There's no audio for those of us who can only watch online and so it's especially interesting to see the written testimony of some of the presenters.
@jspotila has just posted Terri Wilder's testimony on her blog - and it's pretty amazing.
Read the rest:
http://www.occupycfs.com/2016/05/18/cfsac-comments-terri-wilder/
@jspotila has just posted Terri Wilder's testimony on her blog - and it's pretty amazing.
Terri Wilder said:Good Afternoon. My name is Terri Wilder and I’m a person living with ME.
I should tell you that I was only diagnosed about ten weeks ago so it feels strange for me to introduce myself to you this way as I typically introduce myself this way:
“Good Afternoon, I’m Terri Wilder and I’m an AIDS Activist and a member of ACT UP/NY.”
Yes, that ACT UP–the AIDS Coalition to Unleash Power. The infamous activist organization that shut down the FDA, demanded that the CDC change the definition of AIDS to include women specific illnesses, and stormed the NIH. If you worked in government for any length of time I’m fairly certain you have heard of ACT UP.
While I have only been diagnosed with ME for ten weeks, I can tell you that it didn’t take me very long to figure out that we are repeating history with ME. I have told multiple people that I’m having déjà vu. You see, I have been working in HIV since 1989....
Read the rest:
http://www.occupycfs.com/2016/05/18/cfsac-comments-terri-wilder/