Patti, you have so much to respond to and I don't have the time right now so I am going to have to come back later. Can't imagine what having this condition for 45 years would be like. And I have had it for 20! I can really empathize for you. One of the reasons I keep hanging on is I don't have as much financial strain as most, and I can control my environment somewhat. If I were not able to do that I don't think I would be around right now. And I am a voice in the darkness, a candle in the dark as Carl Sagan put it. I want to be around to testify to our plight. I only wish authorities were capable of doing the same, (empathizing) and raising the research funding into CFS so it properly matches the impact it has on it's victims. I got some other things I want to reply to just don't have the time right now.