1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
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Contact List (elected officials, and the media)

Discussion in 'Advocacy Projects' started by Kina, Jan 26, 2014.

  1. Kina

    Kina Moderation Team Lead

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    Ontario, Canada
    This list was compiled by Wally and was taken from another thread.

    Contact List

    1) How to contact elected officials in the U.S.? http://www.usa.gov/Contact/Elected.shtml andhttp://www.ifamericansknew.org/about_us/congress.html

    2) How to contact to members of the U.S. House of Representatives? http://govsm.com/w/House

    3) How to contact members of the U.S. Senate? http://govsm.com/w/Senate

    4) How to contact the U.S. President (Barack Obama)? http://www.wikihow.com/Contact-the-President-of-the-United-States

    5) How to contact the U.S. Vice President (Joe Biden)?
    http://www.whitehouse.gov/administration/vice-president-biden and http://www.whitehouse.gov/contact

    6) How to contact the U.S. Health and Human Services Department – Secretary Kathleen Sebelius?http://answers.usa.gov/system/templates/selfservice/USAGov/#!portal/1012/article/4599/United-States-Secretary-of-Health-and-Human-Services and https://twitter.com/HHSGov

    7) How to contact the media? http://www.ifamericansknew.org/about_us/congress.html
    and http://www.bitesizepr.com/how-to-contact-the-media/ and
    http://www.acs.org/content/acs/en/v...s-of-media-outlets-and-how-to-reach-them.html

    National Television News

    ABC NEWS:
    47 W. 66 St. New York, NY 10023
    Phone: 212-456-7777
    D.C. Bureau phone: 202-222-7777
    General e-mail: netaudr@abc.com
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
    Facebook and Twitter – Check local ABC station affiliates for contact info.

    ABC World News with Diane Sawyer:
    Phone: 212-456-4040
    Fax: 212-456-2795
    E-mail: netaudr@abc.com
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
    Facebook and Twitter: https://www.facebook.com/WorldNews
    and https://twitter.com/DianeSawyer

    Nightline:
    1717 DeSales St., NW, Washington, DC 20036
    Phone: 202-222-7000
    E-mail: niteline@abc.com
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
    Facebook and Twitter: https://www.facebook.com/nightline and https://twitter.com/Nightline

    20/20:
    147 Columbus Ave., 10th Floor, New York, NY 10023
    Phone: 212-456-2020
    Fax: 212-456-0533
    E-mail: 2020@abc
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843

    ABC's Good Morning America:
    147 Columbus Ave., New York, NY 10023
    Phone: 212-456-5900
    Fax: 212-456-7257
    E-mail: netaudr@abc.com
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
    Facebook and Twitter: https://www.facebook.com/GoodMorningAmerica and https://twitter.com/GMA andhttps://twitter.com/RobinRoberts

    CBS News
    524 W. 57 St., New York, NY 10019
    Phone: 212-975-4321
    Fax: 212-975-1893
    D.C. Bureau phone: 202-457-4385
    http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
    Facebook and Twitter: https://www.facebook.com/CBSNews and https://twitter.com/CBSNews

    CBS Evening News with Scott Pelley
    524 West 57th St.
    New York, NY 10019
    Phone: 212-975-3691 or 202-457-4385
    Fax: 212-975-1893
    E-mail: http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
    Facebook and Twitter:

    CBS This Morning:

    Phone: 212-975-2824
    Fax: 212-975-7133 or 212-975-2033
    E-mail: http://www.cbs.com/feedback
    Facebook and Twitter: https://www.facebook.com/CBSThisMorning
    and https://twitter.com/CBSThisMorning

    60 Minutes:
    555 W. 57th St., New York, NY 10019-2985
    Phone: 212-975-2006
    Fax: 212-757-6975
    E-mail: http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
    Facebook and Twitter:

    Primetime:

    E-mail:
    Facebook and twitter: https://www.facebook.com/nightline and https://twitter.com/Nightline

    CNBC: http://www.cbsnews.com/news/contact-information-509333
    900 Sylvan Avenue
    Englewood Cliffs, New Jersey 07632
    Phone: (201) 735-2622
    Fax: (201) 583-5453
    Email: info@cnbc.com
    https://register.cnbc.com/email/EmailSupport.jsp

    CNN
    One CNN Center, Box 105366, Atlanta, GA 30303-5366
    Phone: 404-827-1500
    Fax: 404-827-1906
    E-mail: cnn.feedback@cnn.com
    http://www.cnn.com/feedback/forms/form5.html?106
    Facebook and Twitter:

    CNN Washington Bureau
    820 First St. N.E., Washington, DC 20002
    Phone: 202-898-7900
    Fax: 202-898-7923
    E-mail: http://www.cnn.com/feedback/
    Facebook and Twitter:

    Crossfire

    Phone: 202-898-7655
    Fax: 202-898-7611
    E-mail: http://www.cnn.com/feedback/
    Facebook and Twitter:

