Get PACE removed from clinical guidelines – sign the petition!
Sasha invites you to sign a new petition to the HHS to protect patients against the PACE trial, CBT and GET ...
Discuss the article on the Forums.

Congratulations on IOM presentation

Discussion in 'Institute of Medicine (IOM) Government Contract' started by bullybeef, Jan 27, 2014.

  1. bullybeef

    bullybeef Senior Member

    Messages:
    478
    Likes:
    44
    North West, England, UK
    It's been sometime since I last frequented PR, and after just hearing PR's ME/CFS presentation, I was compelled to say I am highly impressed. A huge well done and let's hope we are heard!
     
  2. barbc56

    barbc56 Senior Member

    Messages:
    3,090
    Likes:
    3,072
    Was this taped?
     
  3. Bob

    Bob

    Messages:
    12,423
    Likes:
    37,251
    England (south coast)
    Nielk likes this.
  4. alex3619

    alex3619 Senior Member

    Messages:
    11,065
    Likes:
    26,464
    Logan, Queensland, Australia
    I think the entire thing is taped and will appear online in time, about four hours worth. All the official slides will also appear online, or so we are told. I really want to hear the Dr Enlander comment.

    I think the Phoenix Rising team did a great job. Its hard to cover complex issues in only a few minutes. Fortunately the main themes were repeated again and again by other speakers. I think the IOM panel might have got a message or two.

    The cookie-cutter thank yous and thank you for the slides, and your presentation is helpful, sounded a bit disingenuous after the first few, especially after a speaker who said the best thing they could do is resign.
     
    justinreilly, Nielk and Bob like this.
  5. Andrew

    Andrew Senior Member

    Messages:
    2,123
    Likes:
    1,856
    Los Angeles, USA
    I wish I could have seen this.
     
  6. SOC

    SOC

    Messages:
    7,803
    Likes:
    16,316
    Well that was magnanimous of them! Or maybe they just weren't listening. ;)

    All kidding aside, if they are actually taking their job seriously, they probably are glad to hear the whole gamut of thinking. I would be, if I were in their shoes. Not that I'd want to be in their shoes. :eek:
     
    justinreilly and barbc56 like this.

See more popular forum discussions.

Share This Page