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Cholestyramine (CSM) Treatment - Elimination of Toxins

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by lono, Oct 28, 2010.

  1. Aerose91

    Aerose91 Senior Member

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    Are you changing your approach at all in lieu of lyme?

    I started some IVs but had to stop due to money. I can't even afford the BodyBio PC anymore so I'm taking very high doses of jarrow. better than nothing. I'm also still doing all the oils and diet.

    If I may ask, what is VSL? I apologize if you already told me-?brain isn't too sharp
     
  2. Valentijn

    Valentijn Senior Member

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    A probiotic.
     
  3. Aerose91

    Aerose91 Senior Member

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    For anything specific? I've been making my own Probiotics for years and haven't seen any difference.
     
  4. Soundthealarm21

    Soundthealarm21 Senior Member

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    I guess this post was almost a year ago. I misinterpreted Lyme, but I do not have it. The bands that were reacting point to something else, but I don't remember exactly.

    I also haven't taken the BodyBio PC in a while mainly because I'm allergic to soy. It didn't affect me at first, but after a while I just felt so crappy and didn't really understand why. Turns out i'm allergic to soy. I do take oils still but they're not derived from soy.

    The VSL 3 which I haven't taken for a few months, but plan to order when my other probiotic runs out is a highly potent probiotic. From what I have seen, the amount of strands in VSL3 is a lot more than what I can find at the local supermarket. Meaning I can take less of VSL3 and get the same thing as the supermarket. So although appearing cheaper the stuff at the supermarket is actually more expensive.
     
  5. Aerose91

    Aerose91 Senior Member

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    Wow that sucks that you were so sensitive that you even reacted to soy lecithin. Have you found anything that has helped you? And may I ask which Lyme bands you had positive?
     
  6. Soundthealarm21

    Soundthealarm21 Senior Member

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    Biggest help to me has been diet changes and getting out of mold (which was no easy feat). I don't have my medical records because they were on paper and had to be thrown away with the other items in the house. My doc has them, but I can't remember what bands they were.
     
  7. Aerose91

    Aerose91 Senior Member

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    No worries. I'm preparing to go to the desert myself so I scanned all my records into the computer since I had to get rid of them as well
     
  8. wootah88

    wootah88

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    How do you get by living in the desert?
     
  9. Aerose91

    Aerose91 Senior Member

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    I'll tell ya when I get there. ;) I got rid of my stuff, bought some new things and am going to stay in a tent out there. Total mold and chemical avoidance and that's where I'll do heavy methylation and detoxing. I refuse to live like this for the rest of my life and will try everything humanly possible.
     
    SueJohnPat, SDSue, Gingergrrl and 7 others like this.
  10. xena

    xena Senior Member

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    snaps. exactly what i'm feeling right now.
     
  11. Misfit Toy

    Misfit Toy Senior Member

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    @Soundthealarm21 -are you still seeing PK? Patricia Kane? I used to see her and her office was not far from me. I was super sick from PC also. Allergic to soy. All of her pills, IV's, etc made me quite worse.
     
  12. Soundthealarm21

    Soundthealarm21 Senior Member

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    I was never seeing PK, but my old doctor had me on her protocol. I couldn't handle the stuff. Everything just made me feel so much worse, but everything returned to baseline after I stopped taking it all.
     
  13. Aerose91

    Aerose91 Senior Member

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    Seeking Health, Dr Ben Lynch's company sells sunflower lecithin. If PC is something you still want to try Seeking Health is a really respectable brand
     
    Misfit Toy likes this.
  14. ebethc

    ebethc Senior Member

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    @slayadragon - do you think that going on a very low dose of CSM could help detox w/o making you sick?

    I did a Nystatin round a few years ago and got really sick.... which would have been okay if I felt better afterwards, but I felt the same.

    Have you found that zeolite helps detox mold? Have you tried infrared saunas tx, and did it help?

    thanks.
     
  15. ebethc

    ebethc Senior Member

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    Does zeolite cause detox symptoms? I took it last week (13 drops as directed on bottle, 1x per day, 3 days last week)... This weekend I'm sick. I took some charcoal and magnesium last night and I've been drinking lots of water.. Hoping it is detox so that I can feel better afterwards (ie less moldy)
     
  16. ebethc

    ebethc Senior Member

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    Hi @slayadragon
    did you ever try Nystatin? Did you find CSM to work better?

    I got very sick from Nystatin, and did not feel any better afterwards... All pain, no gain... I will take CSM and go through the side effects if I feel better afterwards.

    also, how long does a round of CSM usually last? a few weeks to a few months? that's what I gather from reading on PR, but there isn't a lot re timing.. thanks.
     
  17. SueJohnPat

    SueJohnPat Sue

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    I feel the exact same way.

    I have a great husband who is supportive and two sons . He will get mold remediation done when I am gone. We have some mold in the basement ( nothing drAmatic no one else sick, but my oldest has add/ depression so if this works I may try to get him " clear".
    I will miss my family but I am only about 30-50% " there".

    I plan on going into the desert myself. I am not that bad now but every winter is hell. I am sleeping with the windows open and sleeping on the porch.
    I leave all the windows open and do not use the ac . I feel like sweating a lot is a good thing.

    I am on cholestyramine ( about 2 packs a day) this seems to be helping .
    Good luck with your mold avoidance please keep us posted on your progress.
     
  18. jason30

    jason30 Senior Member

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    HI Lisa,

    I wonder if the binder Activated Charcoal also takes the mold toxins with it?

    Are there any other options for people which needs to detox but live in a bad place and where it's not possible to move. Is it possible to detox with smaller amounts then?
     
    ebethc likes this.
  19. mrmichaelfreedmen

    mrmichaelfreedmen

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    Dr Shoemaker hasn't found clays charcoal etc effective when testing them. I found DE Bentonite modifilan useless. But CSM is hard to tolerate, one full serving today and can't sleep as it seems to have absorbed my sleep meds.
     
  20. *GG*

    *GG* Senior Member

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    @mrmichaelfreedmen

    Yeah, you didn't know it absorbs/ binds meds?

    You should take it 3 hours after meds/supplements, or 1 hour before taking them :)

    GG
     
    SueJohnPat likes this.

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