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Columbia U{Dr. Lipkin} Donor Survey -- Use it to Promote ME/CFS

Discussion in 'Fundraising' started by beaker, Jul 18, 2014.

  1. beaker

    beaker CFS/ME 1986

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    USA
    B/c I donated to Dr. Lipkin's research, I received an email from Columbia U asking if I would fill out a survey regarding my experience as a donor. See below.
    I almost deleted it. But I clicked. It is mostly rating experience BUT there are several opportunities to write what I most want out of my donation or donation experience. I used every space available to ( formatted in a way that answered the particular question appropriately) promote Dr. Lipkins research, ME/CFS research in general. {Pointed out that Stanford had set up a clinic and research group }, and ask them to fundraise for his research and fund him out of the CU general donations. I also suggested education for their physicians.
    I used words like serious, devastating, life altering,neglected etc.....I'm sure you can come up with your own descriptors. I said I don't want recognition for my donations, I want results !
    I strongly suggest that if you get this survey, please take the few minutes it takes to do the same.
    Maybe it will do nothing. But maybe it will make someone there think twice and check it out.
    Who knows ? -- crazy optimist that I am !
    Peace.

  2. Sasha

    Sasha Fine, thank you

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    You did a better job than I did, @beaker! Though I did suggest, when they asked me what they could do to encourage me to donate more, that they could promote Dr Lipkin's ME/CFS project.
    Little Bluestem, beaker and catly like this.
  3. catly

    catly Senior Member

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    outside of NYC
    I used every free text field to comment on the ME/CFS work by Lipkin and Hornig and encouraged them to do more research, education of medical students, staff physicians and allied healthcare providers regarding this devistating and under served disease.
  4. maryb

    maryb iherb code TAK122

    Messages:
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    UK
    I probably could have said more, brain mushed!! wish I'd read this before I completed it....
    beaker and Little Bluestem like this.
  5. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
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    Concord, NH
    Just breaking this up to make it easier to read.

    GG

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