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Clinical Trial: IV Albumin for Severe POTS

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Ema, Mar 1, 2018.

  1. Ema

    Ema Senior Member

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    http://ichgcp.net/clinical-trials-registry/NCT03365414
     
    Last edited by a moderator: Mar 1, 2018
    anni66, Chelby, sb4 and 1 other person like this.
  2. perrier

    perrier Senior Member

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  3. Ema

    Ema Senior Member

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    What side effects did they mention?
     
  4. perrier

    perrier Senior Member

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    Dear Ema
    I don't recall, I'm so sorry, but when we looked at them, we thought perhaps this treatment would not be tried.

    This took place last summer.
     
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  5. bombsh3ll

    bombsh3ll Senior Member

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    Thanks so much for sharing this Ema, I will definitely be following this trial! I would love to try albumin but am sure I would need to provide evidence for its use in order to obtain it.
     
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  6. Hip

    Hip Senior Member

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    I wonder if that small subset who respond to albumin have echovirus as the cause of their POTS symptoms: albumin has antiviral effects against echovirus.
     
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  7. Peyt

    Peyt Senior Member

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    This is very intesrting.
    Any idea what type of doctor one needs to go see to be checked for echovirus? I am thinking meningitis to be specific?
     
  8. Hip

    Hip Senior Member

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    Echovirus is an ME/CFS-associated virus, so some of the ME/CFS doctors will test for it. Dr Chia is the expert in such enterovirus-linked ME/CFS.
     
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  9. Peyt

    Peyt Senior Member

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    Thanks for this info.
    I did a quick search on Dr. Chia and apparently before taking on any new patients he wants the patient to be diagnosed with CFS with another Doctor and get some blood tests done that shows if there are any viruses that he looks for.

    So my question is: Any idea which viruses he would most likely want the patient to be tested for so I can ask my doctor to run those blood test to see if I even have those viruses ?
    Thanks again.
     
  10. Hip

    Hip Senior Member

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    That info is all detailed in the coxsackievirus B / echovirus section of my roadmap of chronic fatigue syndrome treatment.
     
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  11. Peyt

    Peyt Senior Member

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    From what I read, Albumin is responsible to maintain the oncotic pressure in the blood vessels. This is the pressure that assures that blood will flow in the body in equal amount everywhere in the body. I could see how this would help some POTS patients.
     
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  12. Peyt

    Peyt Senior Member

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    Does anyone know if there are any viruses that if contracted could effect the oncotic pressure in the blood vessels?
     
    Ema likes this.

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