1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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CFSAC meeting registration website glitch

Discussion in 'Action Alerts and Advocacy' started by Andrew, Nov 29, 2013.

  1. Andrew

    Andrew Senior Member

    Messages:
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    Los Angeles, USA
    I tried to submit my cfsac testimony today because I want it in the public record. The message I back is that I'm already registered. I have no idea if it accepted my testimony or not. I emailed the CFSAC about this and copied Seamon Corp.

    So pay attention when you register
  2. jspotila

    jspotila Senior Member

    Messages:
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    573
    I had to submit my written testimony THREE times last week, requesting confirmation that they had received it each time. I finally got confirmation today. So keep emailing and requesting confirmation until you get a response.
    Valentijn likes this.
  3. Nielk

    Nielk

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    Queens, NY
    I also received my confirmation today.
    Valentijn likes this.

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