Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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chronic post SARS syndrome

Discussion in 'General ME/CFS News' started by heapsreal, Mar 29, 2011.

  1. heapsreal

    heapsreal iherb 10% discount code OPA989,

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  2. justinreilly

    justinreilly Senior Member

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    That's stupid that they compared it to FM, and concluded it's a syndrome that is similar to FM, when it is almost surely a subset of ME.
     
  3. Francelle

    Francelle Senior Member

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    Can you outline your rationale for that statement Justin? A bit confused - but what's new?
     
  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    i think he means fm is more pain is the dominant symptom where cfs is fatgiue/cognitive stuff, theres a big overlap but i suppose a subset like herpes viral sub set or mycoplasma subset. I dont think he meant any harm.

    i also think that an infection like SARS just knocks the immune system, opening up other possible pathogens like ebv, cmv etc or xmrv or just triggers a dormant retro virus to raise its ugly head.

    cheers!!!
     
  5. justinreilly

    justinreilly Senior Member

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    It seems they are saying that post-SARS syndrome is some new, totally discreet syndrome, that has much in common with, but some differences from FM. It just seems to me that this is just ME, with SARS being the trigger event, just as Mono and other viral infections are often the trigger in ME. I think it is useful to note whether or not SARS triggers ME more than other viral infections, so it's good they're looking at post-SARS illness, but it just seems silly that they compared it to FM rather than ME.

    They seem to be saying that it is like FM but the pain is more diffuse. This just sounds like ME to me. I don't know a lot about FM, so maybe I'm missing something.
     
  6. insearchof

    insearchof Senior Member

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    Hi Heapsreal et al

    In terms of patient health care, the world would be much better off if they destroyed the word syndrome.

    I personally believe they characterised it incorrectly as well. For the purposes of an ICD classification assignment it would be Post Viral Fatigue Syndrome - a fatiguing illness triggered by an known and identifiable virus ie SARS.

    Remember CFS is a diagnosis of exclusion with unremitting fatigue for 6 mths or more. If you have SARS and your not recovering well thereafter - then its a no brainer. CFS is given when the cause of the symptoms is not known.

    I understand why they reference CFS. It however, is nothing like ME Justin. The classic medical literature does not recognise a host of viral triggers for ME. CFS literature that uses the term ME does though, The classic literature over 50 years identifies only one: an enteroviral infection. ME was originally referred to as atypical or non paralytic polio because of the identification of the enteroviral trigger.


    ISO
     

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