Agents for Change: The 10th Invest in ME International ME Conference, 2015 - Part 1
The 10th Invest in ME International ME Conference (IIMEC10) was held, as usual, in the Lecture Theatre at 1 Birdcage Walk in Westminster on May 29th, 2015.
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CFSAC Spring 2013 (May 22-23): How to Participate

Discussion in 'Phoenix Rising Articles' started by Mark, May 8, 2013.

  1. jspotila

    jspotila Senior Member

    I will, over the phone. Thanks for submitting written testimony!
    Nielk likes this.
  2. Nielk


    I just got my time slot to speak (over the phone) Wed, May 22 10:45 to 11:45 a.m.
    Valentijn, Sasha and snowathlete like this.
  3. Andrew

    Andrew Senior Member

    Los Angeles, USA
    1. I think the toolkit should be removed. And I think it is a good issue to hit again and again. It sends a message about how upset we are about what they offer. Also, the CDC is not going to revise it in a way that is fair, even if they have the resources.

    2. I think another possibility to push for is the DHHS (including the CDC) to informally adopting the use of the term Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    BTW, I doubt that many would agree with me, but given a choice, I'd like to see the CDC remove every reference on their website to ME/CFS. Because as far as I'm concerned, the current website is worse than nothing.
    Valentijn and Nielk like this.

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