Ok so I had an appointment with an endo today... was hoping for some answers but more questions..
So I explained to the endo my symptoms (absolutely no stamina, walking becoming more and more difficult because my legs get stiffer and slower and heavier to the point I cant move them and have to stop, constantly tingling feet, always dizzy, too overly tired... when I am walking I have to hold on to something and if I am out I have to hold on to someone for support... so many symptoms but mainly it is too difficult to walk and I always feel as if I am on a boat and very light headed.....)
So the endo felt my glands and thyroid I think and said it was ok.... felt my lymph glands and listened to my chest and felt my belly and then said I probably need to see a psychiatrist at which point I started crying (not because I am depressed as I long to walk again and live again I started crying because as soon as a doctor sees anxiety in my notes that's it... they think its all in my head!!!... I said I would like him to watch my walking as it is so difficult but he said maybe try some anti depressants!)
He then ordered blood tests and a chest xray which now I am puzzled about because he didn't say he heard anything abnormal when he was listening to my chest!
I always have high b12 and folate in my blood and I queried him on this and explained I didn't take supplements or eat too many b12 foods because I am veggie and he said " well you have enough in your blood and we would only worry if it was low.... I then went on to ask about an absorption problem maybe and he said no we would only worry if it was low....
What tests do I now need to ask for about my high b12 and folate?.... It seems they are always high levels and I have all the symptoms of b12 deficiency so really wanna get to the bottom of this as I am so fed up with not walking properly...
My vitamin d result just came back at 34.... I don't think that's low enough to cause all I am feeling.... I don't know I just need answers....
I have also been referred to neuro by my GP now because I have hyper reflexes and my problems walking but I will probably have to wait weeks for this..... i'm Just at a loss here and so fed up, everything is a slow struggle......
So I explained to the endo my symptoms (absolutely no stamina, walking becoming more and more difficult because my legs get stiffer and slower and heavier to the point I cant move them and have to stop, constantly tingling feet, always dizzy, too overly tired... when I am walking I have to hold on to something and if I am out I have to hold on to someone for support... so many symptoms but mainly it is too difficult to walk and I always feel as if I am on a boat and very light headed.....)
So the endo felt my glands and thyroid I think and said it was ok.... felt my lymph glands and listened to my chest and felt my belly and then said I probably need to see a psychiatrist at which point I started crying (not because I am depressed as I long to walk again and live again I started crying because as soon as a doctor sees anxiety in my notes that's it... they think its all in my head!!!... I said I would like him to watch my walking as it is so difficult but he said maybe try some anti depressants!)
He then ordered blood tests and a chest xray which now I am puzzled about because he didn't say he heard anything abnormal when he was listening to my chest!
I always have high b12 and folate in my blood and I queried him on this and explained I didn't take supplements or eat too many b12 foods because I am veggie and he said " well you have enough in your blood and we would only worry if it was low.... I then went on to ask about an absorption problem maybe and he said no we would only worry if it was low....
What tests do I now need to ask for about my high b12 and folate?.... It seems they are always high levels and I have all the symptoms of b12 deficiency so really wanna get to the bottom of this as I am so fed up with not walking properly...
My vitamin d result just came back at 34.... I don't think that's low enough to cause all I am feeling.... I don't know I just need answers....
I have also been referred to neuro by my GP now because I have hyper reflexes and my problems walking but I will probably have to wait weeks for this..... i'm Just at a loss here and so fed up, everything is a slow struggle......
