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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Cher marie claire magazine nov 2013

Discussion in 'General ME/CFS Discussion' started by aimossy, Nov 19, 2013.

  1. aimossy

    aimossy Senior Member

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    article states she contracted EBV and then developed chronic fatigue syndrome.
    good on you Cher!
    article wasn't huge about that but still good on her! she said something about her career going down the toilet and doing lots of commercials.
    someone may have posted this. i just thought just in case someone hasn't.
    :)
    Nielk, rosie26 and SOC like this.
  2. taniaaust1

    taniaaust1 Senior Member

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    Cher is probably the most famous person who has CFS. She's talked about it at times in the past too so its not something she hides. Good to know she's still talking about it at times.
    aimossy likes this.
  3. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Have a link? Traffic to sites help encourage coverage of the topic!

    GG
  4. aimossy

    aimossy Senior Member

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    no link just read it in my sisters mag she bought.what I posted is more or less all that was in it about CFS.
    its just good that she is open about it so was nice to see.
    rosie26 likes this.
  5. Mij

    Mij Senior Member

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    Cher is raising money for autism research and advocacy, not CFS. Kind of odd don't you think?
  6. beaker

    beaker CFS/ME 1986

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    Not when you consider there is no real respected National group that one can raise money for.
    Yes there are several good smaller regional groups. But we are sadly a fragmented bunch.
    Purple likes this.
  7. Nielk

    Nielk

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    The Lipkin study and Enlander's Mt. Sinai studies are worthwhile places to raise funds for.
    leela, beaker and aimossy like this.
  8. aimossy

    aimossy Senior Member

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    maybe someone will tell her that @Nielk ;)one of the organisations should nab her! reckon you would know which one should.:)
    sorry I just completely used a kiwism. nab equals grab.
    Nielk likes this.
  9. beaker

    beaker CFS/ME 1986

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    I agree completely that they are. But they are not well known except to our community. And I mean the internet ME communities. Even then, it took me quite the effort to get the info on how to first donate to Enlander a couple years ago and post the info on here. As did someone else do so w/ Lipkin.
    The point is there is no central easy or obvious connect.

    Enlander and Lipkin are hardly self promoters. They need some reps to do some marketing for their research imo.
    Nielk likes this.
  10. Iquitos

    Iquitos Senior Member

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    Simmaron Research, too. Anyhow, I'd like to know how she was treated and by whom...where...

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