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No Longer Naive in the Ways of The Beast
After having lived for years with ME/CFS, Jody Smith learned there's more to this beast of an illness than she realized, and that what might help one person may not help others ...
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Completed CDC Study Documents... WHEW!!!!

Discussion in 'Rituximab: News and Research' started by Jacque, Sep 26, 2012.

  1. Jacque

    Jacque Senior Member

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    USA - California
    Well... I have a total of 6 1/2 hours invested in completing all the symptom forms for the CDC. Dr. Kogelnik has finally captured their attention, and they are now researching ME/CFS! FINALLY!!

    After completing this mentally grueling task - I sit here "stunned" feeling. It was as if I had to put on the Wide Angle lens and look at my life from age 12 on. I am so used to having the ZOOM on and trying not to remember or focus on what this illness has ROBBED from me...and just deal with my symptoms from hour to hour...day to day, and find happiness in even the smallest of things.

    The forms covered everything from Bowels, Depression, Sleep, Pain, Surgeries, Infections, and on!! After filling it all out I wonder how I even manage to put a smile on my face, or how I have survived 35 years with this BEAST gaining more territory each year...

    HOPE is a very powerful thing!!! When life screams - JUST GIVE UP and GIVE IN... HOPE whispers in my ear and says "JUST TRY ONE MORE THING"!!

    Puttin my ZOOM lens back on now.... maybe that will get me in a better mood and not so teary....
    Love to all....
    Xandoff, Bob and SOC like this.
  2. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Hi Jacque, I hope the information will be helpful to future study, if so then the personal drain might be worth it. I understand what you mean by stunned, I think most of us do. I also agree about hope. Hope is what keeps many of us going I think. Hope is one thing we cannot live without. Best wishes, Alex
    Bob and Jacque like this.

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