Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Community Symposium on molecular basis of MECFS! DISCUSSION THREAD!

Discussion in 'Latest ME/CFS Research' started by Ben H, Aug 9, 2017.

  1. Ben H

    Ben H OMF Correspondent

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    Hi guys,

    So I thought I'd start this thread where we can all have a discussion and post any thoughts-pre, during and post-Symposium!

    Things are hotting up! The scientists that are flying in tonight and having dinner at the local hotel! I'm sure some good discussion will be had here. Janet @Janet Dafoe (Rose49) had also told me that her house is practically a production line at the moment with Ashley @AshleyHalcyoneH putting together the conference folders full of information for everyone!

    So please post away, and myself and @Janet Dafoe (Rose49) will also be posting before and throughout the Symposium.

    Enjoy,


    B
     
    Last edited: Aug 9, 2017
  2. A.B.

    A.B. Senior Member

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    Okay, the question that everyone wants to ask: do you have any big announcements?
     
  3. Ben H

    Ben H OMF Correspondent

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    I'm pretty sure there will be some big announcements and discussions at the Symposium from the incredible scientists attending. Right now, the big announcement is Janet is getting ready for tonight and Ashley's little dog is licking her feet :D


    B
     
  4. Ben H

    Ben H OMF Correspondent

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    Do we have a member count of who is attending in person? :)


    B
     
    MEMum likes this.
  5. Webdog

    Webdog Senior Member

    I'll be there. Wouldn't miss this for the world. :thumbsup:
     
    merylg, bspg, MEMum and 24 others like this.
  6. perrier

    perrier Senior Member

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    Ok, forgive me for being a ninny but I have registered twice now and don't know how to get on once the event begins.

    Do I reclick on register and where it says LIVE hope to get in once it all begins?

    Can some one please outline how to hear the live stream step by step.

    Thank you
     
    MEMum likes this.
  7. perrier

    perrier Senior Member

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    I should add after the first registration no confirmation email arrived. Same just now....I reregistered and just checked-- no confirmation email
     
    MEMum likes this.
  8. Ben H

    Ben H OMF Correspondent

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    Awesome @Webdog . Really glad to hear!

    Hey @perrier

    You can simply go to omf.ngo (OMF homepage) on Saturday at 9am Pacific Time and it will be viewable there.


    B
     
    merylg, MEMum, Ritto and 12 others like this.
  9. NL93

    NL93 Senior Member

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    I'm so excited! And I just can't hide it :lol:

    Seriously though I am really looking forward to following everything Saturday from the comfort of my own home :D
     
    MEMum, dangermouse, Susanna D and 8 others like this.
  10. Alvin2

    Alvin2 If humans were rational...

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    Thanks for telling us this, will the entirety be put up on youtube, i'm pretty bad today and don't know if i will be able to watch live by saturday.
     
    Manganus, dangermouse, Sushi and 3 others like this.
  11. Wonko

    Wonko Senior Member

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    The other side.
    I also, low confidence I could manage 8 hours continuous regardless of how much I want to or how interesting it is.
     
    merylg, MeSci, Manganus and 5 others like this.
  12. Alvin2

    Alvin2 If humans were rational...

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    8 hours, aye carumba, i can't do that on my best day :cry:
     
    MeSci, Manganus, MEMum and 6 others like this.
  13. Kati

    Kati Patient in training

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    From what I understand it will be on Youtube, so you can pick up where you left off.
     
    MeSci, bspg, MEMum and 13 others like this.
  14. Nickster

    Nickster Senior Member

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    On the eve of this great symposium, I am praying, chanting, meditating and dancing for these scientists/researchers to come together with their ideas and teamwork to find a treatment/cure for this awful disease.
    Anything is possible!
     
    Binkie4, JayneM, MEMum and 12 others like this.
  15. Sushi

    Sushi Senior Member Albuquerque

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    Let's keep all the discussion and news from the conference on this one thread. In the past, with big events, the coverage has been scattered over several threads and that makes it harder for us brain-fogged people to keep up.
     
    Invisible Woman, MeSci, bspg and 20 others like this.
  16. Webdog

    Webdog Senior Member

    I ordered a collapsible travel pillow just for the symposium! :)

    Hope none of the presenters take it personally.
     
  17. Deborah Kavounas

    Deborah Kavounas

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    Isn't it amazing and wonderful that everyone can watch the live streaming and watch the replay at their own pace? Love it and the people making it happen!

    My daughter and I will be attending in person and live tweeting for Phoenix Rising, later we will write a few articles. Our initial focus will be on the personal experiences of the people there.

    So,

    What do you want to know about what’s going on there?

    Who would you like to talk to?

    What would you ask them if you were there?

    If you are attending in person, come and find us. Tell us what it’s like for you. Tell us what you’re thinking.
     
    Sea, Invisible Woman, merylg and 42 others like this.
  18. Murph

    Murph :)

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    Can I make a request for screenshotting and sharing any good graphics, tables, charts or other visual information? I'm all about that data!
     
    Sea, Invisible Woman, merylg and 21 others like this.
  19. Alvin2

    Alvin2 If humans were rational...

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    A general question, not sure who to direct it to, many people with ME/CFS seem to have varied etiologies, how much overlap do they think there is, is it the same condition or several under one umbrella?

    I would ask Dr Davis where he expects the research to be 1, 2 and 5 years from now.
    Also i would ask him how the recent funding changes affect his lab and what are the chances they will get the money they were writing up the grant for this spring.
    I don't know if it would be appropriate to ask Dr Davis these questions directly though.
     
    merylg, Manganus, MEMum and 8 others like this.
  20. Deborah Kavounas

    Deborah Kavounas

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    My experience tells me that people will be doing this from home, if not during the live stream, then later, when watching the YouTube video. They will probably also make a transcript of the speeches and everyone will discuss it endlessly, right here, on this thread.

    I'd like to do what you can't do from home, to help you have a more personal connection to what's going on there. Talk to people for you. Let you know what they have to say. Ask questions for you.
     
    wastwater, MeSci, Manganus and 7 others like this.

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