBC camera crew shot forward and filmed the whole sorry spectacle. It was on the six o'clock news that night. I just prayed my mother wasn't watching that evening. She said nothing so I probably got away with it.
So as I understand it the BBC science reporters are basically an outpost of the science media centre bu what about channel 4 news are they not in the slightest bit interested in PACE??Its so telling that Crawley is using the "anti science" meme. That's because it is impossible for her to criticize us for not following the scientific method or understanding it. That's because she knows full well that the BPS model doesn't follow the scientific method and that if she alerted people to the PACE study to examine it for the scientific method she would be firing a gun at her own foot.
Secondly she is also using the current meme sound bite of "Fake News" which is also a distraction from the notions of how journalism should check its sources and provide evidence for its claims. This is like Fox accusing other channels and media outlets of FAKE news whilst slyly slipping it into the consciousness of the viewer that their own news is beyond demands for evidence and the basic principles of providing journalistic impartiality.
This stance is about declaring yourself the authority, the priest class, the crowned leader. This is nothing to do with science its pure scientism. Her flock are the uncritical, the unquestioning, and the uninformed.
I am just waiting for her to declare us all conspiracy theorists that's right out of the "how to be a propagandist whilst accusing your questioners of being the propagandist" manual. You simply take a term that previously had the purpose of fulfilling the testements of democratic interactions to arrive at a content based conclusion and you demonize it and its very process. You then use the term to denigrate your opponents and turn the debate into an emotional based argument using things like ad hominem, straw men.
Hence "anti science". Hence "fake news".
Its just so pathetic that she is using the memes of "fake news" and "anti science" against us when it is her and her highly connected State funded, Insurance Industry connected, Media connected BPS school use the Science Media Centre to get all over the radio, the BBC and the UK national press to push out their provably flawed studies, whilst hiding the fact that they can declare people ill enough to enter a trial yet recovered at the same time, and then go unchallenged when they present to an ill informed audience of this obvious example of fake news.
When it becomes dangerous is when you have position, power and highly connected, like minded friends and she has all of those.
The KGB would be proud.
"Pride comes before a fall" is a saying from my grandad that seems pertinent- She ignores patients who write letters that disagree with what she is doing
- She sees petitions to stop trials from concerned patients or parents as vexatious
- She sees complaints to University over ethics or complaints to GMC as vexatious
- She views blogs by other academics as false science
what does she propose patients, concerned parents, do if they disagree or want to protest something? - What avenues are open to them to express their views and why shouldn’t a person be allowed to ask for information on a trial or findings from a trial - these are publically funded trials shes had £3.2 million pounds.
Her position as deputy chair of the UK CFS/ME Collaborative is just untenable in my opinion based on the views she expressed today, which basically denigrate patients - painting all complainers or information requesters as militants
Her position on this national body - funded by the MRC and supported by Action for ME *a leading patient charity, - it just can’t be allowed to continue, she should resign in my opinion.
Compare this to a politician who called a police officer a pleb - the public outrage - v this doctor calling thousands of patients and their families - and other scientists, anti-science militants.
Can she continue in the CMRC with this revelation today? She doesnt speak for vast sways of patients - thus how can she continue to hold this position. If she was a politician she'd be gone by 10 pm
So as I understand it the BBC science reporters are basically an outpost of the science media centre bu what about channel 4 news are they not in the slightest bit interested in PACE??
Wow now that's a coincidence, I was the cameraman on that day and I still have the film in my personal archives. Now you behave yourself or I will be forwarding a copy to your mother!!
You toad!
(Good luck with that.You will find her down church lane, go through the lych gate, turn right be the sign that says Prepare for Death !! , then right outside the belfry door you will find her.)
Oops. Sorry!
which sounds very credible!I am text block. Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.
Esther Crawley
NIHR Senior Research Fellow, University of Bristol
Esther Crawley, is a Professor of Child Health at the University of Bristol, a Consultant Paediatrician and an NIHR Senior Research Fellow. She is the clinical lead for the Bath specialist CFS/ME service for children based at the Royal United Hospital in Bath. This service provides assessment and treatment for over 450 children and young people each year. Esther leads a research team which investigates the epidemiology and treatment of CFS/ME in children and adults. The epidemiological work uses the Avon and Longitudinal Study of Parents and Children (ALSPAC) and a large cohort of patients (~18,000 adults, and 2500 children) to study the causes and different types of CFS/ME. Her team have developed expertise in delivering complex hard-to-do trials. They have just started recruiting to FITNET-NHS which will be the largest RCT in CFS/ME. FITNET-NHS will test the effectiveness and cost-effectiveness of internet delivered CBT throughout the UK. She is also running a large trial investigating Graded Exercise Therapy for children with CFS/ME. Esther trained in Oxford, did her PhD in London and lives in Bristol when she is not sailing or skiing with her teenagers.
Thank you so much for coming forward and for professionally sharing this.Hi Dr Edwards and everyone here
I am this Sridharan fellow! I came across this thread as a result of replies I have been getting on twitter and hence, I thought I will clear some things up.
First of all, I am not employed by BRS to tweet nor do I know Dr Crawley. I have never heard of her before this morning. And certainly, I am not employed by her to tweet her session. You may have seen that I have tweeted other sessions as well from the conference and I have done this for many other meetings previously. None of the tweets I posted carried any of my personal opinion - it was just a statement of what was happening there just like I have done for other sessions. To clarify, I am not a paediatrician and certainly do not know about CFS/ME as much as you people do. Hence, I refrain from commenting on which research is valid regarding ME.
By replying to me and abusing me, nothing is going to happen. I don't know Dr Crawley and she is not in my network. By doing this, you are shooting the proverbial 'messenger'. None of my tweets endorsed her studies or her views. I am sorry I had to block some of you guys only because they were either abusing me or trying to abuse Dr Crawley through my tweets. I do not want to be a medium for it. If I had tweeted any of your talks and this happened to you, I would have done the same. I understand you have a lot of differences with her competency and research but I am not in any way endorsing it either. You may also noticed that I hadn't blocked some of the people who replied because they politely pointed me to Dr Edwards' blog to know the truth - which I am OK with. I will, if interested, will look at it.
Going through this thread, I get a sense that you all are decent people trying to take a stand against what you think is wrong. I commend that. So, please stop abusing me - I was just tweeting a conference session which I attended. That's all there is to it. It is not related to ISN Social media task force as I was tweeting from my own account and not as ISN member. I have taken all the tweets down so that there is no further dissemination of the material that was presented by her through my account.
I am a neutral person in this issue and certainly not knowledgeable enough to support either side. I wish you luck in whatever your goals are. Thanks and I hope you all will leave me and ISN out of this issue.
P.S. I am Dr Siva Sridharan and I am a nephrologist. I attended BRS conference just as a delegate like everyone else. I tweet some of the sessions I attend in the conference and I am the one who tweeted Dr Crawley's session.
Hi Dr Edwards and everyone here
I am this Sridharan fellow! I came across this thread as a result of replies I have been getting on twitter and hence, I thought I will clear some things up.