1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Dr. Kerr, I presume?
Clark Ellis brings us a rare interview with British researcher Dr. Jonathan Kerr who is now living in Colombia.
Discuss the article on the Forums.

Chasing the Money: Chase Community Giving Contest to Start Soon

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Sep 1, 2012.

  1. frenchtulip

    frenchtulip Senior Member

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    Yes, Hope, you may vote from anywhere around the world!
    warriorseekspeace likes this.
  2. frenchtulip

    frenchtulip Senior Member

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    Please be aware that searching for our org's at the Chase site can be tricky. Phoenix Rising is listed as Phoenix Rising An NEID Corporation. If you just search for Phoenix Rising, several of them pop up. One person voted for the wrong PR.
    warriorseekspeace likes this.
  3. Cort

    Cort Phoenix Rising Founder

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    Thanks for the warning - the names listed on Chase are the names registered with Guidestar - which are not always the names we know the orgs by....here are the ME/CFS organizations I know of

    Phoenix Rising An NEID Corporation
    Rocky Mountain CFS Association
    New Jersey Chronic Fatigue Syndrome Association
    Neuroimmune Disease Alliance (NIDA)
    Wisconsin Chronic Fatigue Association
    Organization for Fatigue and Fibromyalgia Education and Research
    HHV-6 Foundation
    Enterovirus Foundation
    warriorseekspeace likes this.
  4. Cort

    Cort Phoenix Rising Founder

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    Here's the count as of this morning...NIDA was in the top 100 and Phoenix Rising in the top 150 :)

    • Neuroimmune Disease Alliance at 90th place (58 votes)
    • Phoenix Rising An NEID Corporation at #128 (24 votes)
    • New Jersey Chronic Fatigue Association- 8 votes*
    • Rocky Mountain CFS Association, Inc - 8 votes
    • Wisconsin Chronic Fatigue Association - 4 votes,
    • Organization for Fatigue and Fibromyalgia Education and Research - 1 vote
    • HHV-6 Foundation - 0 votes
    • Enterovirus Foundation - 0 votes
  5. Cort

    Cort Phoenix Rising Founder

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    warriorseekspeace likes this.
  6. warriorseekspeace

    warriorseekspeace

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    Hi. I see on my FB page, the RMCFA is being promoted too. Isn't this going to split the vote? Does anyone have a dialogue going with the people promoting that group? Just wondering before I do my voting.
  7. Cort

    Cort Phoenix Rising Founder

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    Yes it will but I think that's the nature of the contest. The orgs did not get together and agree to support two organizations so that's understandable...I would be doing the same thing :)
  8. Aileen

    Aileen Senior Member

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    We will be reaching out but we are trying to figure out how the heck to vote first so we can give people instructions. They really make this difficult which is why I detest this contest. :devil: I'm Canadian, btw.

    Speaking of difficulty, I tried for hours last night and I could not vote. It would not "Allow" chase although I kept clicking the allow button. I finally switched browsers -- from Safari to Firefox and it worked fine. So if you are having trouble that might be an option.
    Merry likes this.
  9. Cort

    Cort Phoenix Rising Founder

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    Thanks Aileen, Firefox is often a good option if other browsers don't work...
  10. Aileen

    Aileen Senior Member

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    Ok, I picked a partner, I voted for PR (took almost 2 days of trying but finally succeeded). Sent my partner the link by clicking on "Send" option. It showed up on her FB page but wouldn't take her to PR page!!! She ended up not being able to use the link. So I have no bonus vote.
    She voted for NIDA and sent me a link. It did work. I clicked on it and voted. My vote was counted but she did not receive her bonus vote. If someone could tell me what went wrong I'd appreciate it.
    How on earth am I supposed to write up instructions for other people if I can't even get the bonus vote thing to work myself?? :mad:
    Has anyone been successful in getting bonus votes?
  11. Cort

    Cort Phoenix Rising Founder

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    Jeez...the link wouldn't work....and she didn't get bonus votes....wow...we are having troubles but there is some good news...despite all that

    NIDA (Neuro-immune Disease Alliance) is in the top 100 with over 200 votes, Phoenix Rising is just out of the top 200 with 118 votes - we were actually in the bottom 400's yesterday (I counted wrong), Rocky Mountain has 25, New Jersey has 13, OFFER has 8 votes, who am I missing....

    Both Phoenix Rising and NIDA moved up quite a bit yesterday - a good sign. I am going to send out newsletters today and hopefully we'll climb more...

