International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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CFSAC Meeting on 12/13/2017 (Wed.) & 12/14/2017 (Thurs.). Deadline for Public Comments -12/4/2017.

Discussion in 'Upcoming ME/CFS Events' started by Wally, Nov 27, 2017.

  1. Wally

    Wally Senior Member

    E-mail received this morning from the U.S. Government’s “CFSAC Support Team” re the upcoming CFSAC (in-person) meeting and deadline for submitting public comments.

    “Good morning, below is the link to the Federal Register Notice (FRN) announcing the upcoming in person CFSAC meeting. Due to a delay of a few days in publishing the FRN, we will be taking public comments through next Monday, December 4th. A final agenda will be posted on the CFSAC website this week. We look forward to your public comments. Thank you.

    The CFSAC Support Team



    Sign up for the CFSAC listserv to receive the latest updates about CFSAC:

    To unsubscribe from the CFSAC-L list, click the following link:
    Gemini likes this.
  2. Wally

    Wally Senior Member

    Reminder - CFSAC Meeting Today, Wednesday Dec. 13th from 9:00 am to 3:30 pm (EST) and Thursday, December 14th from 9:00 am to 5:00 pm. See,

    1) Viewing/listening to the meeting online can be accessed through this link -

    2) Listening to the meeting via phone can be accessed by phoning a call in number and entering a passcode.
    Call in number: (888) 469-1760
    Participant passcode: 4510479

    3) Agenda for meeting is available here - and as posted in full form in this thread, by @Gemini, at Thank you Gemini for making the Agenda available for easy viewing.

    Unfortunately, I did not receive notification from CFSAC that the Agenda was released for viewing. Not sure if others received notification via the CFSAC listserv, but I would be interested to know when the posting of the Agenda occurred and if anyone received e-mail notification that the Agenda had been made available,for public viewing. .

    4) Separate thread for discussing the meetings (before, during and after the meetings) has been set up here -

    5) Sign up instruction to get e-mail notifications about future CFSAC activities and/or announcements is located here at

    Or alternatively you can watch for postings in the Federal Register or on the CFSAC website without formally providing an e-mail Address to the U,S, Government. FYI - for reasons not known, I have on several occasions not received e-mail notifications from CFSAC, NIH, CDC, or the HHS even though I have signed up for e-mail notifications when offered by these Departmenrs/Agencies for information related to ME/CFS.

    6) Posting of future events being sponsored by the HHS or one of its umbrella agencies, I will try to post the information I receive here on the PR Forum in this sub forum and thread titled “Calender of Upcoming Events”, if not already posted by another PR Member. My ability to pass on/post information to others can be hindered at times due to the unpredictable nature of my health and the , so no promises that I can consistently be counted on to post. Please feel free for any PR Member to post in this subforum for any upcoming ME/CFS event not listed or updated here -,
    Last edited: Dec 13, 2017
    Gemini likes this.

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