The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Ciclosporin eyedrops make me feel better

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Thinktank, Dec 23, 2016.

  1. Thinktank

    Thinktank Senior Member

    Europe + Asia
    I developed severe dry eyes (keratoconjunctivitis sicca) in my first year of ME. Regular eyedrops and ointments did not help so the opthalmologist prescribed me ciclosporin 0.05% eyesdrops, brandname restasis. After a few days i noticed a drop in bodywide inflammation and my brainfog lifted somewhat.
    I was afraid of the possible side effects so ceased taking it.

    Ciclosporin decreases the function of T-cells and it also has an effect on mitochondria.
    I know a 0.05% dose is very low, but i'm very sensitive to medication, even topical preperations usually have a systemic effect on me.

    So, might ciclosporin in theory be efficient in ME?

    I've also been diagnosed with a Crohns-like disease which ciclosporin is sometimes used for.
    Sancar and wastwater like this.

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