1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
Discuss the article on the Forums.

Chase Community Giving Contest for Small Non-profits-Nov 8 to 22-$3M in Prize Money

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Nov 7, 2011.

  1. Jill McLaughlin

    Jill McLaughlin *****

    Messages:
    196
    Likes:
    5
    Thanks Dolphin.

     
  2. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    Word from Mass C F I D S that they are heavily involved in the contest and working very hard to get their PP completed. I just voted for them.
    - Massachusetts CFIDS Association, Inc. Quincy, MA http://bit.ly/sJXeQ9 http://www.masscfids.org/
     
    WillowJ, taniaaust1 and Dolphin like this.
  3. Dolphin

    Dolphin Senior Member

    Messages:
    6,872
    Likes:
    6,166
    I see they're up to 253 votes now. Hopefully that means they'll move up when the next leaderboard is published.
     
  4. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    A Good day for CFS Non-profits!CFS KnowledgeCenter is up from 32 all the way to 19th and are now on the first page of the leaderboard. Five of the groups moved up or stayed up... The IACFS/ME moved up 3 spaces, Wisconsin moved up 2, RMCFA stayed the same, New Jersey fell 7 and the Enterovirus Foundation fell 16 points and is just barely hanging on in the top 100 at 99.

    CFSKnowledge Center - #19
    AACFS (IACFS/ME) - #42
    Wisconsin - #50
    RMCFA - #53
    New Jersey - #69
    Mass CFIDS - #78
    Enterovirus Foundation - #99


    Congratulations to the CFSKnowledgeCenter for such a strong push!

    The IACFS/ME put out a call to its members to vote today and the CFIDS Association put a shout out on their Facebook page. I am holding some of my votes in reserve in order to use for alliances later in the contest.
     
    WillowJ and Dolphin like this.
  5. Dolphin

    Dolphin Senior Member

    Messages:
    6,872
    Likes:
    6,166
    Couldn't restrain myself and have just voted for the Enterovirus Foundation - it's still hanging in there in 99th. It looks to me that these are the main ones in contention at the moment - and there's a big gap to anything below them. If the Enterovirus Foundation could tap into the polio vote (say), it might take off.
     
  6. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,123
    Likes:
    976
    Concord, NH
    Is polio something that many are still afflicted by?

    GG
     
  7. Dolphin

    Dolphin Senior Member

    Messages:
    6,872
    Likes:
    6,166
    I have come across polio groups over the years - I think they are more for the developing world. Post-polio syndrome is quite common - maybe similar prevalence to ME? (I seem to recall a similar prevalence for Ireland although that was a few years ago).

    ---
    Just searched CCG for polio - 29 results nearly all with polio in their title. It might be too risky to write to (i) polio groups in the US - as they would likely want to win and/or help other polio groups and (ii) polio groups in other countries may be similar. Although if the Enterovirus Foundation did it themselves, perhaps they would have success.
     
  8. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,123
    Likes:
    976
    Concord, NH
    How do you get to post such a large signature? I copied it, and the forum said it needed to be under 1000 characaters. So I cut it down, and then it said it needed to be under 500. I gave up at this point!

    GG
     
  9. Dolphin

    Dolphin Senior Member

    Messages:
    6,872
    Likes:
    6,166
    I've no idea. Sssshhhh!
     
  10. helen41

    helen41 Senior Member

    Messages:
    561
    Likes:
    111
    Sleepy Hollow Canada
    The original list was edited to include Massachusetts CFIDS Association, Inc. Quincy, MA http://bit.ly/sJXeQ9 in the group of charities that have expressed interest and submitted the necessary info to Chase VOTE VOTE VOTE!!!
     
    frenchtulip likes this.
  11. taniaaust1

    taniaaust1

    Messages:
    8,329
    Likes:
    5,264
    Sth Australia
    The right ones to take it up with it the actual orgs saying the things you (and many others dont like, myself included) not Chase. It is the orgs themselves with do their profiles and not Chase who does them. What the orgs do is nothing to do with chase but to do with the actual orgs themselves...

    The battle is with the orgs.. not with those who have nothing to do with how things are.
     
  12. taniaaust1

    taniaaust1

    Messages:
    8,329
    Likes:
    5,264
    Sth Australia
    thanks.. good to hear
     
  13. WillowJ

    WillowJ Senior Member

    Messages:
    3,149
    Likes:
    2,851
    WA, USA
    I copied your signature, Dolphin. Thanks.

    (whispers: I don't know why I'm allowed a long sig, but not complaining!)

    GG, you could try putting the links under text. either write a word/prhase like main site or facebook, go advanced, highlight, and use the "blue globe with an infinity" icon to add the link, or simply type (url="www.website.com")main site(/url) -- only use square brackets [ ] instead of normal parentheses. Then the characters of the websites will not count toward your signature.

