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Graham McPhee spells out some of the cold, hard facts about the dismal state of ME research and politics, and has some suggestions as to what we can do about it ...
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Chase Community Giving Contest for Small Non-profits-Nov 8 to 22-$3M in Prize Money

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Nov 7, 2011.

  1. Dolphin

    Dolphin Senior Member

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    Yes. It looks likely that whatever happens some group is going to be close to the cut-off point when this contest ends - it will either have just made it or just miss the cut.

    I've just added in a line to try to highlight this.
     
  2. Dolphin

    Dolphin Senior Member

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    Bad news: 2 have dropped out of top 100, 1 more is now in 99th position

    Bad news: 2 have dropped out of top 100, 1 more is now in 99th position. :(

    100th position is now 1002 (+77). None of the groups got that increase.

    That means in the last 4.5 days: +39, +44, +53, +40, +61, +75, +50, +43, +77.

    #32 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,363 (+40)

    #39 CFSKNOWLEDGECENTER INC Wellington, FL 1,302 (+38)

    #58 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,175 (+59)

    #89 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 1,037 (+38)

    #99 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 1,009 (+34)

    100th=1002
    ------ cut-off point ------ cut-off point ---- cut-off point -----

    #103 ENTEROVIRUS FOUNDATION INC San Francisco, CA 988 (+50)

    #105 NJCFSA Florham Park, NJ 975 (+44)

    #161 CFOG, INC Kennesaw, GA 567 (+26)

    #175 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 449 (+32)
     
  3. SpecialK82

    SpecialK82 Senior Member

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    Frustrating - this is such crazy easy money for us!
     
    Dolphin likes this.
  4. shannah

    shannah Senior Member

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    helen41 likes this.
  5. Dolphin

    Dolphin Senior Member

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    Last Updated: November 21, 2011 1:52PM ET

    This was over 7 hrs 52 minutes (previously leaderboards were 12 hours apart)

    Mixed results. 100th=1065 (+63). A 3rd charity is now just below 100th


    #31 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,423 (+60)

    #43 CFSKNOWLEDGECENTER INC Wellington, FL 1,338 (+36)

    #55 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,242 (+67)

    #93 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 1,087 (+50)

    100th=1065 (+63)
    ------ cut-off point ------ cut-off point ---- cut-off point -----

    #103 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 1,057 (+48)

    #104 ENTEROVIRUS FOUNDATION INC San Francisco, CA 1,057 (+69)

    #106 NJCFSA Florham Park, NJ 1,029 (+54)

    #157 CFOG, INC Kennesaw, GA 605 (+38)

    #174 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 482 (+33)
     
  6. Dolphin

    Dolphin Senior Member

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    Latest CCG leaderboard (6pm EST) - it ends 11.59am EST tomorrow, Nov 22

    Last Updated: November 21, 2011 6PM ET

    This was over a period of 4 hrs 8 minutes (previously leaderboards were 12 hours apart)

    100TH = 1125 (+60)

    #31 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,473 (+50)

    #44 CFSKNOWLEDGECENTER INC Wellington, FL 1,374 (+36)

    #56 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,295 (+53)

    100th=1125 (+60)
    ------ cut-off point ------ cut-off point ---- cut-off point -----

    #102 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 1,122 (+35)

    #104 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 1,106 (+51)

    #106 ENTEROVIRUS FOUNDATION INC San Francisco, CA 1,102 (+45)

    #110 NJCFSA Florham Park, NJ 1,074 (+45)

    #154 CFOG, INC Kennesaw, GA 636 (+31)

    #171 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 516 (+34)
     
  7. Dolphin

    Dolphin Senior Member

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    My guess is Chase will do an update at midnight EST. I should be asleep so if anyone else wants to post it, feel free.
     
  8. Hope123

    Hope123 Senior Member

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    Interesting articles. It's Chase's contest but I really hope that they just eliminate competitors who use robo-voting or other such methods rather than just docking them points. It may be unfair to those who legitimately vote for a charity but unless Chase kicks these groups out, other groups who use robovoting will continue to enter the contest reasoning that

    1)a strong showing at some points, even if false, may encourage their legitimate voters to vote
    2) even if docked points, they will still earn $25,000 if they fall but remain within the top 100 list

    I thank everyone who has voted and also the groups who worked together to get people and organizations to vote as a cohesive bloc. This type of cooperation means we were able to disseminate the message about the contest quicker.

