Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
Discuss the article on the Forums.

Change for ME

Discussion in 'Action Alerts and Advocacy' started by hixxy, May 12, 2012.

  1. hixxy

    hixxy Senior Member

    Messages:
    771
    Likes:
    203
    Just thought other Australians would like to know about a fairly new advocacy website run by a couple of severe ME sufferers from Brisbane.

    http://www.changeforme.net/

    One area of particular interest is the resources page where you can submit recommended doctors and specialists. Having appointments with specialists is always a concern -- so the more recommended ones Australia wide the better
     
  2. Googsta

    Googsta Doing Well

    Messages:
    390
    Likes:
    157
    Australia
    I almost missed this, thanks Hixxy.

    Please note that they are listing doctors, psych's, neuros etc for every state so please recommend any good doctors no matter where you are in oz.

    I've emailed them to find out if they are a registered Not for Profit yet as we can nominate them for charity fundraising if they are.

    Check out some of their advocacy work http://www.changeforme.net/page12.php
    Fantastic!
     
    hixxy likes this.
  3. hixxy

    hixxy Senior Member

    Messages:
    771
    Likes:
    203
    This could be a good resource. I had thought my post had slipped completely under the radar. Hopefully some others can contact them with suggestions.
     
  4. Googsta

    Googsta Doing Well

    Messages:
    390
    Likes:
    157
    Australia
    I contacted them to ask if they were registered as a Not-For Profit & this was the reply.

    Anyone know if an Incorporated Association is considered a charity?
     
  5. hixxy

    hixxy Senior Member

    Messages:
    771
    Likes:
    203
    http://www.ocba.sa.gov.au/Associations/index.html

    This is a SA govt website, but should be applicable country wide.
     
  6. Googsta

    Googsta Doing Well

    Messages:
    390
    Likes:
    157
    Australia
    Awesome, thanks Hixxy!
     
  7. hixxy

    hixxy Senior Member

    Messages:
    771
    Likes:
    203
    merylg likes this.

See more popular forum discussions.

Share This Page