    I might do that, actually. Might be easier to read.
     
  14. Dolphin

    Dolphin Senior Member

    Messages:
    6,872
    Likes:
    6,166
    The 7 groups are still in the top 100. Assuming that none got in the top 5, that would be $175,000 ($25,000x7)! Well worthwhile putting in the effort to vote, and encouraging others to vote.
     
  15. taniaaust1

    taniaaust1

    Messages:
    8,329
    Likes:
    5,264
    Sth Australia
    willow.. your signature is certainly easier to read. (I couldnt get my head around doing that myself).
     
  16. taniaaust1

    taniaaust1

    Messages:
    8,329
    Likes:
    5,264
    Sth Australia
    Leadership board changes

    CFSKnowledge Center - #19 still 19
    AACFS (IACFS/ME) - #42 now 35 (up)
    Wisconsin - #50 same 50
    RMCFA - #53 now at 54 (down)
    New Jersey - #69 now 72 (down)
    Mass CFIDS - #78 now 73 (up)
    Enterovirus Foundation - #99 now 98 (up)

    Everyone needs to vote on Enterovirus if we want to keep this ME/CFS group still in the top 100 to get money. There is only a 5 point difference from where it is now and the 100th place.
     
  17. Hope123

    Hope123 Senior Member

    Messages:
    1,171
    Likes:
    688
    Don't have contact with the major non-US groups like the ME Association, Invest in ME, ESME, Spanish groups, but has anyone notified them of the contest and that we could use help from our non-US counterparts? It seems like at least someone on Co-Cure put out a notice to some Norwegian groups.
     
  18. helen41

    helen41 Senior Member

    Messages:
    561
    Likes:
    111
    Sleepy Hollow Canada
    Update, as we have added Enterovirus Foundation to the engaged list. The charities that have expressed interest and submitted the necessary info to Chase are listed here:

    - American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME) Chicago, IL http://bit.ly/s48mcK http://www.iacfsme.org/

    - Rocky Mountain CFS/ME and FM Association Denver, CO http://bit.ly/s5fAJh http://www.rmcfa.org/index.html FB http://on.fb.me/uqyE5r

    - Cfsknowledgecenter, Inc. Wellington, FL http://bit.ly/lkvWpU http://www.me-cfscommunity.com/ http://www.facebook.com/CFSKnowledgeCenter

    - Wisconsin Chronic Fatigue Syndrome Association, Inc. Sun Prairie, W http://bit.ly/mlmr0c http://www.wicfs-me.org/

    - New Jersey Chronic Fatigue Association, Inc. Florham Park, NJ http://bit.ly/tXpa46 http://www.njcfsa.org/ FB http://on.fb.me/sZfzJb

    - Massachusetts CFIDS Association, Inc. Quincy, MA http://bit.ly/sJXeQ9 http://www.masscfids.org/

    - Enterovirus Foundation, Inc. San Francisco, CA http://bit.ly/lzhRfi http://www.enterovirusfoundation.org/ FB http://www.facebook.com/EVForg

    (Massachusetts CFIDS Association has completed their profile page (it doesn't show yet because there is a delay while Chase reviews it), and Enterovirus Foundation is working hard on theirs, so both were included in the group of 'engaged' charities)
     
    WillowJ likes this.
  19. WillowJ

    WillowJ Senior Member

    Messages:
    3,149
    Likes:
    2,851
    WA, USA
    The fundraising group admins and some other team members are working on this and are mostly down to "cold" contact now, so if anyone knows any group leaders and would like to help, I'm sure it would be appreciated. (PR names for most of the admins here, and FB names them in the FB group - they should be listed in the Purpose/How it Works document).

    There were English notices on Co-Cure, too, for those that aren't on that listserve and don't already know (in addition to the one with the link to a Swedish-language blog). Both the fundraising group and cfsknowledgecenter have been sending notices through Co-Cure.
     
  20. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    These ME/CFS/CFIDS orgs have all made it onto the leaderboard and are in line to win $25,000 each, if we can keep them there.

    - American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME) http://bit.ly/s48mcK

    - Rocky Mountain CFS/ME and FM Association http://bit.ly/s5fAJh

    - Cfsknowledgecenter, Inc. Wellington, FL http://bit.ly/lkvWpU

    - Wisconsin Chronic Fatigue Syndrome Association, Inc. http://bit.ly/mlmr0c

    - New Jersey Chronic Fatigue Association, Inc. http://bit.ly/tXpa46

    - Massachusetts CFIDS Association, Inc. http://bit.ly/sJXeQ9

    - Enterovirus Foundation, Inc. San Francisco, CA http://bit.ly/lzhRfi

    Chronic Fatigue Syndrome Fibromyalgia Org of GA is now actively involved in the contest and seeking votes. http://bit.ly/kdavB3
     

See more popular forum discussions.

Share This Page