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Crash almost daily

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by Andrew, Nov 19, 2012.

  1. Andrew

    Andrew Senior Member

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    Sometime during the day I feel like I need to take a nap. No big deal. But then when I lie down I enter into a half sleep state and a major increase in flu-like symptoms. The symptoms are so bad I feel like I have experienced a major relapse, and will need a daily caregiver again. A few hours go by and it passes. I get up and I'm back to my previous lower level of symptoms. The only thing that keeps this from being really scary is it's happened so often, I just tell myself it's not a real relapse.

    Do any of you get routine variation of symptoms this way. This has nothing to do with stress or exertion. It seems to be something I go through a few times a week. It doesn't aways occur at the same time of day.
     
  2. xchocoholic

    xchocoholic Senior Member

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    Hi andrew,

    I've had variations of this and found a variety of causes. Fwiw, I used to feel fluish all the time but that stopped for
    some unknown reason about 10 years ago.

    As fas as possibilities tho, I'd look at your blood glucose levels. A gtt + insulin should show you if it's that.
    I did what you described during this test plus felt like I was going to throw up for about 30 minutes.

    And it could be a food and/or chemical reaction. A diary should help you figure it out.

    If you just want to take a possible short cut, try taking some mast cell
    meds to see it that stops it. A tsp of Children's dye free benadryl might work but also could make you a little drowsy.
    I'm usually fine with a tsp or less. Or I use 1/4 - 1/2 of a children's chewable.

    Zyrtec, claritin, allegra, etc are other options. I find benadryl works the quickest if it's an allergic reaction.

    Tc ...x
     
  3. Valentijn

    Valentijn Activity Level: 3

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    It also might be OI. Keeping your feet up throughout the day might help, and/or laying down before you really need to.
     
  4. caledonia

    caledonia

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    Yes, I had this exact thing every day for many years. Then last year I went through a big relapse due to SSRI withdrawal. Now I actually take a nap during this time. I actually prefer the nap, so I don't have to lay there thinking about things, like you said, wondering if this is temporary or if I'm going to be stuck in bed forever.

    One odd thing I noticed was that the achy fluey feeling would sometimes be all over my body, but at some point it would be in the upper half of my body, then move towards my feet. Once it got to my feet, then i felt better, and it was time to get up.

    In general, I got relief from a lot of the fluey stuff by attending to my yeast problem. I haven't actually gotten rid of it, but I do keep it at bay with either cat's claw, Caprylistat (caprylic acid), or GSE (grape FRUIT seed extract). If one stops working I rotate to the next one. Each one is effective for about a year before I have to rotate.
     
  5. taniaaust1

    taniaaust1

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    As another on this thread suggested... it could be a something to do with glucose or it could be something to do with insulin esp if you have a breakfast high in carbs and with a high glycemic index (many cereals are high) (so a 2 hr glucose tollerance test with the insulin included may be helpful).. . I found that my insulin going up too high was not only just making me feel tired and like needing to sleep at times but also seemed to affect my immune system eg when I get high insulin I also can get a sore throat.
    So I suggest to experiment to see if very low carb foods cause the same affect to happen.

    I also often get a low energy point during my day (for me its after Ive been up for around 5-6 hrs) and often at that point are falling asleep.. a couple of hours after that I feel okay again. My specialist seems to think this is due to me using up all my cortisol by then. I thou arent so sure if it is my cortisol as I think it may be due to my circardian rhythm which is very screwed up as it feels like a sleep cycle wave coming on. Anyway.. I dont really know..something is causing it. (could also be OI, but it dont seem to be that as if Im upright more in a day this low energy point I usually have, doesnt come on sooner and still occurs around the same time).
     
  6. CallieAndToby

    CallieAndToby Senior Member

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    I crash every afternoon every day. Symptoms like fatigue and migraine become almost unbearable. For me it's b/c of my severe dysautonomia and sleep deprivation. My body uses adrenaline to function, running on adrenaline all the time, then in the afternoon is stops. After hours of lying there I can get back up, then at 9:30 pm I crash again.

    Sorry I don't have answers for you. Also, I think my clocks are screwed up cause my body wants to sleep every afternoon.
     
    MishMash likes this.
  7. CallieAndToby

    CallieAndToby Senior Member

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    And yes, I can't nap, I hear adrenaline takes a long time to be reabsorbed, so I just like there with racing thoughts, thinking thinking thinking thinking......
     
