Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Cochrane Review: Exercise as treatment for patients with chronic fatigue syndrome, April 2017

Discussion in 'General ME/CFS News' started by AndyPR, Jun 27, 2017.

  1. AndyPR

    AndyPR Senior Member

    I've searched but I can't spot this on the forum already.

    I refuse to put this in the Research forum for, I think, obvious reasons.
    Also note
    http://www.cochrane.org/CD003200/DEPRESSN_exercise-treatment-patients-chronic-fatigue-syndrome
    Even the URL they use points to the fact that they believe it falls into the realm of depression.
     
  2. AndyPR

    AndyPR Senior Member

  3. Tom Kindlon

    Tom Kindlon Senior Member

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    Attached Files:

    Last edited: Jun 27, 2017
  4. Manganus

    Manganus Senior Member

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    Canary islands
    I tried, but didn't find. o_O

    The last sentence on my screen reads:
    With regard to other comparisons, one study (320 participants) suggested a general benefit of exercise over adaptive pacing, and another study (183 participants) a benefit of exercise over supportive listening. The available evidence was too sparse to draw conclusions about the effect of pharmaceutical interventions.
    After that follows a handful of links.


     
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  5. Tom Kindlon

    Tom Kindlon Senior Member

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    Okay, I have uploaded the file here
     

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  6. Manganus

    Manganus Senior Member

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    Canary islands
    Well written! :star::bouquet::star:

    I think it was particularly clever to start with the PACE Trial where there was no improvement in fitness levels as measured
    by a step test, contrasting with the many positive results from subjective self-report measures in the trial.

    Also your ending was clever! :)

    Edit:
    I discover that I only read the first part of your two original commentaries.
     
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  7. slysaint

    slysaint Senior Member

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    for anyone else:
    go to Feedback page 111 (Toms is on 114 I think).
     
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  8. adreno

    adreno PR activist

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    Tuller, please?
     
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  9. Snowdrop

    Snowdrop Rebel without a biscuit

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    AndyPR likes this.
  10. Snowdrop

    Snowdrop Rebel without a biscuit

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    Snow Leopard and AndyPR like this.
  11. dangermouse

    dangermouse Senior Member

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    I don't normally use bad language but I'm so fed up of this ridiculous nonsense keeping popping up that I really REALLY want to!

    It stinks.

    It irks me that people will read this stuff and (if they don't know better) believe it.

    I am one of many patients that have been harmed by this kind of psych-nonsense. How many more must suffer before it is stopped?

    I know that a small group of people depend on this work for their jobs and credibility, but they've had their run now, it's time to move on and leave this battered group of patients alone.

    I'd rather have no treatment than bad treatment whilst I wait for genuine research done by talented, compassionate scientists to develop treatment that actually works.

    :bang-head:
     
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  12. Sean

    Sean Senior Member

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    It was time 20 years ago, and that is being generous.

    Me too.
     
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