bertiedog
Senior Member
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- South East England, UK
One of the main treatments offered is a combination of low dose betablocker like Propananol plus Fludrocortisone to increase blood volume (it helps to retain sodium). If these don't work then drugs like Midodrin are used.BTW what's the recommended treatment for POTS? Thanks
The combo of 20 mg Propananol and a tiny dose of Fludrocortisone a couple of times a week have virtually stopped the POTS symptoms I used to suffer very badly. I can see though that in the likely scenario of a person with ME/CFS having weak adrenals and therefore low bp then the betablocker could be a problem. It isn't for me because my adrenals are treated with a daily dose of steroid, hence the treatment for POTS works pretty well, certainly not 100% but hugely better than I was.
I haven't needed to try any other regime because the betablocker and steroid have worked so well. I still experience a feeling of my heart beating faster if I have been shopping in a warm environment for say 25 minutes and I will start to sweat and feel uncomfortable so it hasn't gone completely and goes to prove I am still not normal. But I am able to go out everyday and have some gentle exercise for which I am very grateful. I notice my leg muscles will go quite stiff and a feeling of exhaustion will set in after I experience this but I then use my oxygen concentrator for at least 30 minutes and will fee much better. Without it I would go on feeling crap till the next day.
Pam