1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Covering It Live! Phoenix Rising Covers the Federal Advisory Committee Meeting

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jun 11, 2012.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog
     
  2. Bob

    Bob

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    I've been dropping by the forum for updates all day...
    And I wondered why there weren't any...

    I've just realised I'm a day early! :confused:
     
  3. Ember

    Ember Senior Member

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    I guess that makes you even, Bob!;)
     
  4. Bob

    Bob

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    Ha! Ember! How funny! If a little embarrassing! :cool:

    I think there's a pattern forming here isn't there! :sleep:

    Maybe I should invest in a calender, and I should keep it next to my computer!!! :confused:

    :)
     
    Ember likes this.
  5. CJB

    CJB Senior Member

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    We're live folks. The meeting convened at 9am EST and is currently on lunch break. Please join our live coverage feed. Follow the links at the top of the page.
     
  6. roxie60

    roxie60 Senior Member

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    does anone have a live link to the actual meeting? I think I found the link. Someone said it would be helpful for us to login somewhere so 'the gubbermint' knows we care, is the link the th live thread the plac we are suppose to login and be heard/recognized?
     
    WillowJ likes this.
  7. Mark

    Mark Acting CEO

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    Here's where you can view the coverage as a live video stream:
    http://www.hhs.gov/live/

    Agenda:
    http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac20120613_agenda.html

    Roster:
    http://www.hhs.gov/advcomcfs/roster/index.html

    I've edited our coverage from day 1 to add some extra info and a summary at the end, plus captions for most of the screenshots. Probably easiest to read through in the larger window on the forum page here:
    http://forums.phoenixrising.me/index.php?pages/CoveritLive1/

    Our Day 2 coverage will appear here:
    http://forums.phoenixrising.me/index.php?pages/CoveritLive2/

    You can email us with your comments to be included in our commentary.
     
    WillowJ likes this.
  8. Sasha

    Sasha Fine, thank you

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    Thanks to everybody for the coverage - I watched quite a bit of the feed but find it difficult to take in verbal stuff when it's fast so the soundbite summaries were extremely helpful.
     
  9. taniaaust1

    taniaaust1

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    I really really want to watch it, but my dial up connection cant handle the live stream so I cant hear it (Im getting it about one word every 30 seconds) and picture arent moving. Is there anywhere we can just listen to it without the video? maybe my computer could handle that.
     
  10. TheMoonIsBlue

    TheMoonIsBlue Senior Member

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    I can not watch it on my ipad.

    Anyone else?
     
  11. taniaaust1

    taniaaust1

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    im now watching the messages being done on it as they are posted (as that is the only thing I can get up,, it automatically updates the messages as they are posted ) http://forums.phoenixrising.me/index.php?pages/CoveritLive2/

    Thank you Cort and PR for setting that up for us
     
  12. waiting

    waiting Senior Member

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    You won't be able to watch CFSAC meeting on iPad because they're livestreaming using Adobe Flash Player and that won't run on an iPad (longstanding dispute between Apple and Adobe).
     
  13. TheMoonIsBlue

    TheMoonIsBlue Senior Member

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    I know....it is so annoying!
     
  14. SpecialK82

    SpecialK82 Senior Member

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    Thanks to all the CoverItLive commentators - you guys were great!
     
  15. taniaaust1

    taniaaust1

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    I too want to say a big thanks to all those who spoke up at this talk. So many great speakers telling it how it is
     
  16. Denise

    Denise Senior Member

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    Thank you to everyone who Covered It Live!
    Thank you to everyone who watched (or ran) the LiveStream!
    We appreciate you!
     
  17. WillowJ

    WillowJ Senior Member

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    I also want to say thanks to everyone who spoke, watched, worked on Cover it Live!, Tweeted, etc., and provided other support to those who did these things and to the community as a whole.
     

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