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Cort's latest blog: Is nerve damage affecting the lungs in Fibromyalgia?

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by Gingergrrl, Jun 22, 2016.

  1. Gingergrrl

    Gingergrrl Senior Member

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    http://www.healthrising.org/forums/threads/is-nerve-damage-affecting-the-lungs-in-fibromyalgia.4541/

    Am hoping I copied this link right and wanted to say thank you to @Cort for posting a blog about nerve damage possibly affecting the lungs and breathing in Fibromyalgia. I do not actually have Fibro and am not a member of Cort's board so I cannot reply over there but wanted to post the link here in case it resonates for anyone else.

    Shortness of breath remains my #1 symptom and I now believe that auto-antibodies are attacking my phrenic nerve functioning which is indirectly affecting my lungs ability to inhale/exhale a full breath. Am on the path (it's a very long and winding path LOL) of pursuing some treatments that I believe will help me with this once they are approved.

    I know I am in the vast minority with this symptom in ME/CFS vs. on neuromuscular and autoimmune boards, it is much more common. But regardless of my label, I was really glad to see this issue being talked about and thought the link/article was very interesting and hoping others do, too.
     
    cfs6691, *GG*, ahmo and 1 other person like this.
  2. lansbergen

    lansbergen Senior Member

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    Phrenic nerve functioning might be involved (probably is) but I am pretty sure there is more to it. My lung improvement goes fast now but before that could happen my pleura and intercostal muscles/nerves had to heal.
     
    Gingergrrl likes this.
  3. Gingergrrl

    Gingergrrl Senior Member

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    I absolutely agree with you that there is much more involved and mentioned the phrenic nerve in my case b/c it is the first piece of hard evidence from an EMG that shows something is wrong with my breathing muscles. But I suspect it is much more than this and that other nerves to my lungs and intercostal muscles are affected as well.

    I also have nerve/muscle damage to my neck and right arm and sometimes the pain is excruciating or my arm cannot lift a water bottle or type on my phone but I rarely talk about this b/c it doesn't cause me the same level of distress or impair my life like the breathing issue does (even though it can be very annoying at times.)

    I was happy to see the lung/ breathing issue acknowledged, especially from the perspective that something could be attacking the nerves like a virus or autoantibody, etc, and makes me hopeful that treatment could potentially reverse it (although guardedly hopeful vs. full-on real hope.)
     
    ahmo and AndyPandy like this.
  4. Jemima

    Jemima

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    Hi gingergrrl, i also have possible autoimmunity, and breathing difficulty. see my post, new today on community. What is phrenic nerve prob you have?
     
    Gingergrrl likes this.
  5. Gingergrrl

    Gingergrrl Senior Member

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    @Jemima, I will look for your post later today and either reply there or here as soon as I can.
     

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