Discussion in 'Latest ME/CFS Research' started by Firestormm, Aug 21, 2013.
Is accurately tracking a moving object the same problem as accurately tracking text?
I have serious (and increasing) trouble getting my eyes to consistently follow text, especially large unbroken blocks of text, which look more like a page of tiny squiggling worms to me.
With me it appears as a blur a lot of the time. Thank god for pdf. viewer and things. I remember at Uni I had all this stuff installed to help me read (or for text to be read out). It did help with my comprehension too of course. And that's something else - if you are struggling to read you struggle even more to understand.
Certainly not eyesight I don't think - some processing problem. I haven't properly absorbed the above yet.
There are a number of psycholinquistic experiments where they follow eye movements to get an understanding about how people comprehend language. They look for things such as rereading of bits of a sentence and timings for reading different types of clauses. These types of things might be interesting in looking at issues with blocks of text and processing problems.
I have big focus problems when it comes to movement around me, it makes me feel off balance, sick.
Changes in space, like walking in a narrow hall then entering into a high ceiling large building, I find I have to stop and steady myself to adjust.
Also I can't watch tv programmes where they flick quickly from one scene to the next. I can't focus, process quickly enough. It really hurts my eyes. Have to turn the tv off or change channel.
I've had numerous eye tests with interesting results. They did the eye-tracking test that made me focus as I tried to lie down, and my eyes 'spazzed' out, AKA, they started that rapid eye movement tracking and basically just couldn't focus on her finger.
Also, I had an Epilepsy test, that while I'm not quite Epileptic, i had 'Epileptic-like- results. My eyes couldn't dilate correctly and it made me start hyperventilate so bad they ended the test early. White lights, yellow, and any in that light spectrum I can't tolerate. Blue, darker reds, and green flashes don't bother me as bad.
I encourage more ME/CFS patients to get an Epilepsy test if only to document if these kind of results are usual for us.
Dr. Cheney considers ME/CFS a minor seizure disorder, or did at one time.
Interesting to see people looking into the lesser reported ME symptoms - I for one certainly have issues with blurring vision and difficult focusing on objects during times when all my other symptoms are worse. It'd be interesting to see further studies - i'm specifically interested to read the effects appear to be intensified in older patients but I think it's too early to speculate as to why this many be.
(Maybe that's why playing videogames, watching TV and using the computer for too long these days makes me feel so ill.)
What else is there left then to do?
I don't know =(
As for this data i'd have to say that now replication is the name of the game
If this is a common feature, it could be very good for diagnosis; i've never been a fan of the crazy 2 day exercise tests many researchers are working on.
I have had episodes of several distinct visual abnormalities since getting ME. One has only occurred twice and seems to be a kind of scintillating scotoma. That was really weird, with everything outside the central visual field shimmering, and I self-tested for stroke both times (negative, thank goodness). It lasted about 15-30 minutes then disappeared completely. I could not read at all, or see a screen properly, during the episodes.
More common is what appears to be nystagmus, which sounds like what several people here are describing, when you can't see properly because your visual focus is jumping all over the place, and it's due to involuntary erratic movements of the eye muscles. I think I have it more when I also have post-exertional twitching in my leg muscles.
I just looked in Erica Verrillo's Guide to CFS and found several references to nystagmus, and indeed a paragraph on it, where it says among other things
I had it this morning, and have been trying to think of a way to describe it. It's not blurred vision in that things are not hazy or swimming. This morning I thought "My vision has gone wobbly again!" and that seems more accurate.
In terms of eyes, about ten minutes following the vaccination which triggered ME off for me I was walking home from my GP clinic and all my vision faded to black and white and I had to sit down on a grassy area as I had no energy to continue and stayed there for ten minutes before I could continue. I've never really mentioned it to anyone as I never knew what anyone would make of it but since we're talking about eyes and vision I thought why not.
Oh cool, I was a student at the University of Leicester when I took part in this research. I am pleased it has seen the light of day (pun intended)
Unpleasant experience for you Legendrew. ! Sounds like a sensitive reaction to the vaccine. Sound close to a black out ?