    MishMash likes this.
  8. adreno

    adreno 3% neanderthal

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    When I crash, I usually need nutrients. I apply a shotgun approach, and might take pregnenolone, ubiquinol, carnitine, zinc and potassium. Try a small meal with protein, complex carbs and some fat. And then REST.
     
  9. soxfan

    soxfan Senior Member

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    I have the adrenaline problem too...I run on it all day until it finally gives out and then I am done. I am never able to sleep during the day as the moment I lay down it feels as though the adrenaline starts pumping again and I feel totally horrible. As tired as I feel my body is unable to shut down and rest..the feeling is so bad I would give anything to sleep .
     
  10. CallieAndToby

    CallieAndToby Senior Member

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    soxfan That is EXACTLY what I have experienced since 2008. As soon as I wake up it kicks in and if I stand or walk or try to do something it kicks in. It's neverending. Even my sleep study showed I had tachycardia throughout my sleep at one point 126 bpm. I take beta blocker at night along with a butt load of other stuff. Also when I relax and my heart rate goes down I feel the most horrific fatigue, feels like I'm dying or brain is rotting, so then I'm scared to sleep, do you have this feeling? It's definitely not right.
     
  11. soxfan

    soxfan Senior Member

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    I definately have this feeling....I am convinced I am not even relaxed when I am sleeping. The fatigue is the worse feeling...I always tell my husband I would take anything to stop that feeling. It is so hard to explain to the doctor what it feels like. The fatigue I feel is totally inner body...not sleepy. I feel like my insides are shaking with exhaustion and nothing stops it. Then when I lay down the adrenaline kicks in to try and compensate for the turmoil and stress my body is under....It is never ending for me either....
     
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  12. MishMash

    MishMash *****

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    Soxfan,
    I would put this explanation of ME/CFS directly into the "Physicians Desk Reference" if I could. It describes exactly what many of us feel. Wired and tired. Buzzing but exhausted. Guess a doctor has to experience it himself to understand it.
     
    soxfan likes this.
  13. john66

    john66 Senior Member

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    The key phrase is you have to experience it to understand it.......it is such a foreign feeling. You then get the glazed over look......here come the ssri's
     
    MishMash likes this.
  14. CallieAndToby

    CallieAndToby Senior Member

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    LOL!
     
  15. soxfan

    soxfan Senior Member

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    I have to say that when it is at its worse a 0.5 klonopin will help with that tortured feeling of my insides shaking...that seems to be the only thing that has ever taken the edge off a little bit....
     
    MishMash likes this.
  16. CallieAndToby

    CallieAndToby Senior Member

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    So bizarre because I completely agree here. It started up for me earlier today, massive crash, shaking, racing thoughts, and I took .5 of klonopin and it calmed everything down. Xanax also helps a lot, I take it during the day. The benzos have by far been the most helpful for me as far as sleep. But yes, klonopin does take the edge off that feeling that your brain is rotting or that you're dying. So weird, we obviously have the same thing goin' on here. I am still however incredibly sleepy and fatigued, the weird thing is when these episodes come, I cannot sleep! It's so bizarre, totally wrecked, incredibly sleepy cannot fall asleep or nap.
     
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  17. MishMash

    MishMash *****

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    I think you just crystallized why so many of us are taking Klonopin. There is nothing else.
     
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  18. CallieAndToby

    CallieAndToby Senior Member

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    Wonder why this is so helpful. Perhaps our CNS's are in overdrive? God bless benzos.
     
    soxfan and MishMash like this.
  19. taniaaust1

    taniaaust1

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    id like to update my last post.

    Im now not getting that symptom anymore of a regular low energy point where Im falling asleep. I dont know if its cause my symptoms just shifted or cause I started taking an adrenal adaptagen and are now more on the methyalation protcocal and taking bioactive folate and methyl B12.
     
  20. soxfan

    soxfan Senior Member

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    I can never sleep even though I feel like I could lay down and sleep for a year. The minute I try to rest my body goes into overdrive. It is such an uncomfortable feeling I just want to be knocked out. My doctor feels my cns is in overdrive because of a bartonella infection I had or still have...it is totally out of my control like my body has been taken over by aliens. I mostly take klonopin at night and hardly ever wake up feeling unrested anymore. That has been a huge improvement for me. I also take Kavinace at night. The two are a great combination for me.
     
    MishMash likes this.

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