    Thanks for your persistence Aileen and all the ideas :)
  12. Anne

    Anne

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    Yep, worked for me! After having voted, I clicked "Like" and then wrote a message to post the link on my wall, and then when someone used that link to vote, I got a notification saying I had earned a bonus vote. NOTE: If you use the "Like" button, it seems important to write something too, not just click like, in order to get the link up on your timeline.
    warriorseekspeace likes this.
  13. Anne

    Anne

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    Updated message to use as a template if you like, to send out to friends on Facebook:
    (How to reach all your friends? - see next post below):

    Friends, please help us raise money for ME/CFS research by voting in the Chase Community Giving Contest. Previous Chase contests have resulted in $170,000 to ME/CFS research – this time we can win some more! Help us by voting – it only takes a few minutes.

    Vote before Sept 19. Each person has two votes (plus a possible bonus vote, see below). Here’s how:

    NOTE: The Chase FB site is overloaded at times, so if it behaves weirdly, please try again later!


    1. Go to Chase Community Giving’s FB page and click “Like” (if you haven’t done this previously).
    https://www.facebook.com/ChaseCommunityGiving?ref=ts


    2. Go to this page:
    http://fb.chasegiving.com/charity/view/ein/27-2861703
    (Or type NIDA in the box “"Search charities".) "Neuro Immune Disease Alliance" will appear. Click "Vote". At the question "Allow" or "Allow App", click Yes.


    3. Once you have voted, click the "Like" button and - IMPORTANT - write a short message to post it on your timeline. If someone then follows the link and votes you get a bonus vote.

    4. Then go to this page:

    http://fb.chasegiving.com/charity/view/ein/27-3313361
    (Or type NEID in the box "Search Charities".) "Phoenix Rising, an NEID corporation" will appear. Click “Vote” and then click “Like” and write a short message for your timeline.

    5. Send this message on and ask your friends to vote too.

    6. If you get a bonus vote, you can use it to vote for NIDA or Phoenix Rising NEID again, but you have to wait a while.

    The top 200 organizations will receive $10,000 each.

    Many thanks!
    Merry and warriorseekspeace like this.
  14. Anne

    Anne

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    How to send a message to all your Facebook friends:

    Two ways:

    1. You can only send normal messages to 20 people at a time. Open Facebook in two browser windows simultaneously, and in one window, go to Messages; in the other window, go to the list of your friends. Now use the friends list to decide which friends you want to message - and use the Message window to create a message to the first 20 that you see. Then make a second message for the next 20, and so on.

    2. Or, you can create an event - that opens up a possibility to send a message to all your Facebook friends, see
    Merry likes this.
  15. Cort

    Cort Phoenix Rising Founder

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    It looks like the 'event' a 2 week rolling event is it :)

    Thanks again Anne
  16. Aileen

    Aileen Senior Member

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    Most of that is really good but if the person votes like this they will not give anyone else a bonus vote. Perhaps ask if before they vote they could get a friend to do it with them? They vote for NIDA as explained but the friend vote for PR and they vote for PR through friends link?

    Another correction. The top 200 do not receive $10,000 each. The money breaks down like this:
    1st Place: $250,000
    2nd - 11th Place: $100,000 each
    12th - 46th Place: $50,000 each
    47th - 96th Place: $20,000 each
    97th - 196th Place: $10,000 each
  17. Tuha

    Tuha Senior Member

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    with my experiences - the best way how to motivate the friends to vote is just to ask directly throught facebook chat. if you are there and you see a friend online - just make a small chat with him. when I do it - almost noone refused it to do it for me. if I sent a message to everyone only few friends voted - the people are just lazy
    warriorseekspeace, Anne and Merry like this.
  18. Anne

    Anne

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    Thanks Aileen! My estimation is that what matters most is that we get our extended Facebook networks to vote. I have thought hard about the bonus vote, but have realized that if it gets any more complicated than this, my friends won't vote at all... And it's so important that they do!

    Every Facebook friend we can involve means two votes for ME/CFS org:s, and if we all involve friends it will grow exponentially, so let's make it simple for them, I think.

    Also, I haven't been able to use my bonus vote to vote again for Phoenix Rising or NIDA, even though I've read here that you're supposed to be able to. I have one vote left but can't vote for PR or NIDA anymore. This makes me even more convinced that the power is in getting the word out rather than having complicated strategies among us in the patient community.

    I have changed the number to Top 196 in my newly sent messages. Thanks!
  19. Anne

    Anne

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    Tuha, that is great advice!
  20. warriorseekspeace

    warriorseekspeace

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    Hi, Anne. Just to let you know, I got an alert from FB/Chase, that I have a bonus vote. When I click on the link in that alert, it takes me right to a choice to "use bonus vote" for either Phoenix Rising, or NIDA, the two I voted for to begin with. (I haven't used it yet, waiting to see who will need it). Just fyi.
    Anne likes this.

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