I had to get a tetanus jab about 6 years into my ME, I was very nervous about having it, but I had too as I had stood on a old rusty garden fork. Fortunately I had no problems with the tetanus injection. But I noticed they made me wait in the waiting room for 20 minutes after having the jab just in case of a reaction. So good idea to sit there in the waiting room even if they don't tell you too.
I wonder what vaccine it was that you had ?
Yeah I guess it was a sort of black out on reflection. I had MMR and tetanus at the same time so I don't know which it was or if it was both together. Not something i'd ever wish to experience again though! Thinking about it like that I guess its not really the same thing as the thread is discussing but as i've already said I get the blurred vision sometimes and difficult concentrating.
Taken from here comment #450
I wonder how tests for dyslexia might reveal some problems with this kind of processing ability (or lack of) that we are talking about? Funny that before Uni (I was tested only at Uni), and before I retired with ME, I had no problems of this sort: but when tested at Uni I was found to be 'borderline positive' for dyslexia. Consequently, and because of my ME, I was able to take my exams on computer: much more amenable to me than trying to absorb, think, and write with a pen: just about
Maybe eye-movement doesn't imply issues with processing? Maybe dyslexia tests are not revealing something that is connected? Just seemed that way to me. Doesn't matter if it's a novel, a science paper, something relating to the work I do, a magazine, or reading things on the forum: my 'eyes' and the interpretation, then attempts to regurgitate and re-interpret meaningfully: are all now affected. But it varies - could this be due to fatigue? Am I worse when more tired? Possibly but certainly not always... No I would say that it is part of the 'cognitive dysfunction' more generally.
Interesting. Remember that experiment with playing cards inside an MRI? That struck a cord with me. Not been able to locate it - if you can would you mind posting? Thanks in advance
I just posted this on another thread but will put here too.
SUMMARY OF VIRUS IN VESTIBULAR: MOST IMPORTANT LINKS.
Vision distortions are very very common with ME/CFS. Some doctors think this vision distortion (vestibular issues) are from viruses in our vestibular ganglion. Specifically herpes viruses. So the treatment is to take antivirals, such as l-lysine, acyclovir, famvir or valtrex. See below. (If I am not allowed to include links, please let me know.)
2. Evidence for a viral neuropathy in recurrent vertigo., Gacek, Richard R. , ORL J Otorhinolaryngol Relat Spec, 2008, Volume 70, Issue 1, p.6-14; discussion 14-5, (2008)
3. A Perspective on Recurrent Vertigo, Gacek, Richard, ORL J, 2013; 75:91-107 http://www.karger.com/Article/PDF/348710
4. publications by Dr. Mitsuo Shichinohe, M.D., PhD
ORL J Otorhinolaryngol Relat Spec. 2009 Jan 10;71(2):78-86.
Ménière's Disease Is a Viral Neuropathy.
Department of Otolaryngology - Head and Neck Surgery, University of Massachusetts Medical School, Worcester, Mass., USA.
Morphological and clinical evidence supports a viral neuropathy in Ménière's disease (MD). Quantitative examination of 11 sectioned temporal bones (TBs) from 8 patients with a history of MD revealed a significant loss of vestibular ganglion cells in both the endolymph hydropic (EH) and non-EH ears. Transmission electron microscopy of vestibular ganglion cells excised from a patient with MD revealed viral particles enclosed in transport vesicles. Antiviral treatment controlled vertigo in 73 of 86 patients with vestibular neuronitis (85%) and 32 of 35 patients with MD (91%). Copyright © 209 S. Karger AG, Basel.
blog on antiviral and meniere's disease
Here is another thought: vision disturbances could be from an autoimmune condition:Meniere's disease might be an autoimmune condition?
I hadn't seen this eye stuff before. I suffer from constant eye pain these days and I wonder whether it is that I overcompensate for the aforementioned defects, causing extra eye strain/fatigue/pain?
@Rrrr, as I said in the other thread, your links seem to be about ear - not eye - problems. I don't have time to look at the links in detail.
You can also try a Google Site Search
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