    Some thoughts for future vote-getting: exploit international groups and FM groups more. Other potential groups could include people with POTS/ NMH but not CFS since CFS research also covers this group; IBS; etc. We need to continue to think creatively.
     
  9. Dolphin

    Dolphin Senior Member

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    Sorry for the delay posting this: this is the leaderboard 3.5 hours ago. Currently, there are 2.5 hours left

    Now MASS CFIDS and even potentially CFSKNOWLEDGECENTER not 100% safe

    Last Updated: November 22, 2011 6:00AM ET (6 hours to go)

    Changes over 12 hour voting period
    100th = 1299 (+174)

    #36 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,561 (+88)

    #57 CFSKNOWLEDGECENTER INC Wellington, FL 1,438 (+64)

    #75 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,390 (+95)

    100th = 1299 (+174)
    ------ cut-off point ------ cut-off point ---- cut-off point -----

    #112 ENTEROVIRUS FOUNDATION INC San Francisco, CA 1,200 (+98)

    #114 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 1,188 (+82)

    #116 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 1,183 (+61)

    #119 NJCFSA Florham Park, NJ 1,161 (+87)

    #148 CFOG, INC Kennesaw, GA 697 (+71)

    #170 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 570 (+54)
     
  10. Dolphin

    Dolphin Senior Member

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    Votes with 4-8 minutes to go

    As previously state, 6 hours before the end, 100th was at: 1299
    Changes over 12 hour voting period: +174. So if it went up by the same rate it would be 1299+87=1386
    People on the West coast of the US might not have got that much voting in in the last 6 hours, so perhaps this estimate is reasonable.

    ---------


    Totals from 4-8 minutes to go (started at top i.e. top done with around 8 minutes to go)
    - AMERICAN ASSOCIATION FOR CHRONIC FATIGUE SYNDROME INC
    International Association for Chronic Fatigue Syndrome/ME
    Chicago, IL
    1615 people have voted for this charity


    - CFSKNOWLEDGECENTER INC
    Wellington, FL
    1478 people have voted for this charity


    - MASSACHUSETTS C F I D S ASSOCIATION INC
    Massachusetts CFIDS/ME & FM Association
    Quincy, MA
    1450 people have voted for this charity


    - ENTEROVIRUS FOUNDATION INC
    San Francisco, CA
    Categories:
    1269people have voted for this charity


    - WISCONSIN CHRONIC FATIGUE SYNDROME ASSOCIATION, INC.
    WI Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Assn, Inc.
    Sun Prairie, WI
    1231 people have voted for this charity


    - ROCKY MOUNTAIN CFS ASSOCIATION INC
    Rocky Mountain CFS/ME and FM Association
    Denver, CO
    1218 people have voted for this charity

    - NEW JERSEY CHRONIC FATIGUE SYNDROME ASSOCIATION INC
    NJCFSA
    Florham Park, NJ
    1207 people have voted for this charity

    - CHRONIC FATIGUE SYNDROME FIBROMYALGIA ORG OF GEORGIA INC
    CFOG, INC
    Kennesaw, GA
    726 people have voted for this charity

    - CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC
    Milford, CT
    600 people have voted for this charity
     
  11. taniaaust1

    taniaaust1

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    A couple of our orgs yesterday.. it wasnt allowing one to vote for them. My boyfriend we tried in two different places to get his vote in (we tried using the library computers and 8? hrs later, he tried from his home) for the Rocky Mountain group and the WI one and it just wouldnt let one vote for those two orgs.

    Those two orgs must of lost a lot of votes with things not working for at least that long for those esp this happening last day.
     
  12. taniaaust1

    taniaaust1

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    Competition has ended. Looks like three of our orgs have won $25,000 each

    International Assoc for CFS/ME finished at 45.
    CFSKNOWLEDGE centre finished at 94
    Mass. CFIDS/ME and FM assoc. at 98 (we were so lucky to stay in). Best remember not to think we are so safe next year with our top ranking orgs.
    ....