    Larry King Live

    Phone: 202-898-7690
    Fax: 202-898-7686
    E-mail: http://www.cnn.com/feedback/
    Facebook and Twitter:

    Fox News Channel
    1211 Ave. of the Americas
    New York, NY 10036
    Phone: (212) 301-3000
    Fax: (212) 301-4229
    Email: comments@foxnews.com
    Facebook and Twitter:

    MSNBC
    One MSNBC Plaza
    Secaucus, NJ 07094
    Phone: (201) 583-5000
    Fax: (201) 583-5453
    Email: world@msnbc.com
    Facebook and Twitter:

    NBC
    30 Rockefeller Plaza, New York, NY 10112
    Phone: 212-664-4444
    Fax: 212-664-4426
    E-mail:
    Facebook and Twitter:

    Washington Bureau
    4001 Nebraska Ave. NW, Washington, DC 20016
    Phone: 202-885-4200
    Fax: 202-362-2009
    E-mail:
    Facebook and Twitter:

    NBC Nightly News with Brian Williams

    Phone: 212-664-4971 or 202-885-4259
    Fax: 202-362-2009
    E-mail: nightly@nbc.com
    http://www.nbcnews.com/id/29104230-nbc_nightly_news_with_brian_williams/#.Ut0qIbSIZLM
    Facebook and Twitter:

    NBC News' Today

    Phone: 212-664-4602 or 202-885-4231
    Fax: 212-664-4426
    E-mail: today@nbc.com
    http://www.today.com/id/29041920/ns/today/#.Ut0wQbSIZLM
    Facebook and Twitter:

    Dateline NBC

    Phone: 212-664-7501
    Fax: 212-664-7864
    E-mail: dateline@nbc.com
    http://www.nbcnews.com/id/10285339
    Facebook and Twitter
    ________________________________________

    Public Broadcasting

    PBS
    1320 Braddock Place, Alexandria, VA 22314
    Phone: 703-739-5000
    Fax: 703-739-8458
    E-mail:
    Facebook and Twitter

    The News Hour with Jim Lehrer
    3620 South 27th St., Arlington, VA 22206
    Phone: 703-998-2150
    E-mail: newshour@pbs.org
    Facebook and Twitter:

    National Public Radio
    635 Massachusetts Ave. NW, Washington, DC 20001-3753
    Phone: 202-513-2000
    Fax: 202-513-3329
    E-mail: Jeffrey Dvorkin, Ombudsman ombudsman@npr.org
    Facebook and Twitter:

    All Things Considered

    Phone: 202-513-2110
    E-mail: atc@npr.org
    Facebook and Twitter

    Morning Edition

    Phone: 202-513-2150
    Fax: 202-513-3329
    E-mail: morning@npr.org
    Facebook and Twitter:
    ________________________________________

    National Newspapers

    Los Angeles Times
    202 West First Street, Los Angeles, CA 90012
    Phone: 800-528-4637 or 213-237-5000
    Fax: 213-237-4712
    E-mail: letters@latimes.com
    Facebook and Twitter:

    New York Times
    229 W. 43rd St., New York, NY 10036
    Phone: 212-556-1234
    Fax: 212-556-3690
    D.C. Bureau phone: 202-862-0300
    E-mail: letters@nytimes.com
    Facebook and Twitter

    USA Today
    1000 Wilson Blvd., Arlington, VA 22229
    Phone: 800-872-0001 or 703-276-3651
    Fax: 703-247-3108
    E-mail: editor@usatoday.com
    Facebook and Twitter

    Wall Street Journal
    200 Liberty St., New York, NY 10281
    Phone: 212-416-2000
    Fax: 212-416-2658
    E-mail: editors@interactive.wsj.com
    Facebook and Twitter

    Washington Post
    1150 15th St., NW, Washington, DC 20071
    Phone: 202-334-6000
    Fax: 202-334-5269
    E-mail: ombudsman@washpost.com
    Facebook and Twitter

    Associated Press
    50 Rockefeller Plaza, New York, NY 10020
    Phone: 212-621-1500
    Fax: 212-621-7523
    D.C. Bureau phone: 202-776-9400
    Facebook and Twitter

    San Francisco Chronicle
    901 Mission St.
    San Francisco, CA 94103
    Local: (415) 777-1111
    USA Toll Free: (866) 732-4766
    E-mail: metro@sfchronicle.com
    Facebook and Twitter:


    ________________________________________

    Magazines

    Newsweek
    251 W 57th Street, New York, NY 10019
    Phone: 212-445-4000
    Fax: 212-445-5068
    E-mail: letters@newsweek.com
    Facebook and Twitter

    Time
    Time & Life Bldg., Rockefeller Center, New York, NY 10020
    Phone: 212-522-1212
    Fax: 212-522-0323
    E-mail: letters@time.com

    U.S. News & World Report
    1050 Thomas Jefferson St., Washington, DC 20007
    Phone: 202-955-2000
    Fax: 202-955-2049
    E-mail: letters@usnews.com
  2. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    thanks for posting this Kina. I think its info which is extremely important for ME/CFS people to be able to access easily. Thanks Wally.
  3. minkeygirl

    minkeygirl Senior Member

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    Left Coast
    Thanks Kina. Is there some kind of boiler plate letter for those of us who can't form a coherent sentence?

