New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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Cort's latest blog: Is nerve damage affecting the lungs in Fibromyalgia?

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by Gingergrrl, Jun 22, 2016.

  1. Gingergrrl

    Gingergrrl Senior Member

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    http://www.healthrising.org/forums/threads/is-nerve-damage-affecting-the-lungs-in-fibromyalgia.4541/

    Am hoping I copied this link right and wanted to say thank you to @Cort for posting a blog about nerve damage possibly affecting the lungs and breathing in Fibromyalgia. I do not actually have Fibro and am not a member of Cort's board so I cannot reply over there but wanted to post the link here in case it resonates for anyone else.

    Shortness of breath remains my #1 symptom and I now believe that auto-antibodies are attacking my phrenic nerve functioning which is indirectly affecting my lungs ability to inhale/exhale a full breath. Am on the path (it's a very long and winding path LOL) of pursuing some treatments that I believe will help me with this once they are approved.

    I know I am in the vast minority with this symptom in ME/CFS vs. on neuromuscular and autoimmune boards, it is much more common. But regardless of my label, I was really glad to see this issue being talked about and thought the link/article was very interesting and hoping others do, too.
     
    cfs6691, *GG*, ahmo and 1 other person like this.
  2. lansbergen

    lansbergen Senior Member

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    Phrenic nerve functioning might be involved (probably is) but I am pretty sure there is more to it. My lung improvement goes fast now but before that could happen my pleura and intercostal muscles/nerves had to heal.
     
    Gingergrrl likes this.
  3. Gingergrrl

    Gingergrrl Senior Member

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    I absolutely agree with you that there is much more involved and mentioned the phrenic nerve in my case b/c it is the first piece of hard evidence from an EMG that shows something is wrong with my breathing muscles. But I suspect it is much more than this and that other nerves to my lungs and intercostal muscles are affected as well.

    I also have nerve/muscle damage to my neck and right arm and sometimes the pain is excruciating or my arm cannot lift a water bottle or type on my phone but I rarely talk about this b/c it doesn't cause me the same level of distress or impair my life like the breathing issue does (even though it can be very annoying at times.)

    I was happy to see the lung/ breathing issue acknowledged, especially from the perspective that something could be attacking the nerves like a virus or autoantibody, etc, and makes me hopeful that treatment could potentially reverse it (although guardedly hopeful vs. full-on real hope.)
     
    ahmo and AndyPandy like this.
  4. Jemima

    Jemima

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    Hi gingergrrl, i also have possible autoimmunity, and breathing difficulty. see my post, new today on community. What is phrenic nerve prob you have?
     
    Gingergrrl likes this.
  5. Gingergrrl

    Gingergrrl Senior Member

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    @Jemima, I will look for your post later today and either reply there or here as soon as I can.
     

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