Home care is the theme for Severe ME Day on August 8th
Why should home care be the theme on Understanding and Remembrance Day for Severe ME on August 8? Helen Brownlie of the 25% ME Group has written an explanation for Phoenix Rising ...
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CFSAC meeting, Dec 10-11 - Agenda

Discussion in 'Action Alerts and Advocacy' started by Nielk, Nov 9, 2013.

  1. Nielk

    Nielk

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  2. shannah

    shannah Senior Member

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    I see Nancy Lee has a half hour up front to address the IOM study on ME.
     
  3. Andrew

    Andrew Senior Member

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    Does anyone know how we can sign up for the comment segment?
     
  4. Ember

    Ember Senior Member

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    That should be long enough to explain why the contract was cancelled.;)
     
    Marty, Nielk and lnester7 like this.
  5. Nielk

    Nielk

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    They didn't tell us yet. they usually send out a listserv e-mail with the information.
     
  6. Nielk

    Nielk

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    I also see, though, that there is no time allotted to a discussion of the IOM contract. I'm sure the voting CFSAC members have a lot to say about it but, I don't see when they can do so. Will there be a gag on such discussions?
     
  7. Andrew

    Andrew Senior Member

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    I might have asked this before, but...

    How do web-a-thingies work. If we want to testify, how will we be able to speak? Do we use our computer microphone?
     
  8. Nielk

    Nielk

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    They are supposed to come out with a Q&A of how all this is going to work out but, I have not seen it yet.
     

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