Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Coyne: taking Wessely's manipulative ways out of the shadows..........

Discussion in 'General ME/CFS News' started by Countrygirl, Dec 20, 2016.

  1. Countrygirl

    Countrygirl Senior Member

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    https://jcoynester.wordpress.com/20...n-on-handing-over-the-plos-one-data-to-coyne/

     
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  2. Daisymay

    Daisymay Senior Member

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    I find Wessely's email to be pretty incoherent.

    And now he is claiming someone is falsifying his power points. I wonder if that will turn out to be like the death threats, to have no basis in reality?

    And so it appears that he's not only using his power to manipulate the media against PWME via the SMC but directly petitioning journalists and editors.

    Hmm........
     
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  3. Countrygirl

    Countrygirl Senior Member

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    Brain fog and paranoia. Is there a psychiatrist in the house? :rolleyes:
     
  4. Esther12

    Esther12 Senior Member

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    Someone had done a comedy photoshop of one of his photos, giving him a big cigar, reclining in plumes of smoke. Wessely acted like it was a deliberate attempt to mislead people. Maybe he just does not get the sort of sense of humour that's common on the internet?

    I think that his views of patient activism are genuinely detached from reality, but also, he has an incentive to misrepresent them. It's hard to know when he's being manipulative, when he's just wrong, and when he has access to information that we do not.
     
    Last edited: Dec 20, 2016
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  5. Daisymay

    Daisymay Senior Member

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    True, though I do tend towards thinking that manipulation figures highly!
     
  6. Demepivo

    Demepivo Dolores Abernathy

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    Imperial Lord Wessely is used to being deferred to and got used to it. Suspect beneath all the bluster & self importance, the poor chap is rather insecure.

    (Don't mention the scary clown hair whatever you do!)
     
    Last edited: Dec 20, 2016
  7. Wildcat

    Wildcat

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    As Coyne has also proved to have been an abuser of ME patients/carers/activists ..... its a bit rich that he has claimed to have taken on Wessely on 'our' behalf.


    As one of the individuals who was personally, aggressively, abused by Coyne earlier this year
    (extensive, aggressive, 'Fuck you, do what I say or else I will carry on telling you to 'Fuck Yourself' .... private messages, late at night, to a severely sick housebound female who lives alone)

    .... part of Coyne's attempt to stop me (and even more vocal others) from Criticising the involvement of the psychosocial researcher Walitt in an important NIH Study

    .... I am not impressed by Coyne's 'Late In The Day' challenges to Wessely.


    If Coyne really had the ME Community's interests at heart, he would not have so aggressively attacked, and attempted to silence, so many patient/carer/activists in such a very aggressive and public (and private) manner.... specifically the patient/activists who were critiquing another ME psychosomatiser researcher (Brian Walitt), and Walitt's involvement in NIH funded ME research.


    Not Impressed with Coyne's 'Late In The Day' posturing.... Lets see Coyne Publicly critisising Brian Walitt, and retracting Coynes own public promotion of ME denialist and ME psychosomatiser Edward Shorter!


    If Coyne truly opposes Wessely, then why did Coyne give the ME denier and Wessely ally Edward Shorter such a public platform and promotion on his (Coyne's) Blog??

    Uh??

    .
    .
    .
    .
     
    Last edited: Dec 20, 2016
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  8. A.B.

    A.B. Senior Member

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    First it was death threats, and Wessely feeling safer in a war zone in Afghanistan than at home in England.

    Then it were an organized campaign of harassment against researchers, using FOI requests.

    Then it was young men, borderline sociopath and psychopath, seeking to harass PACE trial participants, using PACE data.

    Now "there are people out there who have downloaded my powerpoints, changed them (guess how) and then circulated false versions to make me look like an ogre"

    It seems the scariness of the unreasonable activists diminishes every time the tale is told.

    But no matter, the data can't be released because who knows what that powerpoint alterator might do with it :nervous:
     
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  9. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    What is Simon saying now? What is this incoherent statement?
    Is he saying that he was concerned about some employees becoming ill due to stress? Should we pity them? OK, poor employees.o_O:bang-head:
     
    Last edited: Dec 20, 2016
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  10. Dx Revision Watch

    Dx Revision Watch Owner of Dx Revision Watch

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    Why indeed? And when challenged, why did he attempt to stifle discussion about his motivations?
    And why did he seek to scapegoat patients for his decision to promote Shorter, Shorter's books and Shorter's blog?
     
  11. TiredSam

    TiredSam The wise nematode hibernates

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    Because Wessely is UK, and Shorter is US. Coyne is all for criticising the horrendous psych situation in the UK, but criticism of anything similar in the US is off limits as far as he is concerned.

    Whatever. Watching two bullies (Coyne and Wessely) getting into a spat is always fun.
     
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  12. Barry53

    Barry53 Senior Member

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    What am I missing? I thought the PACE data was already released. Or did they only release some of it?
     
  13. trishrhymes

    trishrhymes Senior Member

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    They only released the specific data requested. There's plenty more that has been used to write other papers such as the one Coyne asked for -I think it was data on cost effectiveness of treatment.
     
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  14. Barry53

    Barry53 Senior Member

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    Many thanks.
     
  15. Esther12

    Esther12 Senior Member

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    I assumed the Wessely e-mail was old - from before the tribunal.

    Sounds like he's saying stress related ill-health from one of the PACE team is making it harder for them to deal with data access. Pretty weak to use that as a reason to get in the way of unspinning of data for treatment that could affect the lives of millions around the world.
     
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  16. Large Donner

    Large Donner Senior Member

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    Unless they are suffering from anxiety fraud based data release panic disorders. Then they need help with a good course of CBT. Perhaps a good judge could put them on a course.
     
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  17. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Good. (If it's even true.)
    Agree.

    Make that "false anxiety fraud-based data release panic disorder beliefs. Break out the CBT manuals!
     
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  18. Esther12

    Esther12 Senior Member

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    It really does seem odd how some campaigners for open science, concerned about spun results etc, are failing to speak out about the PACE trial. It would not surprise me if private pressure (cowardice) was playing a role in this.
     
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  19. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    wee bit of "projection" there, me thinks, from old Weasel Dick! :p
     
  20. Dx Revision Watch

    Dx Revision Watch Owner of Dx Revision Watch

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    Yes, it's evident that he's happy to pursue (and in some instances, bait) White, Wessely, Sharpe (UK) and Fink et al (Denmark); he also has an ongoing public thing against selected British Psychological Society folk, like its current President, Prof Peter Kinderman, and Dr Lucy Johnstone.

    Yet he defends Walitt and promotes Shorter and he chops off the heads of those who challenge him about this*.

    He even manages to gloss over the fact that Prof Joel E Dimsdale (whom he quotes in a recent blog post) signed off on the SSD construct and criteria. It wasn't just the DSM-5 Task Force who refused to consider Allen Frances' suggestions for redrafting the SSD criteria - Dimsdale was not receptive, either.

    A very curious MO.

    *And he continues to find ways to "punish" advocates for having challenged him. In my case, by quoting my text in his blog but repeatedly refusing to attribute that text to its author.
     
    Last edited: Dec 21, 2016
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