1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Communicating with Congress

Discussion in 'Action Alerts and Advocacy' started by Andrew, Dec 5, 2011.

  1. Andrew

    Andrew Senior Member

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    This is sort of a depressing read. But the bottom line is your letter to congress will probably only be used to talley a response, with form letters often being ignored.

    http://www.govtrack.us/congress/communicatingtips.xpd

    Who do you think would be the best people to contact per gov handling of CFS. Maybe the Secretary of HHS?
     

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