1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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  1. RUkiddingME

    RUkiddingME Senior Member

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    heapsreal and OnlyInDreams like this.
  2. OnlyInDreams

    OnlyInDreams

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    Clearly this new antiviral drug is safer than all others in its class (in terms of treating CMV/HHV6). But the question I have is, just how much more effective is the drug when compared to Valcyte?
     
  3. OnlyInDreams

    OnlyInDreams

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    Breaking News!

    This is pretty darn exciting. CMX001 is going to be the miracle drug we've all been waiting for! It says the dosing is 1 or 2 pills twice a week. A week! And it is supposed to be the most potent antiviral ever released for HHV and much safer than all the others. That's like having your cake and eating too. Highly recommend everyone to read the articles below:

    http://www.pharmabiz.com/NewsDetails.aspx?aid=75031&sid=2

    http://www.cortjohnson.org/treating...onic-fatigue-syndrome-mecfs-treatment/cmx001/
     
  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Me want! Now! :aghhh:

    Hey, most of us don't leave fingerprints.....

    Sushi
     
    heapsreal likes this.
  5. Gypsy

    Gypsy Senior Member

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    When will it be available to patients?

    And the big question....what doctor will we be able to find to prescribe it? Peterson and Montoya and I think Klimas have waiting lists years!!!! long.

    I was unable to tolerate valcyte so I am very interested in this drug.
     
  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I think a lot of doctors would be comfortable prescribing it--that is ID or ME/CFS docs. Some have been concerned about the greater risk of side-effects in Valcyte and Vistide.

    Sushi
     
    Marianarchy likes this.
  7. RUkiddingME

    RUkiddingME Senior Member

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    Dr. A. Kogelnik (colleague of Dr. Montoya)is an excellent option! He's awesome and you get in quickly! :). http://openmedicineinstitute.org/about/overview/
     
  8. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    needs to be affordable to the average cfs joe.
    Im also hoping the price of valcyte tumbles right down to more affordable levels too.
     
  9. Waverunner

    Waverunner Senior Member

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    When will it be available?
     
  10. Daffodil

    Daffodil Senior Member

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    why are you all so excited? antivirals only help some CFS patients..probably not even most
     
  11. Waverunner

    Waverunner Senior Member

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    True, but anything is better than nothing.
     
  12. Waverunner

    Waverunner Senior Member

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    It finished Phase II, Phase III is ahead, data will become available in 2015, so if everything runs well, it could become available in 2017.
     
  13. Daffodil

    Daffodil Senior Member

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    sorry...i am just depressed ..i dont mean to be a suck lol

    antivirals never helped me
     
  14. Waverunner

    Waverunner Senior Member

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    Don't worry, I know that feeling. This illness is wearing one out over time. What annoys/depresses me most however, is the fact, that the medical field has so much to catch up to. Clear diagnostics or treatments for viruses? Negative. Understanding of the human microbiome? Negative. Understanding of the human genome and its implications for disease? None existing, unless monogenetic. Understanding of autoimmune diseases? Negative. Understanding of CFS? Negative. And this list goes on and on and on and on and on...
     
  15. OnlyInDreams

    OnlyInDreams

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    Daffodil, you need to see Dr. Lerner or Montoya to find out exactly what is causing your CFS. They test for a couple dozen different bacteria/viruses known to contribute to or directly cause CFS.
     
  16. Daffodil

    Daffodil Senior Member

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    lol i saw dr. lerner. my mother paid $800 every 3 weeks for almost 2 years so i could travel to see him. it didn't help and now she is almost broke.

    i am not a newbie to this....going on 21 years now
     
  17. Daffodil

    Daffodil Senior Member

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    wave.....and we thought we were in the dark ages of medicine 100's of years ago!
     
  18. Waverunner

    Waverunner Senior Member

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    Reminds me of Star Trek :D The dark ages of medicine...

     
    Dufresne and gretac like this.
  19. Sasha

    Sasha Fine, thank you

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    Oddly enough, that very Star Trek scene comes to my mind a lot when I think of how we're treated, particularly in the UK here - seriously, if often comes back to me!
     
    gretac and Waverunner like this.
  20. Waverunner

    Waverunner Senior Member

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    The same here. I often think about how it would be, if one of us travels 50 years into the future and visits a doctor.

    *doctor rising his eyebrow*: "Did you actually visit a doctor before? Well, whoever your current physician is, don't visit him again. He didn't replace any of your crappy genes, he didn't treat any of your infections and your microbiome is a mess! I just sent all your data to the pharmacy, they are composing a treatment pill right away. However, it will take 2-3 hours, but that is your fault, for not going to a real doctor earlier. Take the pill with some water and send me the data of your bath mirror breath analysis daily for one week. Jeez, I still can't believe it :rolleyes::rolleyes:."
     
    Sasha likes this.

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