Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
Discuss the article on the Forums.

Chronic Fatigue Syndrome (ME/CFS) Symptoms

Discussion in 'General Symptoms' started by MEKoan, Aug 13, 2009.

  1. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,036
    Likes:
    487
    Raleigh, NC
    Hey Cecelia - that's a great idea for the website (when I learn how to do it) - rate your symptoms!

    My most limiting ones are

    • Postexertional malaise
    • MCS
    • poor sleep
    • Muscle and joint pains
    • inability to relax
    • cognitive problems
    • low libido
     
  2. Sing

    Sing Senior Member

    Messages:
    1,510
    Likes:
    977
    New England
    More on symptoms, symptom listing

    Dear Cort,

    I am interested to read your list. I think it would be useful for people to rate their symptoms, though this is challenging to set up. Some symptoms are aspects of other, more general kinds of symptoms/symptom categories. Do this on a good cognitive-functioning day!

    Now I am just noticing the section called "Other Symptoms" above. I have those except for the rapid heart beat and fever. My temperature has always been low. In fact, I couldn't get off school when I was young because even when I was really sick I wouldn't have a fever-- 98.6 is a fever for me! Generally, symptoms involving speed and intensity don't pertain in my case.

    When I was part of a mostly FMS support group (the CFS people almost never did--no energy apparently!) I noticed this was a distinction between the two disorders. The FMS people seem to suffer from intensities and some "hyper" aspects that I never have. We all had trouble sleeping, brain fog and pain but they complained more of pain and less of slowness, cognitive problems, PEM. It is interesting to learn that there are some different imbalances going on in our respective systems. And maybe there are people with a mixture of these problems. Let's see what we can learn here about ourselves!

    Cecelia
     
  3. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,036
    Likes:
    487
    Raleigh, NC
    I think you're accurate about FM; my understanding is much less postexertional malaise and of course more pain but also things like skin that's painful to the touch, numbness, nerve pains....

    Never a fever for me - no feverish problems. Few flulike symptoms unless I get cold and then I get a low grade cold - fluey feelings etc. I'd much rather have muscle pain and tension, rushing thoughts at all - that fluey stuff is just miserable.
     

See more popular forum discussions.

Share This Page