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Chronic fatigue syndrome & child abuse: Disordered patients or disordered research

Discussion in 'General ME/CFS News' started by muffin, Jan 27, 2010.

  1. muffin

    muffin Senior Member

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    In the same issue of that horrid Psych Today issue with Mark Borigini of CFIDS as" Terrorists/Jihadists Fame", is a GREAT article by Pamela Weintraub. She spoke with Hillary Johnson and did a great job on this article.

    Hope this wasn't posted elsewhere but wanted to make sure we all saw what great research/writing is - and she's on our side!

    http://www.psychologytoday.com/blog/emerging-diseases/200901/chronic-fatigue-syndrome-child-abuse-disordered-patients-or-disordered

    Patients at the crossroads of new diseases and chronic ills. by Pamela Weintraub
    Pamela Weintraub is a senior editor at Discover magazine and author of Cure Unknown: Inside the Lyme Epidemic.
  2. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Well, it is one sided. But I guess, if you put it together with the other one about Terrorist, you get the extreme view of the same issue.

    Not that I don't disagree, but I don't see any mention of this reporter going to CDC and asking why they chose to do this study and answering the issues Hilary raises. Standard journalism is to ask. And if the person who is being accused declines to answer, then say they had no comment. I would sure love to see if there is an explanation of why the CDC needs public relations on this illness. Do they do this for other illnesses? And if they don't, then are there some records, meeting records, etc. as to why the PR firm was hired, besides just Hilary saying it.

    I sure would have loved to hear the CDc's explanation, or at least know they were put on the spot by a journalist asking the question. Hey, they have a PR firm, call them. PR firms answer news media questions. That's why they are hired.

    Tina
  3. usedtobeperkytina

    usedtobeperkytina Senior Member

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    of

    of course, if this was commentary, then ok. Commentaries are one sided. But this commentary should have been Hilary's commentary, not someone else giving a commentary of Hilary's opinions.

    Tina
  4. muffin

    muffin Senior Member

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    It sounded to me like she was quoting Hillary Johnson. No? I thought it was a good counter to that moron Borigini. This woman also has written other good, supportive CFIDS stuff. She's also into the Lyme as well.
    Yes, apparently the CDC does have a PR shop. They would need one given the problems they are having. And they are so going to need it when the real truth on CFIDS comes out. The CDC has to play to the public and Congress, so a PR shop would be right. They prob. take press inquiries too, I would assume. You don't want people like Reeves shooting their mouth off like he has done in the past - so let the PR people do the BS talking.
  5. muffin

    muffin Senior Member

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    Agree with Hillary Johnson that CDC need to not be part of CFIDS.

    "If there was any doubt before, this paper suggests the agency's research program on CFS should simply be shut down because it's hurting more than it's helping," Johnson contends.

    I believe that the CDC should get out of CFIDS altogether as well. They won't change and they won't do their job as required - and as demanded by Congress for the past couple of decades. We still do not have real numbers of CFIDS sick for the US. So, the CDC needs to get out of CFIDS and quit damaging us. CFIDS IS a true epidemic and the CDC SHOULD have been involved and working on this, but they didn't for whatever reason(s). So OUT they need to go.

    I think Hillary Johnson is just wonderrful!
  6. usedtobeperkytina

    usedtobeperkytina Senior Member

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    just

    As for as two sides of whether CFS is psychological origin or not, having both stories in same publication can satisfy that need.

    But I sure would have liked to hear CDC's explanation or be put on the spot. Sometimes the best thing you can do to expose someone's warped view is to let them speak.

    This article leaves only Hilary's position without verification. So it only exposes Hilary to outside critical thought. The CDC's side, explanation, should be included so it can be analyzed, criticized, exposed.

    Tina
  7. muffin

    muffin Senior Member

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    Hillary Johnson has more than enough credibility in the CFIDS arena

    I would not worry about anyone of value questioning Hillary Johnson. All they have to do is read her huge, thorough book on CFIDS and CDC history. She is EXPERT in this area.
    If you haven't yet, make it a point ot read Hillary Johnson's book, Osler's Web.

