Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
Discuss the article on the Forums.

Chronic fatigue rare but serious in teens

Discussion in 'General ME/CFS News' started by ixchelkali, Apr 18, 2011.

  1. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
    http://www.reuters.com/article/2011...e-rare-but-serious-teen-idUSTRE73H3T420110418

    Copyright precludes copying the whole article here. I'll just mention that the "uninvolved expert" they quote is from King's College London. And here's a small excerpt:

     
  2. SaveMe

    SaveMe

    Messages:
    421
    Likes:
    6
    the city
    "A new survey of Dutch doctors and their patients suggests that chronic fatigue syndrome affects only about 1 in 900 teenagers "

    my chance of developing CFS was .0011%. fuck my life.
     
  3. invisible ME

    invisible ME

    Messages:
    44
    Likes:
    0
    Thanks for posting this, ixchelkali.

    That is a highly unfortunate and inaccurate quote about XMRV :(

    Does anyone know if this study is in keeping with the literature? Or do we only have incidental physician reporting to rely on to date? I personally find this figure HIGHLY improbable. According to the article, only half of GPs who received the survey responded, and only half of those who responded "said they accepted CFS as a distinct diagnosis." The study notes that it took the teens an average of 17 mos to get a diagnosis, which for the majority, was not from their GP.

    They also found females 5x as many females (teens) w/CFS than males. That can't be right. Not only does it not match the wider rates among adults, but I'm fairly sure Dr. Bell has stated that rates appear to be about equal (male and female) among children.

    In my opinion, this study points to the dire consequences of the lack of research and physician education about ME/CFS, especially concerning children.

    - invisible ME

    SaveME - I also became ill with ME/CFS as a teen and knew at least one other teen (a close friend) who did as well. According to these stats, that would be almost impossible! I know it doesn't change anything, but I actually think the stats reported in this article have more to do with under-diagnosis than with actual rates of illness.
     
  4. Mya Symons

    Mya Symons Mya Symons

    Messages:
    1,028
    Likes:
    372
    Washington
    Ixchel or anyone else: Does anyone happen to know the stats on teenagers who go into remission--As in how many that go in remission eventually get CFS back again and when are they likely to get it back again if at all? If not, do you know where I can find that info?
     

See more popular forum discussions.

Share This Page