The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Columbia University's NIH funded Center for Solutions for ME/CFS - news and updates

Discussion in 'Latest ME/CFS Research' started by AndyPR, Oct 7, 2017.

  1. AndyPR

    AndyPR RIP PR :'(

    Announcement from Columbia.
    https://www.mailman.columbia.edu/pu...yelitischronic-fatigue-syndrome-collaborative


    Announcement from the NIH (covering all 3 research centres and the data centre).
    https://www.nih.gov/news-events/new...alomyelitis-chronic-fatigue-syndrome-research

    Announcement from the Microbe Discovery Project.
    http://microbediscovery.org/2017/09...centers-data-management-center-announcements/
     
  2. AndyPR

    AndyPR RIP PR :'(

    Coverage from Simmaron.
    http://simmaronresearch.com/2017/10/simmaron-lipkin-nih-chronic-fatigue-syndrome-research-centers/
     
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  3. Jesse2233

    Jesse2233 Senior Member

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    Thanks @AndyPR

    Just read this from the Monster Study page

    Very encouraging, hope that this gets priority with the new funding. Would be great to see Cosentyx or Actemra trialed
     
    Last edited: Oct 7, 2017
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  4. duncan

    duncan Senior Member

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    This is somehow reminding me of throwing immune modulators at what might be persistent Lyme instead of abx. It harkens back to whether Mark Davis is right about not just ME/CFS, but Lyme.

    Good motive, scary treatment if they get the diagnosis wrong.

    Some might argue that it would be wise to first demonstrate conclusively that no pathogen(s) is involved before lobbing fixes our way.

    I well know how desperate we are.
     
    Last edited: Oct 7, 2017
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  5. aimossy

    aimossy Senior Member

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    It's worth reading the full write up by Simmaron.
     
  6. Forbin

    Forbin Senior Member

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    Like this:
    And this concerning one of my favorite suspects...
     
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  7. aimossy

    aimossy Senior Member

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    And this:
     
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  8. duncan

    duncan Senior Member

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    Topic-heavy, detail-light, IMHO.

    I am concerned by these inclinations toward autoimmune explanations when active infections have not been ruled out.

    I have said before I am not certain that Mark Davis and friends have ever conclusively demonstrated autoimmune agents are at the root of chronic Lyme. I appreciate that is a popular explanation, but until persistent Bb - or any other pathogen - can conclusively be excluded from consideration, then, potentially, at least - we are just compounding one mistake on a series of others.

    Feel free to substitute enteroviruses or herpes or parvoviruses or whatever for Lyme. I still subscribe to the idea that the simpler explanation should be the preferred, at least foundationally, and an infectious agent satisfies Occam's razor pretty well, even in 2017.
     
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  9. aimossy

    aimossy Senior Member

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    I think this involves the Tru Culture study and also includes looking at bacteria, contaminants, toxins and even airborne ones among other things. They can expose cells to many different variants in incubator tubes to see how they react. If this link takes you to the right place - Mady Hornig talks about it in a FB live recording on Simmaron FB from 1:06:00 minutes here: https://www.facebook.com/SimmaronResearch/videos/1691287094236773/
    The Tru Culture study could possibly produce very interesting results.
     
    Last edited: Oct 8, 2017
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  10. drewmaster

    drewmaster

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    In December of 2015, Dr Lipkin said, "We’re going to solve this in three to five years, provided the resources are made available”.

    Well, now he has the resources ... or at least a big chunk of them! He is a brilliant researcher and we are fortunate to have him so committed to solving this wretched disorder.
     
    Last edited: Oct 7, 2017
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  11. aimossy

    aimossy Senior Member

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    Not enough resources though. We need all the centers funded properly, and more centers as well as hundreds of extramural grants funded. Edit: In my opinion in the big picture that is..
     
    Last edited: Oct 7, 2017
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  12. Jesse2233

    Jesse2233 Senior Member

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    I may have missed this, but do we know if tissue is being tested as well?
     
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  13. AndyPR

    AndyPR RIP PR :'(

    I think this is the video? https://www.facebook.com/SimmaronResearch/videos/1691287094236773/
     
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  14. aimossy

    aimossy Senior Member

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    Thanks so much @AndyPR I have edited with your correct link!
     
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  15. aimossy

    aimossy Senior Member

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    I haven't seen Lipkin or Hornig mention that they would use tissue sampling in any study yet.
     

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