    We would of done far better if all who had voted had focused on all the other of our orgs already in the top 100. Need to work better together.

    I suggest next year for things like enteroviral foundation.. as thou that is run by 2 ME/CFS researchers... as it is in a lot of other illnesses too.. we could of drummed up a lot of support for that thou other illness forums. (I'd thought of doing that but just wasnt capable of doing more then I did).

    (our orgs which dropped out were about 200 votes down so wouldnt even have a chance if some other orgs got taken out due to cheating).
     
  13. Dolphin

    Dolphin Senior Member

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    Thanks for highlighting it.

    Yes, you can't really feel safe in this contest. It was interesting as around 70 charities seemed to be only a few hundred votes above the cut off point with a couple/few days to go. It seemed a bit of an unnatural spread which makes me think a lot of the groups were going by their position in the leaderboard rather than the raw number of votes they had e.g. 200 above the cut-off might have had a group in 50th or 60th and make them think they were fairly safe and so they didn't push hard for more votes at that stage. But 200 wasn't a safe number of votes really to be above the cut-off point.

    I think the community did fairly well in terms of spreading out the votes.

    I think the cut-off in the PANDORA contest was in the 1500s and this time it wasn't far off it (although there were only 100 charities this time).

    Given the enthusiasm for some with the enteroviral theory (and I'm very interested in the angle myself), I was disappointed it wasn't pushed for more.
     
  14. Dolphin

    Dolphin Senior Member

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    Final positions

    #45 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,619

    #94 CFSKNOWLEDGECENTER INC Category: Wellington, FL 1,479

    #98 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Categories:Quincy, MA 1,457

    100th position was: 1,445

    ------ cut-off point ------ cut-off point ---- cut-off point -----

    Groups that missed out:
    #116 ENTEROVIRUS FOUNDATION INC San Francisco, CA 1,251

    #117 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 1,232

    #118 NJCFSA Florham Park, NJ 1,208

    #119 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 1,201

    #150 CFOG, INC Kennesaw, GA 727

    #171 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 602
     
    justinreilly likes this.
  15. Hope123

    Hope123 Senior Member

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    It should be noted that overall, the community did well -- if all three charities get $25,000 -- that means $75,000 total for ME/CFS. Three times what we got compared to the initial run by PANDORA.

    Of course we can do better and we should see each round as learning more about how the contest works and how to get more votes in the future. Let's continue to set our aims high.
     
    justinreilly and WillowJ like this.
  16. WillowJ

    WillowJ Senior Member

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    Chase's press release: http://www.marketwatch.com/story/ch...in-community-giving-program-2011-11-23-145700 (mostly a long list of winning names, and stuff about Chase, but we have 3 winners in the left column of the other 95 winners)

    Well done, everyone.

    Some good strategy tips have been mentioned to keep in mind for next time.

    Something like this happened to one of my sisters, also. She wasn't able to vote for several of the orgs. She said some of the links didn't work, but she could get to some of the pages by clicking where a friend had voted (the friend was able to vote all our orgs). But she couldn't vote all the orgs.
     
  17. taniaaust1

    taniaaust1

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    We tried to vote both ways.. via those two links.. and also via going to the site and putting in the orgs name, getting it up and then trying to vote like that. Those two orgs votes still didnt work (but the other ME/CFS orgs we did voting before and after did with no probs).

    I hope chase was aware that issues like this were going on so it dont happen next year.
     
  18. Aileen

    Aileen Senior Member

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    It's official. cfsKnowledgeCenter won $25,000! More good news.
     
    justinreilly likes this.
  19. SpecialK82

    SpecialK82 Senior Member

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    So happy we received $75,000! And really it was relatively easy (compared to voting every day in Vivint for example). Of course, I'm always a bit sad at the end of these contests that we didn't win all the money that was available to us.
     
  20. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    :balloons::balloons::balloons:

    congratulations to the winners! and thanks to those here spearheading the voting effort! your strategizing, stomping the pavement and cheerleading are indespensible!

    hopefully there will be a next time and our orgs that didn't win will get some money due to past winners being ineligible to run again (less competition).
     
    WillowJ, helen41 and Dolphin like this.

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