Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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CFSAC Meeting on 12/13/2017 (Wed.) & 12/14/2017 (Thurs.). Deadline for Public Comments -12/4/2017.

Discussion in 'Upcoming ME/CFS Events' started by Wally, Nov 27, 2017.

  1. Wally

    Wally Senior Member

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    E-mail received this morning from the U.S. Government’s “CFSAC Support Team” re the upcoming CFSAC (in-person) meeting and deadline for submitting public comments.

    “Good morning, below is the link to the Federal Register Notice (FRN) announcing the upcoming in person CFSAC meeting. Due to a delay of a few days in publishing the FRN, we will be taking public comments through next Monday, December 4th. A final agenda will be posted on the CFSAC website this week. We look forward to your public comments. Thank you.

    https://www.gpo.gov/fdsys/pkg/FR-2017-11-27/pdf/2017-25549.pdf


    The CFSAC Support Team

    Email: cfsac@hhs.gov

    Website: http://www.hhs.gov/ash/advisory-committees/cfsac/index.html

    Sign up for the CFSAC listserv to receive the latest updates about CFSAC: http://www.hhs.gov/advcomcfs/cfsac_email_list.html





    To unsubscribe from the CFSAC-L list, click the following link:
    http://list.nih.gov/cgi-bin/wa.exe?SUBED1=CFSAC-L&A=1
     
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  2. Wally

    Wally Senior Member

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    Reminder - CFSAC Meeting Today, Wednesday Dec. 13th from 9:00 am to 3:30 pm (EST) and Thursday, December 14th from 9:00 am to 5:00 pm. See, https://www.gpo.gov/fdsys/pkg/FR-2017-11-27/pdf/2017-25549.pdf

    1) Viewing/listening to the meeting online can be accessed through this link - www.hhs.gov/live

    2) Listening to the meeting via phone can be accessed by phoning a call in number and entering a passcode.
    Call in number: (888) 469-1760
    Participant passcode: 4510479


    3) Agenda for meeting is available here - https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/2017-12-13/index.html and as posted in full form in this thread, by @Gemini, at http://forums.phoenixrising.me/index.php?threads/cfsac-december-13-14-2017-meeting-agenda-call-in-info-posted.56514/. Thank you Gemini for making the Agenda available for easy viewing.

    Unfortunately, I did not receive notification from CFSAC that the Agenda was released for viewing. Not sure if others received notification via the CFSAC listserv, but I would be interested to know when the posting of the Agenda occurred and if anyone received e-mail notification that the Agenda had been made available,for public viewing. .

    4) Separate thread for discussing the meetings (before, during and after the meetings) has been set up here - http://forums.phoenixrising.me/index.php?threads/12-5-2017-deadline-for-in-person-participation-at-the-12-13-2017-or-the-12-14-2017-cfsac-meetings.56368/

    5) Sign up instruction to get e-mail notifications about future CFSAC activities and/or announcements is located here at https://www.hhs.gov/ash/advisory-committees/cfsac/about-cfsac/cfsac-email-list/index.html.

    Or alternatively you can watch for postings in the Federal Register or on the CFSAC website without formally providing an e-mail Address to the U,S, Government. FYI - for reasons not known, I have on several occasions not received e-mail notifications from CFSAC, NIH, CDC, or the HHS even though I have signed up for e-mail notifications when offered by these Departmenrs/Agencies for information related to ME/CFS.

    6) Posting of future events being sponsored by the HHS or one of its umbrella agencies, I will try to post the information I receive here on the PR Forum in this sub forum and thread titled “Calender of Upcoming Events”, if not already posted by another PR Member. My ability to pass on/post information to others can be hindered at times due to the unpredictable nature of my health and the , so no promises that I can consistently be counted on to post. Please feel free for any PR Member to post in this subforum for any upcoming ME/CFS event not listed or updated here - http://forums.phoenixrising.me/index.php?forums/upcoming-me-cfs-events.84/,
     
    Last edited: Dec 13, 2017
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