Compression garments for orthostatic intolerance

I can't wait to hear from you !! LOL

 

Do you think I'll look purrrdy?

 

I have no doubt that you will.

 

Just be careful, Chris It might not be purrdy.......

 

I'm a little insulted that you don't think I can pull it off. I have a much better figure than that guy. I will def. take pictures for you guys...

In all seriousness though, I just bought the g-suit from flighthelmet.com - I'll let you know how I do.

 

Actually, I think he just didn't pick the right style for his figure or color for his skin tones. I know you have better taste.

Seriously, I'm anxious to hear about the g-suit - fingers crossed that it works for you too!

 

Kerrilyn, I was just re-reading this article on OI and it mentions this in the first para of section c ("c. Treat contributing medical conditions":

"Attention to other medical conditions is crucial to ensuring that the NMH or POTS treatments are as effective as they can be. In particular, preventing activation of even mild asthma and allergies has been important in keeping our patients from developing a worsening of symptoms. In patients with asthma, we usually try to reduce reliance on albuterol and other beta-agonist inhalers, as these medications can mimic the effect of too much epinephrine, and can aggravate NMH in particular. Endometriosis and other painful conditions may aggravate symptoms, and ovarian vein varices in women with pelvic pain are associated with fatigue and worse orthostatic intolerance. Sinusitis, anxiety disorders, depression, and infections of any sort are examples of other conditions that need appropriate medical attention when present."

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Maybe this is something you should look into! I will PM you to make sure you see this.

 

FYI, FlightHelmet.com has some size Small in stock- I just this afternoon received mine, Sm reg in "very good" condition (I'd been waiting & praying & intermittently watching since summer for my size!)- I have been wearing for several hours now, & I know it's too early to tell, but the compression feels good & all indications are that this might help (it would probably cost me more to be tested for OI/POTS than to give these G-trousers a go [even if I could convince Dr to test!]).
Here's to another tiny spark of hope for some symptom relief.
I've found compression stockings SO hard to put on, but I might give another go if this 'Anti-G suit' helps.
I will report back as soon as I am able. FlightHelmet.com was fast, w/ nice Cust Svc rep on phone.

 

I get orthostatic intolerance, but had never heard of abdominal pooling. I wonder if I have that. Once I get up my tummy is always bigger - I had always put that down to my gut function/bloating.

I do however, find my tummy is pulled in a lot more when using yoga fold over trousers by gossypium - http://www.gossypium.co.uk/catalog/...a_sportswear-c-89_96/fold-over-trouser-p-426/ (hope it is OK to put a link). I get a tight fitting pair and I fold them over several times overy my tummy and quite a few people comment on how much thinner I look - they are comfortable too - and my bowels feel more regular when I wear them - they seem to press in just the right places. Not sure if they are tight enough to stop abdominal pooling though.

I have never got on with compression stockings - which I had to take after surgery - I found them too tight and irritating - from a neurological point of view probably stimulating the touch senses to much. They used to make me itch a lot after the first week or two as well.

 

bump
I am thinking of getting a compression pantyhose for my OI. Do they also help abdomen blood pooling?
I found this website http://www.foryourlegs.com/search.php?mode=search, there is quite some price variation and I dont know what one is best, i was thinking of getting the yuzo basic with a compression of 30-40. However I have very long legs so not sure if ill fit them. Any advice is appreciated! Thanks )

 

Hi leaves - I have Elvarex compression hose and they are graduated in the pressure they exert so that they're tightest lower down and relax a bit over the tummy. I started wearing mine in the summer when it was so hot that I only wore them indoors (too hot to wear under trousers) and they did nothing but keep slipping down because the tension in the legs keeps pulling them down, meaning that the abdomen bit just widens and shortens and so exerts no pressure.

I've just started wearing them again now that the weather is cold and have been wearing trousers over them. Now they stay up, because the trousers hold them in place (not trousers with lycra, though!). And I have noticed that there is pressure on the abdomen this time.

Mine were made to measure and were expensive (150?) but I got them free on the NHS (thank you, NHS!).

 

Thanks Sushi and Sasha
This is super helpful! I will contact the people at brightlife but first measure my "leg-dimensions". Hmmmm thigh highs and abdominal binders would make a rather eh... 'interesting' outfit. Lol

 

Glad to find this thread. My ANS just busted a gut and its bad. I have had POTS for years and recently developed more of a swing low to high with the tachy. I found this place for cheaper compression hose and I think they are OK.. have nothing to compare them to:

http://www.discountsurgical.com/details.asp?ProductID=21237

They are about 1/3 the price of the other hose.

I have the 20-30 and 30-40 panty hose. I think my stomach pooling is worse with them.. most likely because there is only annoying pressure rather than gradient pressure going up the abdomen.

I am wondering about thigh highs and then wearing a corset like device. Ive read that knee highs can cause edema above the knee but seems not for everyone... so I may experiment with those as well.

I experience less leg pain when I wear the hose. Also have made my BP go up too much, most likely because I do swing. My BP can be up and have tachy, which I think is more POTs like. Makes me have to take off the hose which is a pain.. so I would prefer thigh highs or socks with the compression garment for the abdomen if it will work.

 

What about these:

http://balicompany.com/detail.asp?cat=3&col=32&styleno=8403&color=LO

underwear with control panels that are also very high waisted.

Spanx also has high rise panties:

http://www.spanx.com/family/index.jsp?categoryId=3010023&cp=2992553

Problem would be cant take off easily if need a break.

 

My doctor warned me against having any gap in my compression garments - i.e. not to wear compression socks or stockings with an abdominal binder because of the risk of blood pooling/oedema in the gap.

Careful, guys!

 

That would make sense. But the pantyhose make things worse, not better.. not sure what to do other than experiment. The way the pantyhose bind but dont seemingly compress my stomach for some reason makes me have stomach issues that feel like pooling.. swelling, pain, etc. What to do...