    I'd love to contact people but right now I'm a blithering idiot and it would really help me if I had something to use as a starting point.
    Nielk likes this.
  4. Ren

    Ren One of nineteen million dark horses.

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    Compared to the other news outlets, the following is a small organization but this means they also might be more interested in our story. :) The news group is alternet.org and the contact page is here: http://www.alternet.org/feedback

    Thank you, Wally and Kina.
  5. WillowJ

    WillowJ Senior Member

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    WA, USA
    Ren likes this.
  6. Ren

    Ren One of nineteen million dark horses.

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    Subject: Specific media outlets' (and/or journalists') attitude toward ME/CFS

    As a more long-term project, it might prove useful to collect info (and/or devise a rating) regarding media (specific media outlets' - and/or journalists') attitude toward ME/CFS.

    For example, during the HHS-IOM marriage and honeymoon, The Atlantic published a piece on conversion disorder: "What Witchcraft Is Facebook? Mass psychogenic illness--historically known as 'mas hysteria'--is making a comeback" - by budding journalist, Laura Dimon.

    The article was published on September 11th, and Dimon freqently cites Robert Bartholomew, who (though not mentioned in the article) has coincidently worked with Wessely on theories of mass hysteria influenced by "the" September 11 attacks. (More info here, post 14: http://forums.phoenixrising.me/inde...vents-of-the-hhs-contract-with-the-iom.25933/)

    When I recently/quickly/superficially searched The Atlantic for "CFS", this embarrassingly-sloppy, 2012 article http://www.theatlantic.com/health/a...ome-real-weird-and-mysterious-as-ever/256627/ by Alice G. Walton, PhD appeared. (Compare this especially to the quality of David Tuller's recent Buzzfeed article on CFS.)

    The Atlantic is owned by a self-described neocon, who moved the magazine from Boston to Washington D.C. in recent years. http://en.wikipedia.org/wiki/The_Atlantic#Ownership

    I understand that long-time advocates may already have a good sense of media friends and foes.

    I also saw a not-so-well-done (non-English language) media analysis of CFS done by students sometime ago. But this at least suggests that other journalism/linguistic students somewhere might at some point also want to analyze the pop-media presentation (and evolution) of ME/CFS.

    I can start a new thread for this - if interest is shown. Thanks!

    --------------

    Buzzfeed editorial contact page: http://www.buzzfeed.com/about/contact

    For others issues and requests write:
    BuzzFeed, Inc.
    200 5th Ave
    8th Floor
    New York, NY 10010
    Last edited: Jan 30, 2014
  7. caledonia

    caledonia

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    Cincinnati, OH, USA
    Larry King retired ages ago. I don't know if you would want to replace that with Piers Morgan or not.

    wikipedia:
  8. Ren

    Ren One of nineteen million dark horses.

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  9. caledonia

    caledonia

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    Cincinnati, OH, USA
    Also we should list individual journalists who have helped us in the past - Amy Dockser Marcus, David Tuller, Llewelyn King, the guy from Nevada Newsmakers, etc.
    justinreilly and Ren like this.
  10. mfairma

    mfairma

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    Having a list of friendly journalists would be useful, but most useful would be a list of journalists from magazines and websites who write long-form coverage of health and science events.
  11. Wally

    Wally Senior Member

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    I had not seen this thread until today, but I wanted to let you know that the list included at the top of this thread was just a first draft shared to give people an idea of the number of ways that the patient community can reach out to get our voices heard. An updated version of this list was going to be used for a "virtual" demonstration day that was to have occurred on Jan. 27th the same day as the IOM meeting. Unfortunately, due to technical difficulties in putting in place the updated version of the contact list, which was to include templates for information that could be conveyed to each contact on this list and the tech problems with YouTube and Google Chat, the "virtual" demonstration had to be postponed. Wally attempted to clone his/herself that day to fix those nasty tech problems, but my cloning techniques also failed. :cry:

    The good news is that the "virtual" demonstration of ME/CFS patient voices has only been postponed and has not gone down in flames. Work is underway to roll out this advocacy effort in the next few weeks. Information will be posted both on this Forum and on other social media sites, so you will be given lots of time to get yourself ready to join in what should be an empowering and unique day for patients and their supporters to reach out and touch the outside world with their "invisible" voices. I like to think of the "virtual" demonstration as being a way to bring the "Mall" to people in our community who would never be able to march on the real world "Mall". :cool:

    If you have any suggestions of contacts to add or delete from the list identified in this thread, feel free to send them my way.

    Wally

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