    As for CDC comments, read their "studies" to see what they think. They have enough trash studies out there to know what they think and they use those trash studies to further damage the CFIDS sick.

    This isn't about journalism and balance between the Boriginia article calling CFIDS people Terrorists and Jihadists versus Hillary Johnson and her 30 years of super thorough research, behind closed doors interviews, etc. Johnson is a true investigative journalist whle Borigini just shot his nasty mouth off.
  8. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Muffin, I guess we will disagree on this one. I read her book. Very thorough, in fact, most thoroughly researched piece of work I have ever seen. I don't doubt her.

    But the article was not for me. My point is, when an advocate (which is what she is now) is the only one quoted it is not fair. And more credibility is given to the article if they at least tried to verify it with document or first hand sources, that is people at CDC. And if they are given opportunity to explain.

    But, again, maybe I am just applying newspaper standards to what is not a newspaper.

    (which brings up the topic of another post)

    Tina
  9. muffin

    muffin Senior Member

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    I really don't see any problem with the article

    I read the article again and still don't see issues with it. I guess if it were in a newspaper it would need the "other side" but it's not in a newspaper but rather a fluff journal. I guess I just know where she is coming from and understand what she is saying so I am not a regular person coming at it with no background - and no bias. And major league bias I do have in this area or I wouldn't be on this site. And up at 4am with major league pain.
  10. Abraxas

    Abraxas Senior Member

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    Muffin the article you provide a link to was published in Jan 2009?
  11. usedtobeperkytina

    usedtobeperkytina Senior Member

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  12. Julia Rachel

    Julia Rachel

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    Very Sad Article and news. As a victim of Child Abuse and A CFIDS Patient and caretaker....I have to wonder if the emotional stress of abuse did not snap me over the edge after I contracted mononucleosis (my starting point for CFIDS) at the age of 15. It is just COMMON SENSE that any type of stress does not HELP an illness, but rather exacberates it. Its' like living in the dark ages..."Stress causes illness"...Which is not accurate. Viruses, Genetics and Infections cause illness. Stress causes STRESS. BTW....my son was NOT abused and he has CFIDS.
  13. muffin

    muffin Senior Member

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    As noted: I have no brain...The Weintraub article was sitting on the same page as the Borigini article so I assumed it was in the same document. The spirit may be there but the brain left long ago.

    And at this point in time, I don't care since REEVES IS GONE!!!!!!!!!!!!!!!!
  14. Abraxas

    Abraxas Senior Member

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    :D all of us get mixed up! I wondered if it was me! :confused:
    Yes, good news about Reeves :victory:
  15. muffin

    muffin Senior Member

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    Abraxas: Kind of you to let me and my non-brain off the hook! I swear my IQ dropped at good 40 points or more. I do think that in some areas my functional IQ is below 70 - I get so confused about the stupidiest things. If I had known I would be losing my brain and one-time great memory (GONE!) I would NOT have taken out all those loans and maxed out the credit cards to get two grad degrees. What a waste and now I can't remember anything I worked so hard to learn. Such a terrible waste.
    But again - REEVES is GONE!!! And for today I am very happy!!!
  16. Gerwyn

    Gerwyn Guest

    No Hysteria just science the results show a MILD correlation r=0.4 you need 1 for causation .The confidence intervals make the conclusions a total joke! Have a statistitian look at this----prepare for laughter or anger I would comment on the science in the paper but there isn,t any! I,m talking about the 2009 paper in case it isn,t clear
  17. Ah Gerwyn this is why I am so glad people like you and Maarten have joined us on this forum, to help cut through the statistical nonsense and show us the good stuff... stats are so confusing to the layperson and when you give them, along with the usual inoculation of a pinch of science, to a hurried journalist who is unaware of their status as a non-scientist, no wonder we are in such a mess.

    Rachel xx

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