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Cholestyramine (CSM) Treatment - Elimination of Toxins

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by lono, Oct 28, 2010.

  1. Wayne

    Wayne Senior Member

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    Hi Lisa, great post. I was wondering if you have a brief definition of "HLA DR type"? --- Thanks.

    Wayne
  2. Dreambirdie

    Dreambirdie work in progress

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    Wow! :aghhh: Anything that makes MTHFR worse is not going to be an option for me.

    It just goes to show (again and very predictably) how different we all are. That some people ARE actually benefited by the cholestyramine is a bit confusing, though. Don't most of us have some major methylation problems?
    Sparrowhawk likes this.
  3. Sparrowhawk

    Sparrowhawk Senior Member

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    I will go out on a limb, here, Dreambirdie and say I've yet to find anyone here on PR who has tested their DNA and din't find something they needed to address. I'm pretty sure I would have remembered a thread along the lines of "Hey I just did 23andMe and everything looks great!" :) With that said I've not been through all the pages of the Genetic subforum...
  4. Dreambirdie

    Dreambirdie work in progress

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    Yeah, I imagine that most everyone here is going to have some significant SNPs in regard to their methylation pathways. But... some people who have really "bad" SNPS, can be perfectly healthy. My partner has more polymorphisms than I do, but he has no major health challenges. I recently loaded him up with the necessary supps to make sure it stays that way.
  5. Valentijn

    Valentijn Activity Level: 3

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    Pretty much, but there's also the opportunity to run programs to search through 23andMe results for very rare SNPs. This can bring up some interesting results by itself, and also allows for comparing rare results to see if there's commonalities with other ME/CFS patients.
    True, and we were all more or less healthy once, despite having the same SNPs that we do know. But also, many of the SNPs listed by Yasko either aren't relevant to the functioning of the genes they're on, or they're reported backwards.
  6. Skyline

    Skyline Senior Member

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    Prevalite and Questran lite contain aspartame which you may like to avoid. The standard versions contain sugar.
  7. Soundthealarm21

    Soundthealarm21 Senior Member

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    @Skyline

    How can I find HLA DR genes? Are they available through 23andMe?
  8. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Americas Compounding, (in MA) is where I get mine from. Mine has xylitol in it, which I beleive is ok, doesn't raise blood sugar levels also!

    GG
  9. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    @Wayne mine is not full of sugar and nutrasweet. Mine has xylitol in it, read on this thread that it is best for mold toxins? Interesting, not sure how much of an issue mold is for me now though.

    GG
    Wayne likes this.
  10. slayadragon

    slayadragon Senior Member

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    twitpic.com/photos/SlayaDragon
    HLA DR is available through LabQuest. You can read more about it on Dr. Ritchie Shoemaker's website, Surviving Mold.

    http://www.survivingmold.com/diagnosis/lab-tests

    CSM is a drug that (to my understanding) is the equivalent of little pieces of plastic that stick to the toxins with a static electric charge. Supposedly it does not escape the intestines. The commercial versions have sugar or aspartame, plus artificial color. Compounded versions can omit those extra ingredients.

    Where did you get yours, GG?
  11. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    America's Compounding in Newton, MA

    http://accrx.com/

    GG
    slayadragon likes this.
  12. Soundthealarm21

    Soundthealarm21 Senior Member

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    I'll probably get that tested next week.

    I just started CSM today so we'll see how it goes. That mixed with methylation support, strict diet, and fatty acid therapy.
  13. Soundthealarm21

    Soundthealarm21 Senior Member

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    @slayadragon

    When you say LabQuest do you mean LabCorp or Quest? Or is that a clever way of including both? :)
  14. slayadragon

    slayadragon Senior Member

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    Oh, sorry! LabCorp. Quest does not do the tests the way Shoemaker has them set up, last I heard.
  15. Soundthealarm21

    Soundthealarm21 Senior Member

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    My doctor and I are doing a mix of the Patricia Kane Protocol, Shoemaker, Yasko, and some of her own stuff. It's working.

    I see her again next week to go over a ton of tests, and I know she wants to get the HLA tested.
  16. Aerose91

    Aerose91 Senior Member

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    @Soundthealarm21

    My doctor wants to start me on the PK protocol as well but I'm not sure if I'll be able to because if the cost. May I ask what it costs for you? And how often are you getting IVs?
  17. Soundthealarm21

    Soundthealarm21 Senior Member

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    Sorry, I have not been on here in a few days!

    Yes it is quite expensive to do the PK protocol. I'm actually on a break from most of it, but still taking the balance oils. I was taking 6 caps of Phosphatidylcholine a day which would average out to $3.60 a day for that. The VSL 3 is quite expensive as well (i'm still doing that) and I take 6 caps of that a day.

    Without going into extreme detail and giving wrong figures, I'd put the average (depending on everything you do) at about $200-300 a month. IV work will be much more expensive, but will get the job done quicker. One of my doctors (I use about 3 right now) uses the PK protocol for her husband (Parkinsons) and she said the cost is $125 per IV which is the direct cost because she is a doctor and primary provider.

    But currently I'm doing Hyperbaric Oxygen Therapy. Tests finally came back positive for Lyme disease (long suspected it).

    I wish you luck with PK protocol, if you're really toxic the detoxification can be quite nasty (reason I stopped) and uncomfortable.

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