1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
Discuss the article on the Forums.

Chase Contest For ME/CFS Non-profits Has Begun

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Sep 7, 2012.

  1. Anne

    Anne Senior Member

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    Scandinavia is pitching in!

    RME, the Swedish national ME Association, has created a Facebook event:
    https://www.facebook.com/events/143503745793340/

    - and RME has also sent an e-mail to all members, encouraging them to vote for Phoenix Rising and NIDA

    ME Foreningen, a Danish ME Association, has created an event too:
    https://www.facebook.com/events/103252766495772/

    Norges ME-forening, the Norwegian national ME Assocation, has posted on its wall:
    https://www.facebook.com/MEforeningen?ref=ts

    And the Norwegian journalist and author of the book about ME "De bortgjemte" (The Hidden Ones), Jorgen Jelstad, has posted on Facebook:
    https://www.facebook.com/pages/De-Bortgjemte/273407159344792

    Can we Nordic advocates challenge the rest of you....? ;-)

    PS. Cort and other PR team members, are you OK? I haven't seen posts in a while. Hoping all is well and that you're not giving up on Chase!
     
  2. Merry

    Merry Senior Member

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    Anne, I can't thank you enough for the work you are doing. Thanks to all Nordic advocate challengers!
     
  3. Merry

    Merry Senior Member

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    Contest stats as of 8:15 EST today:

    Neuro Immune Diseases Alliance 62nd with 1279 votes
    Phoenix Rising an NEID Corporation 153rd with 624 votes

    So, NIDA up one position from yesterday. Phoenix Rising continues to slide.

    ME/CFS organizations not on the leaderboard:

    Rocky Mountain Chronic Fatigue Syndrome Association 79 votes
    New Jersey Chronic Fatigue Syndrome Association 49 votes
    Enterovirus Foundation 43 votes
    HHV-6 Foundation 2 votes

    Six more days in the contest.
     
    Nielk likes this.
  4. Dolphin

    Dolphin Senior Member

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    As with the other Chase contests (and some other ones e.g. Vivint), it has been highlighted quite a lot by the me and the Irish ME/CFS Association in the Rep. of Ireland.
     
    WillowJ and Merry like this.
  5. Merry

    Merry Senior Member

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    Dolpin, I'm grateful to you for your work on this and contests in the past. Please tell others in the Irish ME/CFS Association that their help is very much appreciated.
     
    Dolphin likes this.
  6. Simon

    Simon

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    Edit: now voted twice, thanks

    Hi
    Can I pair up with someone so my first vote for PR gives someone else a bonus vote? Please PM me if you can help. Thanks.
     
    Nielk likes this.
  7. Merry

    Merry Senior Member

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    bumping
     
  8. K2 for Hope

    K2 for Hope ALways Hoping

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    Hey, I've been wrapped up with other stuff lately, but watching you guys go for it!!!

    Ready to vote... and need a buddy... PM me, please, if you haven't voted yet...

    I posted to FB to get friends and family to vote cause it doesn't cost anything but time...

    (Even 2 votes are 2 votes...)
     
    warriorseekspeace and Dolphin like this.
  9. Dolphin

    Dolphin Senior Member

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    Try PMing Simon (message before last).
     
  10. Esther12

    Esther12 Senior Member

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    I've done my voting and promoting. Good luck for the rest of the comp.
     
    Merry and Dolphin like this.
  11. K2 for Hope

    K2 for Hope ALways Hoping

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    OK, I've done 3 votes... Lets go!
     
    Merry likes this.
  12. K2 for Hope

    K2 for Hope ALways Hoping

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    I have a vote to share. Is anyone on here I can send to in FB? Never mind... trying to get more and more.... ;)
     
  13. Simon

    Simon

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    Voted now, even got my niece to vote (who was amazed that I'd actually been on facebook).

    We are slipping a little on the leaderboard but currently showing at #157 with 737 votes and still on course for $10,000, with 3 days left. Still worth plugging as much as we can.
     
    Dolphin and Merry like this.
  14. Merry

    Merry Senior Member

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    Contest stats as of 8:30 am EST:

    Neuro Immune Diseases Alliance is 66th with 1555 votes. Phoenix Rising an NEID Corporation is 161th with 761 votes.

    Other ME/CFS organizations continue to pull in some votes but still are not on the leaderboard. Rocky Mountain CFS Association is top of this group with 83 votes. To get on the leaderboard, an organization would need at least 668 votes.

    Four days remain in the contest.

    Thanks to all who are helping out.
     
  15. Simon

    Simon

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    Weird, now showing @156 but still 761 votes on the leaderboard, though now 782 votes in real time. It's certainly hotting up.
     
    warriorseekspeace and Merry like this.
  16. Merry

    Merry Senior Member

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    Simon, I truly appreciate you stepping in to help out. I was starting to feel burnt out and disgruntled.
     
    Nielk likes this.
  17. K2 for Hope

    K2 for Hope ALways Hoping

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    Oh, Merry, please don't feel that way. All your help is much appreciated. I think the way the voting is set up, it makes it very difficult to keep us even paced.

    You can only vote once, then you must rely on getting everyone else to vote. It's hard to get people who are really busy or ill to sign on and vote. Also, you know that there will be a "final push", which is why I was sort of saving my votes.

    Now, I've voted and am trying to get friends and family to vote, stating, it is only on til Sept 19th. Just do it once.... please... ;)
     
    Dolphin and Nielk like this.
  18. K2 for Hope

    K2 for Hope ALways Hoping

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    Jacksonville, FL 32258
    warriorseekspeace, Merry and Dolphin like this.
  19. K2 for Hope

    K2 for Hope ALways Hoping

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    From Facebook Team Member, Helen W. Atkinson:

    For Facebook members;

    HUGE CHARITY CONTEST! CHASE IS GIVING OUT 5 MILLION DOLLARS- HELP US WIN $250,000 of it!!
    Each voter gets 2 votes to start
    Allow app, 1st time, then VOTE, number will change
    Phoenix rising http://fb.chasegiving.com/charity/view/ein/27-3313361

    NIDA http://fb.chasegiving.com/charity/view/ein/27-2861703

    PLEASE LIKE it too SO it will appear in your feed, or on wall. If someone enters through your share, you will be given one more vote.
     
    warriorseekspeace, Merry and Dolphin like this.
  20. Simon

    Simon

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    Massive thanks to you, Merry, and everyone else (Dolphin, Nielk, Anne, Aileen and more) on this thread grafting away encouraging votes while people like me think 'I really should think about voting some day'
     
    K2 for Hope and Merry like this.

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