Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Common & unique associated factors for medically unexplained chronic widespread pain & chronic fatig

Discussion in 'Latest ME/CFS Research' started by Dolphin, Apr 18, 2017.

  1. Dolphin

    Dolphin Senior Member

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    Free: http://www.jpsychores.com/article/S0022-3999(15)00556-5/fulltext
     
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  2. Dolphin

    Dolphin Senior Member

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    The Medical Research Council have in the past listed this study when mentioning funding it has given for CFS/ME. Cases of CFS/ME specifically were not sought in this study.
     
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  3. Dolphin

    Dolphin Senior Member

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  4. Dolphin

    Dolphin Senior Member

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    These large percentages show that only a small percentage of the participants would have CFS.
     
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  5. Effi

    Effi Senior Member

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    @Dolphin Do you mean that although this study doesn't talk about ME/CFS (just 'chronic fatigue'), it has on occasion been quoted in issues to do with ME/CFS?
     
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  6. Dolphin

    Dolphin Senior Member

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    http://www.meassociation.org.uk/201...pending-on-research-into-me-in-last-10-years/

    [​IMG]

     
    Last edited: Apr 18, 2017
  7. Dolphin

    Dolphin Senior Member

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    Yes in relation to funding of CFS studies.

    It is fairly new so probably not that many studies of any sort will have cited it yet.
     
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  8. Dolphin

    Dolphin Senior Member

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    The most prominent questionnaire used in this study is Hospital Anxiety and Depression Scale (HADS).
    Despite what they say, the questions are not necessarily perfect:


    http://mediwikis.com/wiki/index.php/Hospital_Anxiety_and_Depression_Scale


    Hospital Anxiety and Depression Scale
    ~ Scoring Sheet ~
    Yes definitely
    Yes sometimes
    No, not much
    No, not at all
    1. I wake early and then sleep badly for the rest of the night.
    3
    2
    1
    0
    2. I get very frightened or have panic feelings for apparently no reason at all.
    3
    2
    1
    0
    3. I feel miserable and sad.
    3
    2
    1
    0
    4. I feel anxious when I go out of the house on my own.
    3
    2
    1
    0
    5. I have lost interest in things.
    3 2
    1 0
    6. I get palpitations, or sensations of ‘butterflies’ in my stomach or chest.
    3
    2
    1
    0
    7. I have a good appetite.
    0 1
    2 3
    8. I feel scared or frightened.
    3 2 1 0
    9. I feel life is not worth living.
    3 2
    1 0
    10. I still enjoy the things I used to.
    0 1
    2 3
    11. I am restless and can’t keep still.
    3 2 1 0
    12. I am more irritable than usual.
    3 2 1 0
    13. I feel as if I have slowed down.
    3 2
    1 0
    14. Worrying thoughts constantly go through my mind.
    3
    2
    1
    0

    Anxiety 2, 4, 6, 8, 11, 12, 14
    Depression 1, 3, 5, 7, 9, 10, 13
    Scoring 3, 2, 1, 0 (For items 7 & 10 the scoring is reversed)
    GRADING: 0 - 7 = Non-case 8 – 10 = Borderline case 11+ = Case
     
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  9. Hutan

    Hutan Senior Member

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    Rather that should be:
    'This study suggests that floundering around in a big pool of data with no good idea of who and what you are comparing muddies the waters.'
     
  10. barbc56

    barbc56 Senior Member

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    If they cite the PACE trial, I would think that would invalidate much if not all of the study. However, unless the study is retracted others may not know the problems with PACE.

    What a load of BS. I wonder how much money twas wasted spent on this study.

    Maybe getting PACE retracted should be an advocacy goal or is that already happening and I missed it?

    I've been having trouble keeping up with things as lately I can only focus for short periods of time.

    Reading things like this are the real traumatic events in ones life!

    Geese!
     
    Last edited: Apr 18, 2017
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  11. Dolphin

    Dolphin Senior Member

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    There's this:
    http://www.virology.ws/2017/03/13/a...l-medicine-about-recovery-and-the-pace-trial/

     
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  12. barbc56

    barbc56 Senior Member

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    Thanks @Dolphin. That was quick. I was editing my post while you responded.

    I have always liked the virology blog. I need to start reading it again.
     
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  13. Valentijn

    Valentijn The Diabolic Logic

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    An Idiot's Guide to using the HADS:
    1. Is the respondent in the hospital?
      1. If not, don't use it.
    2. Is the respondent having all of their medical problems adequately treated?
      1. If not, don't use it.
    3. Does the respondent's medical issue only involve one system?
      1. If not, don't use it.
    4. Is the respondent receiving adequate assistance for their disabilities?
      1. If not, don't use it.
    5. Does the respondent only have an acute medical condition?
      1. If not, don't use it.
    Seriously, what sort of moron mails a hospital questionnaire to people's homes? :confused:
     
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  14. Dolphin

    Dolphin Senior Member

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    Last edited: Apr 19, 2017
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  15. Dolphin

    Dolphin Senior Member

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    I'm suspicious of retrospective reporting of childhood abuse. I think getting ill can influence one's recollection of one's childhood. Also after becoming ill one could desperately search one's past to see what might have caused it. Also in my case when I'm feeling ill or in pain, it tends to churn up in my mind negative experiences from the past (even relatively mild ones) and I believe that happens with many other people also.
     
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  16. Snow Leopard

    Snow Leopard Hibernating

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    Yes, exactly. Our society likes to find and blame "causes" for things, so those who are suffering from depression or anxiety are simply more likely to report childhood abuse as they perceive it as being a cause, whereas those who are not suffering from depression or anxiety are more likely to minimise any childhood abuse and thus not report it.

    Many people don't like to discuss it, but childhood abuse, whether it be psychological abuse from parents, sexual, bullying etc is much more common than people realise.
     
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  17. Sean

    Sean Senior Member

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    As can not getting ill. Or getting married, or having children yourself, or...

    Exactly.
     
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  18. Valentijn

    Valentijn The Diabolic Logic

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    I'm pretty sure I've seen discussion of research proving exactly that. Anyone with any health problem is more likely to report such factors in retrospective studies, but the phenomenon disappears in prospective studies.
     
  19. Effi

    Effi Senior Member

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    I thought it was explained very well in this article: https://aeon.co/ideas/bad-thoughts-can-t-make-you-sick-that-s-just-magical-thinking
     
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  20. slysaint

    slysaint Senior Member

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    I've been calling on the #MM organisers to include a Retract PACE message in the upcoming protests but no one (apart from a couple of PR members) appear to be picking it up...........
    http://forums.phoenixrising.me/index.php?posts/828408/
    http://forums.phoenixrising.me/index.php?posts/833742/
    http://forums.phoenixrising.me/index.php?posts/835805/

    also emailed and got a reply from @L.A. Cooper but still no go.

    I don't understand why.

    Is it only people on PR (or those who have been ill for some time) who realise what a huge impact this might make on the status quo?
     
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