Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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CFSAC letter from Sebelious

Discussion in 'General ME/CFS News' started by SpecialK82, Apr 25, 2011.

  1. SpecialK82

    SpecialK82 Ohio, USA

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    Ohio, USA
    Sorry if this has already been posted but I haven't seen it. It's a letter dated Mar 2, 2011 from Sebelious to Christopher Snell regarding the CFSAC recommendations. She does not say much that's note worthy except "I have asked agencies to consider the recommendations for future activities and to report on their progress at the next CFSAC meeting."

    http://www.hhs.gov/advcomcfs/sebelius_memo.pdf


    I did not realize that she had responded yet - I'm glad to see that agencies are supposed to report out at this next meeting! Let's hope that it includes some action steps instead of more talking and promises of taking this seriously....
     
  2. caledonia

    caledonia

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    Cincinnati, OH, USA
    Good catch SpecialK!

    I don't know what it means in terms of actual action, but at least it's an acknowledgment that we exist.
     

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