Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Chlamedia pneumoniae (Cpn) and Coxsackie

Discussion in 'General ME/CFS Discussion' started by Katyw, Jun 25, 2016.

  1. Katyw

    Katyw

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    Hi there

    After much illness and lots of different testing, I have found out that I have recent and chronic infections to Chlamedia pneumoniae (Cpn) and Coxsackie. I'm relieved to have found something as whatever it is had affected my heart, thyroid, liver, eyes, skin, lymph nodes etc etc. As anyone found improvement with treating these? I have read the Cpn Is a treatable cause of ME/CFS. But I don't know if that's right.

    My doctor has agreed to me starting a pulsed antibiotic protocol for the chlamedia pneumoniae. I just wanted to ask if it's important to treat the coxsackie as well? Can anyone suggest treatment for Coxsackie?

    At this stage I don't know which is causing the most disability but the highest titres were with pneumoniae

    Any help would be really appreciated.

    K
     
  2. JaimeS

    JaimeS Senior Member

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    @Hip 's CFS Roadmap has some information on this. I'd go for treating the CP! It has been described as a treatable cause of CFS.

    -J
     
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  3. Katyw

    Katyw

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    Thanks @JaimeS . Wow, I've used that roadmap so much since being ill. I've literally gone through each round and tested and trialled various things. I'm now out of being bed bound to moving around the house a bit. Didn't realise @Hip wrote that. It's brilliant. I'm really hoping that this is a treatable cause of CFS. It would be so good to gain more functionality. I wonder how many people with CFS actually have Cpn?
     
  4. Hip

    Hip Senior Member

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    That's amazing, I did not think anyone would make such in-depth use of the roadmap as you have. Glad it was useful.
     
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  5. Katyw

    Katyw

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    @Hip it really has been so important for me. I have, like many of us, become my own doctor, and this was invaluable in my decisions. It's a consise document that every person newly diagnosed should have. I've sent it to many others with ME/CFS who don't know what to do next. Just wish our doctors would help!!

    It's taken 3 years but I'm down to the final parts of the puzzle and just hope that I make more improvements.

    Thank you xx
     
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  6. JaimeS

    JaimeS Senior Member

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    @Hip -- that document remains one of the best on CFS ever written. And I think it's fair to say we've all read a lot!
     
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  7. Hip

    Hip Senior Member

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    It's really just the knowledge and wisdom I picked up from reading PR over the years, condensed down to a summary.

    @frederic83 has done a fantastic job of translating the roadmap into French, so hopefully that might help people in France to better find their way to some useful ME/CFS treatments.
     
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