Hi all, I would like to raise here a question about advocacy which is in my mind already for a long time. I am following ME/CFS situation for 3 years and reading a lot of articles about the all history. I think we didnt move much to solve our sickness. Maybe the last few years we moved a bit forward but if it will continue like this I think we have no chance for a treatement or cure and I think normally I am big optimist. So I think we have to change something to get a chance for better life. I was expecting Chase community giving not only because of possible money for WPI but I also wanted to see how our community participate so we could see our potencial. I have to say that I was really disappointed. After such a big campaign where we contacted so many groups there were maximum 500 patients who participated in voting, the others were family and friends. There are sometimes some calls for an action from some groups but only few people follow it. I can tell you that I was working on a ministry and its really big different if you do for example a petition if you send some hundreds or thousands signatures. I see there 2 main problems: 1. Only a few patients join the activities (even if most of them are really easy and cost almost no energy and money) 2. Our communication channels are unefficace I was thinking about how to solve these problems. The problem is that for example only in US are at least 100 organisations, forums, support groups and its everytime difficult to contact them if we want their support. With our limited energy we need to be much more efficace. I would propose to have a network of 2-3 people (if someone is not in a good health for a moment) from each organisation/forum/support group. We could do something like a mailing list (because also almost everyone use his mail almost every day) and if there would be a call for an action - we would simply write 1 email to the members of this mailing list and they would inform about the action the members of their organisation/forum/support group. So for example, there would be Cort, he is member of PR - so he would inform PR members about - its also better because for example if I make a call to PR members and noone know me - less people will follow me than Cort who is respectfull between the members of the forum. there could be also second mailing list with patients who would be informed directly (there was already one with 500 patients but it disappaired). Then its important to start on all forums and organisation a discussion about the necessity of the patients to join the activities - to try to explain them, that the most of the activities are really simply and without their help we will not move. We have no other chance to get better!!! There are all the time only 200 -300 people who join and its really nothing to move the things. Also there are already a lot of fights between the organisations but we have to remember that maybe except organisations with psychological view we would find a lot of topics and actions who everyone would support. So the basic of this communication network would be that everyone will be informed quickly about an action and if you will like the idea you should participate. So I would like to ask you what you think about this network. Could this be usefull? I would like to try it but I can imagine that it would need a lot of work so if the patients would think that it would not help us i would save my time and energy.