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Coverage from IACFS/ME Florida conference, 27-30 Oct 2016

Discussion in 'General ME/CFS News' started by Sasha, Oct 27, 2016.

  1. Sasha

    Sasha Fine, thank you

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    Last edited: Oct 27, 2016
  2. Sasha

    Sasha Fine, thank you

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    Today's programme:

     
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  3. aimossy

    aimossy Senior Member

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    I haven't heard re Livestreaming. I only read that Cort Johnson would tweet, also now Mark has said they have put together some tweet coverage. So I doubt it will be streamed at all. There may be some other tweeters that might turn up too @Sasha

    Here's Cort's twit link for your top post https://twitter.com/CortJohnson
     
  4. Mark

    Mark Former CEO

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    I've notified our team at the conference about this thread, so hopefully there'll be an opportunity (in a very busy day for them) to keep an eye on it and just maybe pass on some questions to the presenters, or answer some of your questions themselves. But of course it's hard to do everything...listening, tweeting, and taking notes may be quite enough for them to contend with!...but anyway, let us know if there's anything on the agenda that's of particular interest to you (other than Whittemore and Peterson/Fluge/Mella, of course...).
     
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  5. Sasha

    Sasha Fine, thank you

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    Just looking at Cort's Twitter feed and he was tweeting all day yesterday, which I hadn't realised - hope he'll keep that up today and in the days to come! Hope our PR tweeters can manage something too. I'm sure it's not easy! :)
     
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  6. Sasha

    Sasha Fine, thank you

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    From another thread:

     
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  7. Sasha

    Sasha Fine, thank you

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  8. lnester7

    lnester7 Seven

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    @Sasha not live feed for today?
     
  9. Sasha

    Sasha Fine, thank you

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    Not that I or @aimossy are aware of, but that doesn't mean that there isn't! :)

    If anyone becomes aware of a livefeed, I hope they'll post.

    @Mark, that's a useful question for one of our on-the-spot people to ask.

    @Geoffrey Hallmann - a bit cheeky to ask you for a favour immediately you join the forum but are you able to find out, if you're at the conference? We'd all love to follow a livestream, if there is one! :)
     
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  10. All Good Sasha - I am going to be attempting to do that throughout the day.
     
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  11. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    Today's conference agenda looks interesting. Would have been helpful to have a live feed.
     
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  12. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    Just to add, I caught up last night with tweets from yesterday's events, and there was a lot of really great stuff.
     
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  13. aimossy

    aimossy Senior Member

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    I wonder how much Criteria problems play into this issue for researchers and not just about prejudice and lack of funding?

     
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  14. aimossy

    aimossy Senior Member

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  15. Hi Guys .... I am currently at the conference. We have just had an introduction from Fred Friedberg who has outlined the conference for the next four days, and particularly to speakers and workshops for today.

    Currently listening to Vicky Whittemore from the NIH who has provided an extensive outline of the NIH approach to ME/CFS Research.

    Of significance is the fact that the NIH has never had an application from a young researcher for an NIH grant for ME/CFS. They have put this down to the fact that researchers were scared away from the field. They are actively encouraging grant applications in this area in order to build the research pool.

    Internationally speaking, the NIH is looking to develop collaboration and provide funding to international research.

    NIH Website: www.nih.gov/mecfs

    NIH are doing a grant research workshop this afternoon to look at how to be successful at grant applications to the NIH
     
  16. AndyPR

    AndyPR Senior Member

    Couple of earlier tweets


     
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  17. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    Looking forward to hearing more about today's events.
     
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  18. Question has just been asked - Should the NIH apologise for the years of neglect? Whittmore will take that one back to Francis Collins to discuss. If there is to be an apology - Whittemore would be the one providing it. She regarded this as "an interesting question".
     
  19. aimossy

    aimossy Senior Member

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  20. #IACFSMEConf

    Whittemore just gave two indications about foreign grants:

    1. Mega Study in UK - Would look at discussions on this. Thinks its interesting. Have not discussed with an UK researchers as yet.

    2. Grants - Foreign grant applications have an extra level of scrutiny to them. The NIH would look at whether a foreign research site had a particular uniqueness to it - such as a specific expertise or cohort.
     
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