Discussion in 'Advocacy Projects' started by Jenny TipsforME, Jul 8, 2017.
Has anyone complained to NICE about the short consultation period?
I don't know. This needs to be raised as a disability access requirement.
Does anyone know if Sweden recommends GET at all?
Their website looks good https://www.1177.se/Uppsala-lan/Fakta-och-rad/Sjukdomar/MECFS/#section-5
Any citations for 2 day exercise tests with deconditioned controls?
There are currently no official national guidelines for treatment of ME/CFS in Sweden. However, a lot of doctors do recommend CBT/GET
Thank you all for your help, it did make a difference.
This will give you the gist of our response
See http://www.meaction.net/2017/07/23/meaction-uk-response-to-nice-2017/ to read in full.
You can also try a Google Site Search
Separate names with a comma.