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Chronic Kidney Disease and ME/CFS

Discussion in 'Latest ME/CFS Research' started by Sing, Mar 12, 2011.

  1. Sing

    Sing Senior Member

    New England
    Thanks, Gary K for your information and Valentinelynx too. I would never blame ME/CFS on chronic kidney disease but just see the low kidney function as a consequence of having ME/CFS for years, and also from taking various medications to treat it. Something to keep a careful eye on as we get older.
  2. valentinelynx

    valentinelynx Senior Member

    Re: pheochromoctyoma. One of the zebras of medicine, but one that does occur. Who should be "ruled out" for pheo? People with hypertension. This is particularly true if blood pressure medicines aren't working, or if the hypertension is episodic and associated with the symptoms GaryK mentioned. BP can be very high (250/150) which causes headaches and chest pain if you aren't used to it. (Yes, I've seen people with untreated hypertension who are "used" to this!) I would think that having high BP and high heart rate at the same time would be a clue to excessive epinephrine/norepinephrine as released by these tumors, but don't see that mentioned (of course that combination also associated with fear and pain!). Not all pheo's are epidosidic releasers of these hormones, though, so persistent hypertension is possible, too. Once suspected, you have to find where they (or it) are in the body, which can be the hard part. Embryologically they are associated with the adrenals, which is why they'd be near the kidneys in most, but not all cases. Bottom line, if you have hypertension and these other symptoms, might be worth looking into. No high BP, no, forget it, it's not pheo.
  3. GaryK


    Canada Niagara Falls
    Thanks valentinelynx,

    I find this adds to more interesting info on the pheochromoctyoma and erratic hypertension issues. You are so right it can be hard to find . In my case I do hope they at least can get a trace of it. I am also wondering if this has led to my Hypothyroidism starting.

  4. mtnbibliophile


    Thanks for all this information. I just learned that I've had Chronic Kidney Disease for over a year. IMPORTANT NOTE: do NOT rely on your doctor to notice this, especially if you have more than one doctor. An isolated result under 60 doesn't mean anything by itself, but you and your doctor should make sure to re-test it frequently for the next several months. It should NOT be completely ignored, as two of my doctors did in the last several months.

    Basically, a GFR that remains under 60 for three consecutive months qualifies you for a diagnosis of Chronic Kidney Disease.

    GFRs (Glomerular Filtration Rates) appear on most standard Complete Blood Count tests, so you can keep track of them on your own. If you want to go back to previous blood tests and check but there's no GFR stated, it's almost certain that BUN and creatinine will appear. There are websites that show you how to convert those to GFRs.

    The National Kidney Foundation website states twice on its introductory page that early detection makes a huge difference in the success rate of treatment, so please make sure to keep an eye on this.

    A few of the key symptoms of CKD are not related to CFS/ME, such as dry or very itchy skin, so it's a good idea to be aware of those indicators too.
    Little Bluestem and WillowJ like this.
  5. Strawberry

    Strawberry Senior Member

    Seattle, WA USA
    This is so interesting to come across today! I was told 25 years ago that my kidneys were damaged from excessive Ibuprofen use. I don’t take pain pills, and try to avoid anything that affects my kidneys. I was just put on Amlodipine and was noticing some issues, and through google found that it isn’t good for people with lower kidney function. I have not ever had blood tests ran since 25 years ago? And to think it could be the cause?

    (from one of Sing’s posts)
    feel more tired and have less energy YES
    have trouble concentrating YES
    have a poor appetite SOMETIMES
    have trouble sleeping YES
    have muscle cramping at night YES
    have swollen feet and ankles NO
    have puffiness around your eyes, especially in the morning NO
    have dry, itchy skin YES
    need to urinate more often, especially at night. NO

    Need to go knock on my doctors door.
  6. WillowJ

    WillowJ Senior Member

    WA, USA
    yes, never rely on your doc. Always read your tests yourself. Stuff gets missed. Sometimes they think they called you. Sometimes some other reason.

    GFR "normal" values may vary based on your own personal info.

    I think your doc gets an F for never testing kidney function once in 25 years, even after you started having symptoms, Strawberry.

    Blood and UA testing is needed to check kidney function.
    Valentijn likes this.
  7. wastwater

    wastwater Senior Member

    I have blood in my urine mircoscopic from time to time with no explaination I think it maybe due to having a collagen building block missing ie genetic
    Valentijn likes this.
  8. Valentijn

    Valentijn Activity Level: 3

    Amersfoort, Netherlands
    I've had traces of blood in every urine sample since I got sick. But it can happen due to inflammation, which I've had the entire time.
    WillowJ likes this.
  9. trev343


    Wilmington, North Carolina
    @Valentijn don't you find it peculiar that Mycotoxins specifically Ochratoxin A (found in 83% of CFS patients by Dr. Brewer) causes renal damage? I think the link to mold illness is getting stronger.
  10. Valentijn

    Valentijn Activity Level: 3

    Amersfoort, Netherlands
    Uh, no, since none of the tests done have specifically indicated kidney damage. And it's one of the more basic things which even useless doctors routinely test for, and it would've been picked up if it was happening regularly in ME patients.
  11. tuhumom

    tuhumom [banned as spam]

    I feel for everyone with kidney problems. It's almost impossible to find honest answers when you are trying to get better. Fortunately, I came across some natural remedies that reversed my kidney disease and saved my life. This is one of the places where I got some good information.

    Best of luck to everyone!
  12. CFS_for_19_years

    CFS_for_19_years First Do No Harm

    tuhumom, can you share what those natural remedies were that reversed your kidney disease?
    How did you know you reversed your kidney disease - did you see improvement in lab values such as creatinine and GFR?
  13. knackers323

    knackers323 Senior Member

    Anyone looked into Dr Hyman and his theory's, treatments?

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