Discussion in 'Action Alerts and Advocacy' started by Wally, Dec 18, 2014.
Thanks Gabby. Very few people could follow it I am sure.
You'd have had to have replied to the draft report, meaning, have painstakingly gone through it line by line to know in quick order just what they were refering to. I'd done this and so caught a good deal of the discussion, but then my attention would either flicker off or I couldn't pay attention because I was trying to remember how to spell while making a note. (Once I could write automatically but now I often don't know how to write words without focussing slowly on them until the right spelling comes back. My handwriting has also been breaking down.) Anyway, my best take is that they did a very good job for us as efficiently as they could.
Wondering if you would please clarify. Did they end up voting on Dr. Kaplan's motion ? Thank you.
Yes. His motion passed.
Yes, I have this problem too. It's very annoying, and a very strange feeling when I can't figure how to spell something I'm sure I used to know. The Firefox browser's spell check works pretty good, fortunately. I hate appearing to be illiterat.
Jennie Spotila published Marry Dimmock's: "CFSAC Meets P2P"
The article includes an unofficial version of CFSAC's recommendations to the P2P.
Mary Dimmock's unofficial version of CFSAC's recommendations jives with my notes and recollection. There was no language recommending that ME be separated from CFS. Such language could presumably be construed as a dig at CDC/NIH and was not included.
I aplogize if I remembered that incorrectly. Maybe what I heard was a comment or interaction on this subject and my brain didn't take in the final language. It sure would help in this country if ME could be separated from CFS--only wish!
According to @caledonia, “The upcoming WHO ICD-10-CM codes (medical billing codes for the US) as of Oct. 1, 2015 will have separate codes for ME and CFS. In addition, each one excludes the other. So if you're diagnosed with ME, you can't be diagnosed with CFS and vice versa.” Take note of this post!
Caledonia adds, "The term ME/CFS is confusing. And there is no billing code for it. It doesn't actually officially exist, even though the NIH has picked up on using it (apparently because we patients are?)." But CFSAC has echoed the Panel in claiming, "ME/CFS exists."
Thank you all for trying to listen, follow, take notes, report etc.
I couldn't do any of the above and your help is greatly appreciated.
@Ember, do you have a link for those exact codes and illness definitions/descriptions according to the WHO-10-CM?
You are bringing your appreciation and interest, and that's a contribution too.
My information comes from the post that I cited above via hyperlink and from this article by Mary Kindel on MEAdvocacy.org:
Thank you, Ember, for explaining the codes. Does the ICD-10-CM ME G93.3 describe ME at all or simply list it under Neurological Diseases?
The ICD-10 CM codes are online. ftp://ftp.cdc.gov/pub/Health_Statistics/NCHS/Publications/ICD10CM/2015/
Download the pdf and look under the Tabular Listing.
There is nothing further about definitions or descriptions for any diseases. This is merely a classification, but even that can say a lot.
Jeannette Burmeister's comment to CFSAC: More HHS Disregard for the Law
Are you concerned about freedom of speech for CFSAC members? HHS apparently wants to control the narrative.
I'm concerned about the independence of CFSAC. don't forget some members have been threatened just for asking some questions.
CFSAC voting members are non government people. They are supposed to give recommendations to the government.
If the government controls what CFSAC says in any way, it is an illegal breach.
“This HHS web is getting curiouser and curiouser;” perhaps we could all be afforded the same concern.
You can also try a Google Site Search
Separate names with a comma.