Home care is the theme for Severe ME Day on August 8th
Why should home care be the theme on Understanding and Remembrance Day for Severe ME on August 8? Helen Brownlie of the 25% ME Group has written an explanation for Phoenix Rising ...
Discuss the article on the Forums.

Cognitive behavioural therapy in chronic fatigue syndrome: RCT of group programme (O'Dowd et al, 200

Discussion in 'Latest ME/CFS Research' started by Tom Kindlon, Mar 26, 2014.

  1. barbc56

    barbc56 Senior Member

    Messages:
    2,197
    Likes:
    1,881
    @Tom Kindlon

    Thanks for the analysis. I haven't had a chance to read all of it but something caught my eye. The dropout rate.

    I'm surprised, unless I missed it, that the study doesn't mention people dropping out because they were too sick and exhausted to continue.

    I wanted to be a participant in three different studies. The Baraniuk study where I didn't have the energy to fill out the questionanaire which I think was about 50 pages. The second one was close to where my dad lives. I made it to his place but not the study. The third was here in town about exercise (not GET), and after thinking about it realized it just wasn't feasible.

    All this simply to say, I think this is a big factor with these studies. You most likely will get a healthier group and that can skew the results.

    I'm not sure how/if a study can get around this issue.

    Barb
     
    Valentijn, WillowJ and Tom Kindlon like this.
  2. Valentijn

    Valentijn Activity Level: 3

    Messages:
    8,929
    Likes:
    16,310
    Amersfoort, Netherlands
    It looks like academic dishonesty - manipulating the results until they find something which is statistically significant, even if they to ignore their own data to do it.
    There's that question answered ... I was wondering what they were trying to hide by showing baseline scores for the patients as a whole, but then showing outcome scores based on groups to suggest CBT is teh awes0me. These sorts of tactics do not belong in academia, and should not be tolerated or published. Ditto for their dishonest reporting of the SF-36 scores.
    Isn't it nice when 30% of participants are already cured at the beginning of the trial :rofl:
    And that they pretty much admit that the one "borderline significant" HADS result probably isn't significant if they would correct for multiple outcome measures. Another failure to take all of the data properly into account. And "borderline significant" does not exist, and does not excuse them from calculating those corrections.
     
    Tom Kindlon likes this.
  3. Dolphin

    Dolphin Senior Member

    Messages:
    7,637
    Likes:
    9,448
    The shuttle lengths were 10m. So the test looks like it is the one that is often called the six minute walking test (6MWT).
     
    Valentijn likes this.
  4. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    368
    Likes:
    1,374
    I just posted this quick comment on PubMed Commons http://www.ncbi.nlm.nih.gov/pubmed/17014748#cm17014748_3673:

     
    Simon, Valentijn and WillowJ like this.
  5. Esther12

    Esther12 Senior Member

    Messages:
    5,953
    Likes:
    8,036
    I thought this would be an appropriate place to post this article on O'Dowd discussing her results:

    lol at clinical significance requiring less of a change than statistical significance. In a non-blinded trial. Where the control sounds rubbish.

    Also, a little thing, but this is O'Dowd on PACE:

    www.avongpeducation.co.uk/handouts/2012/neurology/CFSME.pdf+&cd=6&hl=en&ct=clnk&gl=uk

    Apparently she is:

    Certainly not a champion of patients.
     
    Woolie, barbc56, Valentijn and 2 others like this.
  6. Revel

    Revel Senior Member

    Messages:
    254
    Likes:
    1,037
    This is my local CFS Clinic. I say "local", it's a 3 hour round trip. My GP is perplexed as to why I refuse to attend :meh:.
     
    Valentijn likes this.
  7. ruben

    ruben

    Messages:
    40
    Likes:
    14
    suffolk
    Up until last summer I spent around 5 years attending an NHS me/cfs clinic every 6 months.This is in suffolk. I was working all that time but very much struggling. It's disappointing at these places that you don't see a doctor specialising in me/cfs, but an occupational therapist. The people I saw there were perfectly ok with me and sympathetic. She did compile a letter for me which she said I should give to my employer requesting me to have some additional tea breaks. I never did hand this in though as I knew it just wasn't practical. She was honest with me in that said she had nothing to offer me except CBT/GET. If these interventions really had anything to offer surely I would have been strongly pushed in that direction. You could tell the way she very briefly mentioned it she never had any faith in it herself. These approaches are probably there just as an attempt to get people off benefits. Also, I may have missed it, but has anyone ever said on these forums that their health has been significantly improved by CBT/GET
     
    Woolie and Valentijn like this.

See more popular forum discussions.

Share This Page