One more thought. Calcium, or lack of it. I had TMJ after my mastectomy and my hormones went down (chemo-induced menopause). So they finally got my face straightened out and said I couldn't have hormones so of course then I was diagnosed with bipolar. Everything is so clear in hindsight.
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Changes in face
- Thread starter Jammy88
- Start date
I lost over a stone in weight and have never gained it back. I also look old when I am severe and when symptoms ease I look younger again.
I used to also get the problem with the jaw where if I opened my mouth too wide at a certain angle it would lock and I would hear a dull click when it unlocked again. I haven't noticed it for a very long time though.
@rosie26, did you happen to take fluoroquinolones for your infection? It's a horrible reaction for those that get it.
My TMJ is coming back, I'm glad this thread is here. TMJ and another jaw tumor (can't remember the name) are also associated with calcium and hyperparathyroid. Now I have something else to check out. My jaw has shifted too much one way. Thank you all.
My TMJ is coming back, I'm glad this thread is here. TMJ and another jaw tumor (can't remember the name) are also associated with calcium and hyperparathyroid. Now I have something else to check out. My jaw has shifted too much one way. Thank you all.
I don't think I have ever taken fluoroquinolones. I have all my GP notes on me but trying to work out their writing is another matter.
There was one antibiotic which was a pessary type - I question that one for possibly causing a reaction - change in microbiota. Just need to work out the doctors writing. I should take it to the GP next time I go and see if they cant work it out.I think there maybe calcium dysregulations with my ME but I don't understand all the science. So I can only speculate. Hope the TMJ settles down for you. Do anti inflammatory tablets help?
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@rosie26 , fluoroquinolones go for the mitochondria, many many symptoms, maybe like cfs/me? Some react after one pill, other people it builds up on and they're out for years. Some die.
I agree, I have records of dr's handwriting and I can't make it out for squat. I wonder if they develope their own "shorthand".
It blows me away how a dr. can make his notes that make you the bad guy, but they do. The people that transcript the notes should be the ones to go to, but I don't know if it's allowed.
I just found out that hemochoromotosis and pseudogout are correlated with hyperparathyroidism, among a few other things. I have an appt. with another bone specialist next week hoping he'll be better than the last one.
I've just noticed in the last few months my TMJ has returned and getting slowly worse. The pseudogout or whatever it is comes and goes but hanging around much longer.
I really don't know if calcium/parathyroid have anything to do with cfs/me or not. I'm on here to learn if there's any connections, and the people here are so far ahead of me I'll be studying for a while.
I agree, I have records of dr's handwriting and I can't make it out for squat. I wonder if they develope their own "shorthand".
It blows me away how a dr. can make his notes that make you the bad guy, but they do. The people that transcript the notes should be the ones to go to, but I don't know if it's allowed.
I just found out that hemochoromotosis and pseudogout are correlated with hyperparathyroidism, among a few other things. I have an appt. with another bone specialist next week hoping he'll be better than the last one.
I've just noticed in the last few months my TMJ has returned and getting slowly worse. The pseudogout or whatever it is comes and goes but hanging around much longer.
I really don't know if calcium/parathyroid have anything to do with cfs/me or not. I'm on here to learn if there's any connections, and the people here are so far ahead of me I'll be studying for a while.
@Paralee I hope I continue to have normal thyroid results. It sounds complicated trying to get levels right for the thyroid.
I'm glad you mentioned the antibiotics to me. It's reminded me to look up the name of the one I mentioned.
I've taken a quick look to see what pseudogout is about. Sounds painful, sorry you get that. I got off very fortunate with reactive arthritis (which I feel certain I have along with my ME, now) in regards to not having had swollen painful joints that I can recall. We have another member here with hemochromatosis or did have? @alex3619 if I remember correctly.
I hope all goes well for you with your specialist appointment next week. Let us know how you get on.
I'm glad you mentioned the antibiotics to me. It's reminded me to look up the name of the one I mentioned.
I've taken a quick look to see what pseudogout is about. Sounds painful, sorry you get that. I got off very fortunate with reactive arthritis (which I feel certain I have along with my ME, now) in regards to not having had swollen painful joints that I can recall. We have another member here with hemochromatosis or did have? @alex3619 if I remember correctly.
I hope all goes well for you with your specialist appointment next week. Let us know how you get on.
alex3619
Senior Member
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- Logan, Queensland, Australia
@rosie26 I am a haemochromatosis carrier, with super high ferritin. That can be deceptive though. I am actually borderline anemic. Ferritin is a marker for inflammation, and sometimes correlates with iron, but its not reliable by itself.
There is growing evidence that ME and CFS may have something to do with calcium and parathyroid issues, but its a long way from being certain or understood.
There is growing evidence that ME and CFS may have something to do with calcium and parathyroid issues, but its a long way from being certain or understood.
@rosie26 , thank you, I will.
@alex3619 , thank you very much for that info! I haven't found the possible correlation between the ME/CFS and calcium & parathyroid yet. Something else to look for. That poor dr. isn't going to like our visit probably. Most don't like you knowing much of anything.
The parathyroid and thyroid have some kind of relationship, also, I read. I'll have to look that up again, they share the same blood supply and some other things.
@alex3619 , thank you very much for that info! I haven't found the possible correlation between the ME/CFS and calcium & parathyroid yet. Something else to look for. That poor dr. isn't going to like our visit probably. Most don't like you knowing much of anything.
The parathyroid and thyroid have some kind of relationship, also, I read. I'll have to look that up again, they share the same blood supply and some other things.