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So what do you do all day? Watch TV...It seems like that is the only thing we are good at.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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So what do you do all day? Watch TV...It seems like that is the only thing we are good at.
Unfortunately I've been waking up with that question in mind very often in recent times. It's a bit depressing, and I have to put it off my mind, otherwise it would ruin my day. Why me? Why us? When would this end? Will I ever be this limited? Is this it for me?... I don't know, but I'm having a hard time with those questions lately, specially when I think of all my career achievements stopped short on their prime.Life sucks. Why us? Literally, we've spent half of our life studying and building career path for nothing. I just don't understand how can medical society not figure out what is wrong with many of us. If CMV and EBV are cause of CFS then were is the treatment?
As for now the only solution I can think of is to take stimulant. The sad part is we will never feel same in our lives again.
- I'm having a crappy day also, my body is humming and I can't get out of bed for long. Doggy is looking at me saying "not again" I keep calling people who are too busy to talk to me just so I can get some interaction and maybe some energy. KDM thinks a cure or treatment is within 5 years that will change a lot of our lives, hang on but just for today look for something to get you through, Antares.
It's cruel that this illness requires us to become experts in our condition to find treatments that can help us, but for many like me, it denies us the mental tools to do so.
So what do you do all day? Watch TV...It seems like that is the only thing we are good at.