1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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Change for ME

Discussion in 'Action Alerts and Advocacy' started by hixxy, May 12, 2012.

  1. hixxy

    hixxy Woof woof

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    Russell Island, Australia
    Just thought other Australians would like to know about a fairly new advocacy website run by a couple of severe ME sufferers from Brisbane.

    http://www.changeforme.net/

    One area of particular interest is the resources page where you can submit recommended doctors and specialists. Having appointments with specialists is always a concern -- so the more recommended ones Australia wide the better
  2. Googsta

    Googsta Doing Well

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    Australia
    I almost missed this, thanks Hixxy.

    Please note that they are listing doctors, psych's, neuros etc for every state so please recommend any good doctors no matter where you are in oz.

    I've emailed them to find out if they are a registered Not for Profit yet as we can nominate them for charity fundraising if they are.

    Check out some of their advocacy work http://www.changeforme.net/page12.php
    Fantastic!
    hixxy likes this.
  3. hixxy

    hixxy Woof woof

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    Russell Island, Australia
    This could be a good resource. I had thought my post had slipped completely under the radar. Hopefully some others can contact them with suggestions.
  4. Googsta

    Googsta Doing Well

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    Australia
    I contacted them to ask if they were registered as a Not-For Profit & this was the reply.

    Anyone know if an Incorporated Association is considered a charity?
  5. hixxy

    hixxy Woof woof

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    Russell Island, Australia
    http://www.ocba.sa.gov.au/Associations/index.html

    This is a SA govt website, but should be applicable country wide.
  6. Googsta

    Googsta Doing Well

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    Australia
    Awesome, thanks Hixxy!
  7. hixxy

    hixxy Woof woof

    Messages:
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    Russell Island, Australia
    merylg likes this.

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