The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Confused

Discussion in 'Immunological' started by tinacarroll27, May 29, 2016.

  1. tinacarroll27

    tinacarroll27 Senior Member

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    UK
    Hi all! I am a bit confused about this illness! Is it autoimmune or immune deficient? Some people have low NK cells and infections but the rituximab trial seems to suggest autoimmune. Can it be both or are there different subgroups who have a different illness? I have always been prone to allergies and I had a dermatologist tell me I had a twitchy immune system because of skin allergies I had and that was years before the ME and my mum died aged 24 of asthma, also rheumatoid arthritis runs in my family as well. On the other hand I seem to catch infections easily and I can't seem to keep them under control when I get them. The last bad relapse I had of the ME I broke out in eczema all over my arms and legs, which suggests something going on in the immune system.
     
  2. undiagnosed

    undiagnosed Senior Member

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    I've seen evidence of both autoimmune and immune deficiencies from people on these forums. I'd say that there are different subgroups due to the lack of a definite biomarker and the way in which CFS is diagnosed. What immunological testing have you had done?
     
  3. tinacarroll27

    tinacarroll27 Senior Member

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    Not much! I am from the UK and we don't get many tests here on the NHS. I have had to go private with some tests and I have high positive for EBV and I am getting Valtrex through a private doctor. I would like to have more Immune tests done but It all costs so much and money is tight. I would like to get my NK cells checked out but not sure where to get it done!
     

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